Yes I did manage to get out for an hour, figure I may as well before the Chemo starts again and I don’t even have the strength to get out of bed.
I guess its just an agonising wait now till I have my body scan, I’m hoping they will get me in Mon or Tue and dependent on the results will start my chemo thereafter, the prospect of which scares me, I know I’ve done it once but to go through with it again so soon is almost to hard to bear.
It’s just so unfair! I can understand why you can’t feel this is reality.
Sleep while you can tonight and listen or watch TV or radio if you want/need distraction…
How are you feeling today claire? Hope you are ok + feel better knowing things will move forward this week. Lets know when you have your scan + some idea on treatment etc.
Love tina xx
As well as the support you are receiving from the other users please remember you can always give the BCC helpline a call. Here you can talk to a trained member of staff about your fears and concerns and they will be able offer you support and infromation as well as a listening ear. The number to call is 0808 800 6000 and the lines are open Monday to Friday 9 to 5pm and Sunday 9 to 2pm.
Feel a little better today, went to my mums for my dinner (appetite isn’t the best but it will keep mum happy to see me eat something) and then I’ve had 2 friends over this evening (who I met via the forum last year) they have both been super supportive and even though I feel like I’m dragging them down with my fears (as of course they must think it could happen to them) they have assured me there gonna help me every step of the way.
Trying to keep myself occupied is the hardest thing, at least the weather is good at the moment and I can take advantage of my garden. I got the impression I should be in for my body scan asap so once this is done and I have my results (good or bad)I can start planning things. Thinking of the practical things like having my hair cut very short prior to Chemo starting, just as I was starting to embrace my curls as well and getting stocked up on the various foods I could stomach.
I saw a quote today in a magazine…“This to shall pass”… how appropriate.
Unbelievable…I’ve just chased my BCN about my body scan and she tells me that they had booked me in for the 21st Oct!! This would of been over 2 weeks since they told me my bc is back…is this normal, how can they expect you to ‘carry on’ knowing or rather not knowing what lies ahead?? However she went onto say that they have had a cancellation for tomorrow and has got me in for 0840, I have to go in later to collect the prep to take this evening.
Going to make the most of the sun and sit in my garden for an hour, no doubt tomorrow is going to feel like a very long day.
Thanks everyone, just back. Sadly they couldn’t get a needle in me (previous Chemo has wrecked my veins) so couldn’t have the dye, I’m obviously concerned now that the scan won’t be as clear as possible but there is nothing I can do about it. I’m definitely going to have to have a PICC line for my next round of Chemo seeing as I appear to not have any veins left!
I’ve been told results should be back by Friday but I won’t probably get them till next week…the waiting game begins
Hi Poppet,
Just a note to say I’m thinking of you during this anxious time. I had a PICC line for my chemo. and it was excellent and hassle - free. The procedure to have it fixed into you is a bit grewsome, but after the first day or two it is painless. Everyone is on here to provide support and advice, so tell us how you get on. It’s fine to send me a PM if you need to,
Poppet, thinking of you and what you must be going through. The mountain is analogy is very good- having finished FECx6 and 18/30 rads, I felt like I am getting near the top of a mountain, and if anyone were to push me back down again, well, i just can’t begin to imagine the frustration and worry. One thing to add: if that scan result is available to someone on Friday, it couldn’t take very long to transmit the results to you. Push for getting the result on Friday, even if they have not worked out what they are going to do about the results, as that is what the delay is going to be, deciding what needs done after that. Your BCN may be able to intercede on your behalf, and am sure she will understand what you are going through. Give it a go anyway. Keep strong xxx
I’ve had a chemo start date of the 27th Oct, but in the meantime I should see the Onc to give me the results. My BCN said she would meet with my Onc Fri am then ring me Fri pm to advise when they can see me so I assume early next week. Understandbly I’m concerned especially as I have the agonising wait of the weekend but I can’t change anything to I’m going to try and relax, after all the next few months are going to be anxious enough for me.
I’ve bought a new hat in readiness of my bald months and I’m trying to get things straight as much as I can. I’ve finished work (again) so my days are my own, as I’m not sleeping at least there is no hurry in the morning to keep up especially as I’m finding it difficult at the moment to motivate myself. I don’t want to lock myself away but equally I’m not up to seeing people so I have a friend over tonight (1st I’ve seen since the news) so no doubt it will be emotional.
Hi claire
been thinking about you alot this week + hoping you’re ok. Good to hear your chemo plan isin place - do you know what type you’re having? Best of luck with the scan results I know the wait is agonising (understatement) but fingers crossed you will get some good news from your bcn tomorrow.
I had my ct scan Monday + my wonderful bcn harrassed the radiologist non stop so I got results Wednesday. Thankfully my organs are fine+ no changes from last scan in Aug which was a huge relief especially after my recent meeting with my onc… Fingers crossed your news will be worth the wait too!
Will pm you tomorrow
take care xx