Help i am taking DEXAMETHASONE 6mg BD , then 4mg BD, then down to 2mg bd- since they stopped giving it to my via IV in hospital my eyes sight has gone double visio and i cant focus- Will it calm down???
Im aslo being given something called Levemepromazine in a quarter dose that ive just read can cause bipolar!
I cant sleep at all my insomnia ia skyhigh and that with the Dexamethasone im seriously at the end of my tether, the blurred double vision…i cant drive or focus this is amking em feel sick and totally vulnerable and alone.
Please please did anyone have to contact their palative team with this what was the outcome??
Im getting very distressed ïŒ
Hi Lynnc
Perhaps you ought to give your medical team a ring, I’m sure they would prefer you to phone than to suffer the way you are, get checked out, even just for peace of mind.
Take care, kind regards,
Jo, Facilitator
veru sorry lynn - this sounds really really horrible
sometimes we can get a reaction to all these drugs
I would give everyone a ring - your onc team, the NHS help line etc.
make sure you keep your mobile phone in your pocket so that if you feel ill then you can ring someone
do you have anyone who can come and sit with you for a bit?
from what you have said … it is normal to have the sickness and the insomnia - they both make you feel horrible, vulnerable and alone! … the real issue for you is just (JUST!!) the double vision … on top of the others you must be really pretty sh*tty to put it mildly … give all the numbers a ring and try not to panic - difficult I know
let us know how it goes
lots of love and a big hig love FB XX
Lynn - I’ve now posted in secondariees,GG and texted you and Vikki. Pls ring me!!! Give your onc team a ring about the double vision.
Lots of drugs used in psychaitry have side effects that are useful for cancer patients.Levomepromazine at low doses is used as powerful anti sickness drug for cancer patients. I’ve had it before. I’m also on 2 different types of major anti-psychotics at low levels for help with nerve pain and a sedative for muscle relaxant so don’t wory about that.
The govt made the pharmacsts list everything on the leaflets and it scares evryone when they read the leaflet as often drugs have multiuses at different doses so just because it says it is used for bipolar doesn’t mean that’s what they think you are!!!i
phone me -
love kate
Hi Lynn
YES YES i had those sypmtoms too…Couldn’t focus on comp screen at all…Head all over the place!
Spoke to chemo nurses who have said chemo & drugs can affect eyesight but this will correct itself in time…
Hope it gets better soon hun.x.x.x.