Hi everyone, I am fairly new to this site but been told it is invaluable. First registered and posted when I was waiting for my results from the core biopsy but didn’t get any comments so thought I would try again!
I am 34 years old and after a 5 week wait (numerous ultrasounds, 2 biopsies, mammogram and mri scan), I have been diagnosed with grade 2 breast cancer. This has come as a bit of a shock as there is no history of it in the family. Just waiting for date of lumpectomy and then will be followed by radiotherapy. Not sure if will need chemo yet, all depends if it had gone to my lymph nodes, to be honest I have no idea what is going to happen and it does scare me. My top priority though are my two young daughters.
It will be nice to have a chat with someone that has or is going through it. Always thought I was quite strong (I really have to stop crying in front of people that I don’t know very well!!!) so embarrassing!! Xxx
Hi Rach, I’m sorry you didn’t get a response to your first posting. I truly feel for you, particularly with 2 young girls.
I’m older at 54 and also diagnosed with grade 2 in April and opted for lumpectomy rather than mastectomy.
It is a shock and IS scary and it’s fine to have a good cry, we can’t be strong all the time. It is particularly difficult waiting for surgery / test results but I’m sure you’ll find that once treatment starts you’ll start to feel more in control, that you are doing something positive. At grade 2, it’s been caught early, treatment for breast cancer has come on so much in last few years, there’s every reason to be positive.
I’m sure some of the younger members will come along to offer support and encouragement. In the meantime, it might be helpful to look at some of the threads to see how younger women with children are coping amazingly well with their treatment - I’m in awe of them!
Please feel free to message me if you have any questions I might be able to help with
Take care, sending you hugs x
Hi hopefulholly. Thank you so much for your reply. It is so nice to talk to someone going through the same. Have you had your lumpectomy? Did you chemo after? Sorry for asking but it is the unknowing that is scary. You are absolutely right though that i will probably feel better once treatment starts.
I am very lucky that I have a wonderful support network around me.
Thanks again for your reply and I hope you are doing ok now. These forums are brilliant, makes you feel like you are not alone. Big hugs and postive thoughts coming your way too xxxx
Hi Rach
I am pleased to see that you have found support here and do feel free to join one of the threads the younger women with children are posting in as hopefulholly has suggested as they will understand just how you are feeling right now, here’s a link to some running at the moment:
forum.breastcancercare.org.uk/t5/Younger-women-and-families/bd-p/4449
BCC can offer you further support and help you to access other younger women through our ‘Younger women together’ events, you can find out more and register for this via the following link:
breastcancercare.org.uk/information-support/support-you/local-support/younger-women-together
Take care
Lucy BCC
Hi Rach2,your are certainly NOT alone,I felt so much better when I made my first post end of May and people replied who were or had been through the exact same thing, I felt so relieved to talk to people who understood and it was very reassuring to find that people were carrying on with normal life and making plans once the initial shock had died down.It is overwhelming and very scary in the beginning but once you know exactly what you are dealing with and what happens next it gets easier.There are quite a few ladies including some with young children talking on the "Just diagnosed and wanting to talk to people who understand "thread if you would like to join us,sorry you seem to have been overlooked the first time you made a post.Jill.
Hi Rachel I also have grade 2 but had to have a mastectomy. And also I’m sorry you didn’t get a reply first time round there is another thread on here (just diagnosed) there are some incredible ladies on there all near and around the same point that you are now. Hope you find some comfort from being on here it really has helped me and I have done the same crying to random strangers lol. If it gets you through the day then why not. On here most days if you need to talk xxxxxxxxxxx
Thank you ladies. I already feel better. I will check those threads out as the more support the better I reckon!!! I feel like sometimes I am going a bit mad ha ha!!
It’s so nice to talk to people that have been through it or are still going through it although I wish we all weren’t.
Sarah that must’ve been really hard for you to have mastectomy. I was offered it but decided on a lumpectomy (hope made the right decision)
Sending you all big hugs and thanks again for replying xxxxxx
Yes, it does send you slightly bonkers at times Rach,but I’ve also had such a good laugh with some of the ladies on here.It is hard for other people now matter how hard they try to understand.
