Diagnosed in pregnancy

Hi there

I’m 37 and was diagnosed with stage 2 DCIS when I was 8 moths pregnant. Ive since been told it’s no longer in situ and more than 1/3 of my breast will need to be removed. After long discussions I’ve decided to have a mastectomy rather than lumpectomy because of the area being removed. I’m now trying to decide if I should have reconstruction at the same time. I’ve got a 4 year old and a 5 week old. The last few months have been incredibly stressful with pregnancy/birth/diagnosis and I’m not sure if reconstruction at the same time would be too much. On the other hand doing it later seems like a big undertaking too with expanders. I’m so lucky to be in a treatable position but I also just want to enjoy my new family. Any advice on recover after immediate reconstruction would be helpful.
Thanks
Megan

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Just when you should be enjoying your new baby you get this thrown at you!
I can only repeat what my surgeon advised me a couple of weeks ago when I met him to discuss the plan for my stage 1, grade 3 cancer. My initial reaction was immediate recon after single mastectomy. But he said that radiotherapy after would screw up the implant and I would have to return after all the treatment finishes to have it replaced anyway. So I will wait until after rt and chemo.
Whatever you decide it has to be right for YOU. But do be mindful of what comes next in your treatment. It may be less stressful to wait.
May op isn’t until 25th Sept so I can’t make any comment of what comes next.
Good luck x

Hi @meganhb i just wanted to reach out as I was diagnosed in July this year and was 6 weeks postpartum, I also have a 3 year old. My treatment plan was to go straight onto chemo which I started in August. We moved in with my parents for the extra support as it’s been really tough, my partner has also taken time off work. I would say we’re really lucky to have the support network and I don’t think I’d be able to get through it without! Make sure you have plenty of friends or family around you, take the help with the baby and take as many breaks as you need to. I do feel guilty a lot, but this forum has been a huge help to me and I’ve also reached out to other mums going through a similar situation on instagram. Mummy’s star is also a charity that’s been a help to me. Prioritise your recovery! Hopefully this is only temporary and you’ll be back to your routine in no time xx

Hi @meganhb

Thanks for posting your question.

We hope to be able to respond to you on Monday.

In the meantime our helpline is open between 9am and 1pm tomorrow (Saturday) if you would like to talk things through.

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With best wishes.

Lisa

Ask Our Nurses Service Co-ordinator

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Welcome Megan , you could also post in the Younger women section of the forum and the Surgery section. Best of luck whatever you decide and hoping for a less stressful time for you very soon x

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Hi Megan

Thanks for posting.

Being diagnosed with breast cancer during pregnancy is very difficult.

Deciding if breast reconstruction is the right decision for you can also be difficult, especially when you have young children to look after. It’s understandable that you’d like to know more about recovery after implant reconstruction to help you make this decision.

Recovery after breast surgery will be different for everyone. It can often take several months to feel fully recovered, but many women feel able to do most of their usual activities after about 6 weeks. As @yasmeink says, having a good support network to help with practical tasks and childcare while you recover can be helpful.

As you say, if you chose not to have a reconstruction now, there is an option to have this at a later date as a delayed reconstruction. Some women choose not to have a reconstruction (simple mastectomy) and use an external prosthesis which is worn in your bra.

As @isitreallyme says, it’s important to make the right decision for you. If you have not done so already, you may find it helpful to talk to your breast care nurse about how you are feeling. They can talk you through the options and help you come to a decision.

Talking to someone who has had a similar experience can often be helpful. Our Someone Like Me service can match you with a trained volunteer who’s had a similar experience to you. You can be in touch with your volunteer by phone or email for them to answer your questions, offer support or simply listen. You can ask to talk to someone who has had immediate reconstruction and someone who has had delayed reconstruction. We also have volunteers with young children.

You can ring the Someone Like Me team on 0114 263 6490 or email them at someone.likeme@breastcancernow.org, so they can then match you to your volunteer.

We also have support designed specifically for younger women (20-45 years) with breast cancer. Which you may find helpful. We are currently running the Younger Women Together support events face to face and online. These events have been created to provide support for younger women.

The Younger Breast Cancer Network (YBCN) is a private Facebook group run by young women for young women (20- 45) who’ve had breast cancer. To join, go to Facebook and search ‘Younger Breast Cancer Network’ and send them a private message.

And @Jill1998 suggests you could also post in the younger women’s section of the forum.

You may find the websites Keeping Abreast and Flat Friends helpful for advice and support about reconstruction and simple mastectomy.

Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen to your concerns, talk things through and signpost you to more support and information. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001).

If you would prefer one of our nurses to call you. To do this, please complete this form ticking the box agreeing to a call back.**

Our usual opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday.

Out of hours you can leave a message and we will call you back when we next open.

Best wishes

Cassie

Breast Care Nurse

Please read the Ask Our Nurses disclaimer Full details on how we collect and use your data can be found in our Privacy Policy

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