Will do thank you lovely x
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Hi
Thank you for replies. Iām calmer. My ex has been great, stayed the past two nights, and has been around most of today. I have reached out to friends, people have been amazing.
I have a feeling Iām going to be stage IV at diagnosis, Iāve always thought this was up the road for me. It wouldnāt be a surprise. Hence the terror, and the agony of not knowing. I should have some more information tomorrow.
If that is the case I will accept it, and make a different life. I have long thought that the stress of my job would give me cancer, my body is going to make it stop. I have been told now, my body has reacted to it all. Itās been an awful five days.
I am not being melodramatic about the stage IV fears. I have my surgeonās mobile number and she said I could text with questions. My CT was done last Thursday, and I have no news. I sent a text yesterday saying I was in agony waiting, think I am stage IV and would prefer to be told over the phone than wait. I got a reply on Monday night, saying she would chase the report this morning, she knew the waiting was the worst, and would update me asap. All day a deafening silence. Itās been agony. But I am coming to terms with worst case scenarios.
Iāll post on here when I know. Thank you everyone.
Xx
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Iām glad to hear that you are calmer and have some support now. I hope your results come through very soon and that it isnāt as bad as you fear . When something like this happens it makes you review your life and question a lot of things but talk it through before you make any snap decisions.
With love
Joanne x
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The waiting is horrendous
A week before I find out details of how bad it is / treatment needed & I just canāt sleep
Up 24hrs now despite trying to sleep
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Canāt say anything different than what has already been said but I will reiterate that we are all here for you. We know the agony of waiting and we know the shock of finding out you have BC.
You will get through this and will carve a new life thatās even more valuable than the one you have now. Itās an opportunity to reshape what really matters despite what stage you are at.
I bet every person here can mention at least one thing they have changed since diagnosis that has been for the better.
Sending you lots of love and strength
Carrott xx
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Dear Georgiegirl,
We have all been there and now we are here for you. I can see from the lovely messages that you have had we all care.
I would like to wish you, health and happiness going forward, also a cup of tea with that special friend goes a long way.
Keep posting, letting us know how you are getting on.
Big hugs Tili 
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So, I got much better news than I was expecting!!
- CT CAP clear
- despite 5 nodes āpositiveā according to ultrasound criteria the core biopsy of the node taken last week came back NEGATIVE
- mass is IDC grade 3 (knew it would be grade 3, itās superficial, Iām skinny, and I know it was new, so it grew quickly)
- no receptor status back yet
- pre-op assessment Wednesday
- surgery as day case 4th December
Itās been a crazy few days. I always knew Iād get breast cancer, and I do breast exams as part of my job. When I found it, I knew instantly. But my fear and expectation was always that Iād be stage IV at diagnosis. I was wrong. But in the awful few days between having the CT on Thursday and getting results, I kind of faced up to stage IV, and I knew Iād cope, I processed it and made plans. So Iām feeling like I changed the script. Iām no longer freaking out and I am really upbeat.
Also told my kids, which I was dreading, I didnāt want to tell them until I knew what was what. One is many miles away, so I had to tell her via video call, which I felt awful about, but she was among friends, and making a special trip to see her, to deliver bad news, seemed worse. Keeping her in the dark wasnāt an option, either.
The other one I told F2F, with her dad, my ex, there.
They dealt with it really well, and I was very upbeat, and still am.
I am not scared, or worried now, just want to crack on. Ive totally got this.
Thanks everyone for being here. Xx
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I understand the thoughts going through your head.I waited until I knew the diagnosis and treatment plan before I told my family. But, it did help to tell a neighbour (especially as sheād had a recent lumpectomy (non cancerous) so that if I needed to talk about how I was feeling, I didnāt need to put my anxieties on my kids.
my experience of cancer care was fantastic. I was so well cared for by all the teams involved from mammogram to radiotherapy (finished that this week) so try not to feel alone- thereās always someone to talk to if you need to. My kids though a bit shocked weāre grateful that I saved them the anxious wait for diagnosis though mum and mum in law both said- why didnāt you tell us? Iām sure they were pleased to be spared that wait too.
Good luck 
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Oh Georgie. So relieved for you. It is more common than not in breast cancer world to have our fears be just that. And not reality. Glad that was your experience 
And good luck. I had a grade 3 and I just got cracking on, too.
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Yes, itās unreal, scary, mind numbing, all of these strong emotions. Iāve been treated for bony mets for about 90 days now.
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Dear anotherusrname,
So please you have come to the forum, we are all around for for you. Wishing you well with your treatment for a good outcome.
Iām wishing you health and happiness going forward. Keep posting and letting us know how youāre getting on. I always say one day at a time.
Biggest hugs Tili
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Iām glad it wasnāt as bad as you feared the places we go in our imagination - even though f itās just in an effort to prepare are ourselves are often the worst places .
Wishing you all the best for your treatment and recovery.
