Diagnosed Wednesday Invasive Lobular Breast Cancer

I’m 66 years old and was diagnosed on Wednesday with invasive lobular cancer. I am in total shock. I have no symptoms at all, I feel fine. The diagnosis was as a result of routine breast screening followed by ultrasound and 2 biopsies. The nurse said I would be contacted with an appointment for MRI. I telephoned on Friday to chase the appointment and was told they were unable to contact MRI department by phone, they’d been trying, so they had emailed the department because they wanted me to be seen on Monday and I would probably get a phone call with an appointment that afternoon. I haven’t heard anything and I’m feeling really anxious. I understand that a treatment plan can’t be put in place until I’ve had the MRI and I just want to get it started and get rid of this thing in my body. I live alone but I do have a good family and great friends, but in the middle of the night I just want to weep. Sorry to go on, I know the appointment will happen when it happens but I just feel so upset

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Dear Jesc

We are here for you, so sorry to read your post, at the moment it’s one day at time, hopefully you will have your MRI appointment very soon. When you will move on to a treatment plan. Things will start to fall into place.

As you say it’s such a shock, when a diagnosis comes out of the blue, so pleased you have family and friends around you
maybe give you breast cancer team a call, telling them how anxious you are feeling

Wishing you well going forward please keep in touch letting us know how your getting along.

Hugs Tili :rainbow::pray::rainbow::pray:

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Dear Jecs333, I’m so sorry to hear your diagnosis. I was diagnosed in similar circumstances in July with ILC after my first routine mammogram. I can totally relate to your feelings of shock & overwhelm. I found that the waiting for appointments & then results was the hardest part & once I had a treatment plan I came to terms with it a bit more. I have found this group & others to be so supportive & helped me to feel less alone on this journey. I did a lot of weeping especially in the middle of the night. Let the emotions come but do reach out to the Breast Care Nurses if you feel like some support would be helpful. They’ll be able to point you in the right direction to get the support. Is there a Maggie’s Centre nearby?
I hope you get your appointment soon & a treatment plan. Much love & care xx

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I am so sorry to hear of your diagnosis. I was in an identical situation two years ago and can remember vividly the fear and disbelief. The diagnosis, treatment and recovery tends to take over for a while but, like me, you will weather the storm and come out the other side. I still have that feeling of having been through some sot of whirlwind. I hope you get your MRI very soon so you can start and finish treatment as soon as poss. Sending you my sincere best wishes.

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I was in exactly the same place 3 years ago aged 69. Such a shock - poor you. ILBC isn’t always visible with ultrasound and mammogram not sensitive to it. My surgery was booked while I waited for MRI appt so no delay. Ultrasound found 15mm tumour. MRI found a smaller one adjacent to it. I’m good on Anastrozole - chemo would have provided very small comparative benefit and in any case some evidence that it’s not as effective for ILBC so I declined, with onco’s support. I am on 5 year self-managed plan and can refer myself to breast clinic any time I am worried. Amazing care from all medical and clinical staff. Good luck - it does get better :hugs:

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Dear Jess , I was in the same situation as you 18 months ago. That waking in the night feeling scared and crying is very normal . It’s so hard getting your head around what is happening . Be kind to yourself and talk to your family and support each other . Take care xxx

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Hi Jecs… the waiting is so hard… I felt just like you once is been told i had breast cancer…‘just get it out of me!’… but, also like you, I then had to wait for the MRI and then the results and i can only describe that period as utter torture! I probably sound like this is something i went through ages ago but it’s not…i was where you are just a couple of weeks ago and now i am already post surgery. Things will start moving faster once they have all the information they need and can arrange your treatment plan. I just want to let you know you aren’t alone and the horrible emotions you’re having to endure right now will change…I was in such a state in those early weeks… the fear was tremendous and i didn’t feel like myself at all… But, when i got my treatment plan, i felt a sense of some control and, when i got out of hospital after my surgery, i felt a little bit more like myself… currently, I feel able to just take each day as it comes…i just want you to know, it won’t always feel as terrifying as it does right now…

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