Thats great news positive pants. I’m glad you have no spread and no more surgery needed. Its a relief isnt it. Although I never get too excited about anything on this journey
I am same as you, have my oncotype app with oncology next thursday so hopefully I wont need chemo and onto radiotherapy.
Hopefully you wont need chemo and we can just move onto the next step. Treat yourself during this wait time. I have a spa weekend booked with friends this weekend, we deserve some pampering… also helps to keep my mind busy during the dreaded waiting.
Hi, I had mastectomy on 19th December and tomorrow I have appointment for pathology results and treatment plan. Fingers crossed for a good outcome.
Sending love and best wishes to you all xx
That’s great news! I too had news recently of clear margins and nothing in lymph nodes.
I’m a bit confused though - I was expecting an onco scoring, but an oncotype test wasn’t done and I’ve been recommended radiotherapy/endocrine treatment.
Do you know why some people have an onco test and some don’t? (I’m attending a teaching hospital so it won’t be for lack of resources I shouldn’t think). I was a bit overwhelmed at the appt and forgot to ask!
Went to my radiotherapy treatment plan meeting earlier. I feel very positive today.
Hi @rippym I didn’t have an Oncotype test either and that was because my tumour was Grade 1. The NHS don’t test Grade 1 as Oncotype is really a test to tell whether chemo would be effective and it rarely is with low grade cancers. Do you know your grade? I would wager that is the answer. It’s good news really as low grade endocrine cancers are usually slow growing and not as aggressive as other types. Because you’ve had clear margins and no lymph involvement, I’d say you are in good shape.
Hmm i think someone else asked this a while ago at a similar point - the Nurses answered so maybe ask them ?
After a while you start to refer to it in the past tense without really noticing .
Good question, I had BC 31 years ago. lumpectomy, radiotherapy and Tamoxifen. Fast forward to last August Mammogram showed up a Tumour in the same breast, a recurrence. The first words out of the consultants mouth was, we are treating this as though it has spread. By some miracle it hadn’t spread, no node involvement, it was 3 Tumours, smallest 2.1cm, had a mastectomy, on Letrozole, no side effects, and all done and dusted in 9 weeks.