I think we all feel like we are going a bit mad! But as Jill said this is a lifeline on here. To have people in the same boat that really get how your feeling. And there are some funny moments on here. It’s tough for every single person on here. We are all having feelings, hopes anxieties that We never thought I would have. Let us know when you get your date. Keep in touch xxxxxxxxxx
Hi Rach2, sorry you’ve had to join us here but as you can already see we are quite a nice bunch! I’m a bit further down the line and finished treatment 6 weeks ago, I had a lumpectomy and 2 nodes removed in April followed by 3 weeks of radiotherapy, all of which was fine, the op isn’t anything like you might imagine and I was home within a few hours and only had slight pain and recovered well,mentally it’s hard but things get better as you gain more knowledge about your own situation and Im pretty much back to normal now ? just take it a day at a time and keep talking to us here Xx
Oh congratulations Kim68 on finishing our treatment and yea everyone on here are so lovely and pretty sure at times will be my lifeline.
I will keep you all updated and already feel so much more positive from all your messages so thank you so much and thinking of you all too xxxx
Hi Lorna, I feel so much more positive just from reading other people’s views and how they have dealt with it. I think you are right though, once treatment starts I think I will feel so much more in control. I am not the most patient of people anyway so just want my date through!
Hope everything is going well for you and will keep you posted. Big hugs xxxx
Hi Rach,
Pleased now you are getting responses and the support. I second everything everyone else has said. I am 15 months down the line from first mamo, and had surgery x2 and rads. Now discharged to self care with yearly follow up.
I belong to a closed facebook group in Berkshire, and pop in here now and then.
Well done in getting your support team in early, i as usual was a slow starter there.!!!
Always write down your questions and take a trusted friend or partner. I had 3 great friends that shared the appt duties with me, maybe you have a partner you only mentioned your girls.
Good luck and gentle hugs,
LL xx
Thank you LL for your lovely message. Congratulations on being discharged and hope everything goes well for you.
I have got my appt through for my lumpectomy, 11th August. Weirdest thing but feel more excited than worried. Just want this thing gone and so much more positive now the ball has started rolling.
I am very lucky as I have a very strong support network with friends and family. I separated from my husband last October but he is still in my life and has been brilliant. Although not sure what the future will hold there, not ready to forgive and forget!! But nice to have his support all the same.
Wishing you well for the future and although obviously wish none of us were going through this I have already spoken to some truly amazing ladies xxxx
Hi Peanuts,from what I have gathered over last couple of months the treatment plan seems to evolve as the hospital gets more information, they told me that different things are tested in different labs and in different ways ,so what you are told initially can change, very complex but not unusual at all.Most people with lobular cancer appear to be given scan as routine as it can be hard to see on mamogram/ultrasound from what I have gathered. Lots of people here to go s you advice and support, dont panic there are lots of us going through same thing.
Hi Peanuts99,
I was also diagnosed at the beginning of July and it looks like my grade 2 lobular diagnosis and WLE and sentinel node sampling is about to change as the MRI has shown a 2nd tumour in the same breast. I have no idea what is going to happen but I am guessing that I will need a mastectomy now. I cannot believe how long this process takes. My op is planned for the 3rd, but this could change now that things look worse than originally thought. I have been asked to return to the hospital next week for another scan. Fingers crossed it’s not secondary cancer ?
I hope that we both get our treatment soon and come through this fighting and smiling
Fingers and toes crossed
Good luck xx
Good luck with everything ladies. Be thinking of you every step of the way. Keep positive, easier said than done I know xxxx ?
Hi Rach
Last July I was where you are now, just diagnosed with Grade 2. I subsequently had a lumpectomy, chemo and radiotherapy. I was discharged and h ave just had my first post treatment mammogram about a week ago and guess what, it was totally clear (but I can recall so vividly how it feels when you are first diagnosed - your legs go all wobbly, you feel like you have been dropped down a lift shaft or as though like someone has just hit you over the head with a hammer). Don’t you go fretting about crying at the drop of a hat - we have all done that and if it bothers anyone else well, hard cheese, that’s their problem! :smileytongue:There are some lovely people on here who will ‘hold your hand’ all the way through if you let them, including yours truly. I’ll bet you anything that in a year from now you will be like (a much younger version of) me - I’m in my 60’s but I sing and dance, joke do aerobics, salsa and hip-hop DVD’s, lift 3lb weights, party and make a ruddy nuisance of myself on here from time to time - where the heck all this energy is coming from is a mystery to me - I’m supposed to be a hobbling old crock with arthritis by now, not doing the limbo! You will get through this my darling, we are all here for you. xxxx
When I had my diagnosis they said grade 1-3 but in some of their leaflets it does say grade 4! Xxx
Who cares as long as they get rid of the bugger eh?!!