Diagnosed last Thursday 10-04-2014 at Age 46 !!!

I was diagnosed with DICS last Thursday (2 1/2 cm) and was told by consultant that I will have to have this remove with an addition 2 cm of the surrounding area.  Of course, I suppose, like all others I would want this to happen sooner rather than later but I’ve been told that this will happen in the next 3 to 4 weeks as the recomended NHS waiting time!!!.  I just wonder if this is the normal time in this situation.  I am even considering going private but this is costing in the region of £4000.  I’m I being too hasty is it really ok to wait 4 weeks?

 

Some people on here are have been told what stage their cancer is at but although I had a mammogram, scan and biopsy, i’m being told that until I’ve had the lump removed there is no way of telling me what stage the cancer is at - anyone else is being told this?

 

  

Hi CindyB and welcome to the BCC forums

I am sure you will find support and shared experiences here, in addition our helpliners are on hand with practical and emotional support on 0808 800 6000, lines are open weekdays 9-5 and Saturdays 10-2 so please feel free to call to talk your queries and concerns over

Here’s a link to the BCC ‘DCIS’ information which you may find helpful:

breastcancercare.org.uk/breast-cancer-information/about-breast-cancer/primary-breast-cancer/types%C2%A0of%C2%A0primary%C2%A0breast%C2%A0cancer/ductal-carcinoma-situ-dcis

Take care
Lucy BCC

Hi

I was diagnosed and had op three weeks later get results tom x it is usual and it will fly as you will see lots if people in meantime x I was told it the time scale so you can adjust before surgery x. Hope this helps x I was also told mine grade two but can’t tell properly till after surgery x

Hi Cindy

This is all perfectly normal … the timescale and the worrying!

You will have so many appointments to attend before admittance that you will wonder where the time went.

I also got told that nothing much would change in three or four weeks, and I believe that.

Good luck and best wishes.
Ann

Hi Cindy, sorry to hear of your diagnosis, but you will get lots of support on here and answers to your questions. I have found it to be a godsend. I was given my surgery date four weeks ago following diagnosis of high grade DCIS. (I am 44) i was totally shocked as my gp sent me for a mammogram ‘just to rule anything out’. My surgery is today…I am up so early as I’m allowed a ‘light breakfast’ before 6am! I am actually feeling quite calm and i’m sure that is largely to do with having time to adjust to my diagnosis over the last few weeks. I have read a lot (the bcc booklets are excellent) and asked many questions, so I guess I have had time to accept this and mentally prepare a bit. Everyone is different, but once diagnosed I continued to work and found this a good distraction. I won’t lie to you, some days have been hard and I have been all over the place with my emotions…it is certainly a rollercoster.

I wish you the very best for your surgery. Take care. Xx

Hi CindyB

I’m sorry to hear you have joined our horrible club, your reaction is completely normal and I can remember feeling just the same. 3- 4 weeks is the standard waiting time and I needed this time to get my head round my new situation, to adapt and adjust.  It is normal to want to scream “get this out” but you will find dealing with things emotionally takes time.

 

if you can easily afford the private fees then go ahead but that might only get you an op a few days sooner. However cancer is an expensive business, my rads is going to cost me £400 travel to hospital, then there’s things like underwear and creams, if it was me I’d keep any available funds for a post treatment holiday.

 

the NHS are experts in treating BC there are so many of us out here getting treatment.

 

that’s just my personal view and you must do the best for you.

 

as for your staging,  I was told when I got biopsy results but many people have to wait until it’s removed., or are told a stage and it’s changed after the pathology report is recieved. It’s only then that your full treatment is decided. 

 

this is a waiting game. Waiting for op, then waiting to heal,  then waiting for the next thing.

take care

 

Keeks

Dear All,

 

The support on here is just amazing!!  Thank you all so much.

 

This has been very emotional for me especailly as a christian I know that this is an opportune time to practice my faith but it feels like the hardest thing to do.  I have surrounded myself with family and friends and we are all praying for a positive result.  Already my first miracle has happened.  I was told last Thursday that the usual time it would take for surgery is 3 to 4 weeks and especially with the Easter holiday it is very unlikely to be 3 weeks.  Yesterday afternoon I called the hospital even though the nurse told me it would be too early to request a date but was given a surgery date ot the 7th of May…I continuded to pray for an earlier date.  Today I received a call from the hospital to say that my date has now been brought forward to the 2nd of May.  That is 3 weeks and a day from my diagnosis date.  God is good. 