Joanne x
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This has made my day! So pleased for you. You can now move forward and eventually put all this behind you xx
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I had every expectation my cancer would be ER +ve, took the Pill, HRT, did egg donation, and its what my mum had.
But itās not. It scored 0/8 for hormone receptors. Her2 result is pending still.
But itās looking likely to be triple negative disease - obviously this is a completely different game.
Either way, I will be having chemotherapy.
Im not having lumpectomy on Monday now, just sentinel node biopsy.
The lump is staying in for now - although itās small, if itās triple negative leaving it in situ and having neo-adjuvant chemotherapy can allow response to be monitored. If Her2 comes back positive it will be coming out. X
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Georgie, remember that yes treatment may be a different ballgame but the results have become quite comparable. Iām so sorry youāll be having more strenuous treatment but you caught it early and there is no reason to think your response wonāt be like the rest of us. Triple negative has come a long way. Thank goodnessā¦
Thank you Kay. Have you had triple negative breast cancer?
I am worried the sentinel node will come back positive on histopath, despite the two core biopsies of the lymph node being negative.
I had 5 axillary nodes that were āpositive by ultrasound criteriaā.
After this shock with the receptors I donāt trust core biopsy result - or my luck - any more.
X
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Iāve not had triple negative but Iām well read so thereās that. At any rate there is immunotherapy for it now and although chemo is a bugger, it does work quite well on the cells since they tend to be fast growing. And although I get the shock of this, itās not like triple negative is unheard of. Itās not as common as hormone positive of course but plenty of people get it so itās not rare. Remember that as you doubt your core biopsies which are quite accurate. The lymph nodes could be swollen due to inflammation (which since your biopsies were fine is probably exactly what is happening). And of course youāre worried about the histopath, we all were, but thatās not going to happen until surgery which reads itās occurring after chemo. Chemo is going to do quite a number on your little jerk and that includes lymph nodes. Chances are super high theyāre going to read fine in pathology. Remember all of your scans came back without spread. This is caught early and treatment is a great equalizer. Youāve got a grade 3 which normally melts once chemo touches it. This treatment will suck but there is no reason to think you wonāt be like the majority of people and have it work. One day at a time hereā¦
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Im having the sentinel node biopsy under GA on Monday morning.
Not having lumpectomy.
I had core biopsies of LN under USS guidance at clinic - they were negative. When I say āthe histopathā Iām talking about the sentinel node(s) coming out on Monday. Iām worried that will show I am ānode-positiveā after all.
Sorry if I didnāt explain very clearly.
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Oh! So theyāre going ahead and doing a sentinel node biopsy before chemo so that theyāll know for sure whatās going on. Smart. I know very stressful for you but theyāll know and can address if something unexpected is going on. But again, unexpected is just that. A sentinel biopsy is accurate more than 90% of the time and thatās a pretty big percentage. I know this is horrifically stressful but thank goodness you are moving quick. You seem like youāll have all your answers within a week and can start addressing this so that you never have to hear the word ābreast cancerā again in reference to yourself.
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Let us know @georgiegirl1 how you feeling after you biopsy under GA.
I am triple negative 2,1 cm, 3 months minus 2 weeks post chemo neo adjuvant and I can feel the lump has melted/diminished.
Similar nodes issue/uncertainty due to finding the lump post bilateral hands surgery early August mad 
which meant probably swollen from the surgery or cancer and since bilateral surgery nothing to compare against. Right naughty breat. Left fine. Not spread either tg. Repeat biopsy on nodes only, 2 weeks later, still no presence of cancer unequivocal they said the first time, but to be sure they will be removed at surgery anyway. I think weāre talking a couple of them but I might be more no idea at this point. Quite good that they operate on nodes, hopefully will give you peace of mind and best course of treatment.
Next 2nd MRI since August next week Tuesday. Am excited and hopeful, (also apprehensive a bit not gonna lie), it will have melted by half but it can only have reduce as can hardly feel it now only I know where it is from scar of biopsies so no wonder I could only feel it when bigger. Got more chemo, EC four rounds next year 2 Jan every 3 weeks and will have RT post surgery. The weekly chemo (originally packl pembrozumac, carboplatin) I am finishing in 2 weeks was extremely tiring at times but I still managed to ride (horses) more at the beginning than recently, go for meals occasionally and ofc plenty of rest. Planned a shirt 4 days trip aboard am desperate to go away 
Had a reaction on paclitaxel twice and got changed on abraxane, not as bad w that drug but obv not great, just at least I could function and work even 3 days a week. Cycle is made of 3 weeks, week 1 being the worse ( been up since 5.30 due to sickness and steroids lol) but it gets better by week 2 and 3. Hair started to thin a looot in past 2 cycles. I cold caped. Got 50 to 60% hair left Also needed transfusions . Will have immunotherapy for a year. Pembro can mess up your thyroid, am on tablets now, just started this week. Probably also peri MP.
Get support from family and friends if only to distract you on way back from hospital. All the V best and keep us posted. This forum is fab. Lots of love ladies! xxx
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