Diagnosed with breast cancer-not happy with NHS

Hi I am hoping someone can help…

Three weeks ago my mum was diagnosed with stage one invasive breast cancer.

At the time of being diagnosed she was told there is a chance the cancer has spread to nearby lymph nodes and these will have to be removed and biopsied as a matter of urgency. Mum was also told she will have to have the tumour removed and have radio therapy five days a week, monday to friday for three weeks.

Mum has sever reflux and is due to have sugery for it in a couple of weeks however, the cancer professor at the time of diagnosis told mum that the cancer treatment takes priority over the reflux.

During this weeks appointment with the professor he told mum that they can’t do the two operations together and because the recovery time can vary between 3-6 months after the reflux operation they are going to halt the cancer operation, removal of lymph nodes and radio therapy until she has fully recovered from the reflux surgery and give her hormone therapy instead.

 

The surgery to remove the tumour and lymph nodes, we have been advised will take Approx. 1.5-2 hours as oppose to the reflux surgery which will take up to 8 hours so, I feel they are doing things back to front as the cancer surgery and treatment will have a much less recovery time and will allow mum to reover quicker for the reflux surgery.

At the time of being told this I asked the professor these questions:-

1) Has the cancer spread to the lymph nodes.

2) Will the hormone therapy shrink the cancer.

3) Will the hormone therapy prevent the cancer spreading to lymph nodes.

4) How will you know if the hormone therapy is effective.

5) What if it takes mum much longer than predicted to recover fully from the reflux surgery.

Sadly the professors answer to each of my question was “I do not know”

 

At the time mum went along with the professors decision to put the cancer treatment on hold and have the reflux surgery first however, we advised mum that this was not best for her and the cancer should without a doubt take priority. Mum agreed and rang the cancer nurse to tell her and all seemed ok and mum was told they will make arrangments for mum to have a dye inserted to pin point the exact location of the tumour and the fragments which are in the breast tissue and make arrangements alongside for surgery.

The following day the cancer nurse rang mum to say they would like to see her this coming Tuesday to discuss this with her and they still do not have a date and they want to discuss her reflux surgery with her.

We have a feeling that they still want to go ahead with the reflux and put the cancer surgery and treatment on hold.

Can they do this if mum has specifically said she wants surgery to remove the tumour and treament first?

Also what has changed (?) for three weeks ago mum was told the cancer takes priority and now thats not the case.

Mum is 68 by the way.

I am beside myself with worry and I am thinking about changing hospitals and getting a second opinion if the current professor doesnt respect my mums wishes.

Thanks for reading x

Hi flower-buds

 

Sorry, I’ve only just noticed your post. You’ve obviously been lying awake worrying! What a difficult situation to be in.

 

I can only give you my own experiences but, for me, getting rid of a tumour would be the overriding desire. The fear of knowing you have a tumour is awful and I would be concerned that this would be a heavy burden on your mum (and you) if she had to wait 6 months. I recovered quickly from my initial lumpectomy and removal of lymph nodes from my axilla (armpit). I would say I was over the worst of it in about 3 weeks. One key to it was doing the arm exercises religiously, which aided the recovery. I don’t know if the radiotherapy would affect the reflux surgery and therefore result in it being put off for a long time.

 

I think, if you have doubts about what is being suggested - particularly if her oncologist doesn’t know the answers to your questions -  then is there any harm in asking for a second opinion? I wish I’d got the second opinion much sooner.

 

Best wishes to you and your mum.

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