 

Prayer changes things.  Trust in God!!

 

CindyB

 

 

Hi Cindy

I decided to go private…cost £3,500 and was worth every penny. The treatment was excellent…had my results on the Monday was in theatre on the Wednesday… You still have to wait 5 weeks for wound to heal prior to chemo if yu require it.

I was out the same day… hope this helps

 x

Hi Cindy,

I was diagnosed on 2nd April following an ultrasound, mammogram, biopsy & fna. I had a lumpectomy on 17th so Thursday just gone. I have to wait until 30th now to see what pathology results say as to whether I’ll need more surgery (they did sentinel node biopsy to check if affected) or if it will be onto further treatments.

I was told at my diagnosis that I had an invasive stage 1B, grade 2, HER2 positive & oestrogen positive. I didn’t realise before all of this just how many different types of breast cancer there are. I’m still trying to fathom all of the abbreviations & meanings of things.

Hopefully the wait until the 2nd May won’t drag for you, try to keep yourself as busy as possible with normality!

P.S. I’m only 33! x

Hi Cindy,

 

I was diagnosed back in November 1st 2012 with Ductal Invasive with lymph node involvement, Grade 3. My surgery was on December 12th 2012, 5 weeks later. Mastectomy and SNB. I’ve since had chemo and now on a hormone tablet for at least 5 years.  Was stage 2B. Here is some information about staging from the Macmillan website:

 

"Stage 1

The cancer (lump) is 2cm or smaller and has not spread to the lymph nodes in the armpit.

 

Stage 2

Stage 2 is divided into two stages:

  • Stage 2A  – the cancer is smaller than 2cm and has spread to the lymph nodes in the armpit OR is bigger than 2cm and has not spread to the lymph nodes OR it can’t be found in the breast but is in the lymph nodes.
  • Stage 2B  – the cancer is smaller than 5cm and has spread to the lymph nodes in the armpit OR is bigger than 5cm but has not spread to the lymph nodes.

Stage 1 or 2 breast cancer is often called early breast cancer.

Stage 3

Stage 3 is divided into three stages:

  • Stage 3A  – the cancer can’t be found in the breast OR it is under 5cm and has spread to the lymph nodes in the armpit (which are clumped together) OR it is bigger than 5cm and has spread to the lymph nodes.
  • Stage 3B  – the cancer has spread to tissue near the breast and may be attached to skin or muscle. There are usually cancer cells in the lymph nodes in the armpit.
  • Stage 3C  – the cancer has spread to 10 or more lymph nodes in the armpit, or to lymph nodes below the breastbone, near the neck or under the collarbone.

Sometimes stage 3 breast cancer is called locally advanced breast cancer.

Stage 4

The cancer has spread to other parts of the body such as the bonesliver or lungs. This is called secondary or metastatic breast cancer."

 

Reading your post, it is possible you might be Stage 2A

 

poemsgalore

Thanks for all your support…Surgery day is fast approaching - next friday 2nd May.  There have been ups and down but with faith I have taken over my life.  The devil is a liar!! I speak complete healing over my body in the name of Jesus!!

 

Mark 11:23 – “"Truly I say to you, whosoever says to this mountain, ‘Be taken up and cast into the sea,’ and does not doubt in his heart, but believes that what he says is going to happen, it will be granted him!

 

Stay positive and have a blessed day!!

 

Hi Cindy
Hope it goes well for you tomorrow. I will be thinking about you. I was given an appointment when I left the hospital for the results, which was for 2 weeks after the op.
Take Care
Angie. X

Hi all, finally got my results today. All cancer was removed 3 lymph nodes was taken and all clear. God is so good!! Cancer was a grade 3 and fast growing. So unfortunately, I have to have Chemo and take Herceptin and tamoxifen tablets. I also have to have radiotherapy. I am also suffering with haematoma and had to have 200 ml of old blood removed today which may delay my treatment. Anyone has or have had this problem???

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