Hi, I was diagnosed with DCIS High Grade in my left breast yesterday and just wanted to say hello as you may well be seeing a lot of me here. I had my first biopsy a week ago and got the results yesterday. They said it is High Grade DCIS but are concerned that there may be elements of another invasive cancer as I presented with a lump which DCIS apparently normally does not so I had another wide needle biopsy done yesterday to try to get more info. I am booked in for an MRI for both breasts next week and then will be having a mastectomy maybe the week after that. Whether they find anything ugly in the right breast too or not I am seriously thinking of asking for a double mastectomy as I have Li Fraumeni Syndrome which means I’m at hihgh risk of many cancers, breast cancer included. I only recently found out about the LFS as my son was diagnosed with Rhabdomyosarcoma and the docs ordered genetic tests as I also had Osteosarcoma as a teenager. My head is all over the place right now and really don’t know what to think or do, my son is only 4 and still undergoing his chemotherapy. I also have a daughter of 3 and a daughter of 7 months, its my 30th birthday in 2 days time and my whole life is crumbling before my eyes.
Hi Mumof3
I am so sad reading your thread,it must be your worst nightmare to be ill yourself while your son is going through chemo.
(((((((((((((((((((big hugs))))))))))))))))))))))))
We always say that things get a wee bit easier when you have a treatment plan, but you maybe know that from your sons diagnosis.
MRI is very good at finding abnormalities,although some may not be cancerous,so don’t panic if they find something that needs further investigation.Then once you get the results of that you can get on with the surgery etc.
Meanwhile ,don’t be hard on yourself.This is a tremendous shock and you are already dealing with your sons diagnosis.You have an awful lot on your plate so just take wee baby steps and try not to look too far forward imaging the worst.(easier said than done I know)
Love n hugs
Dot
xxx
Just to say hello, Dotchas has said it all.
Irene
Hi mumof3,
Welcome to the Breast Cancer Care discussion forums where I’m sure you’ll get lots of support from the many informed users of this site who have a wealth of knowledge and experience between them.
I have put for you below links to some of BCC’s publications that you may find useful.
Resource pack:
breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/82
Younger women and BC
breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/80
Treating Breast Cancer:
breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/88
Also if you need someone to talk to in confidence, then please don’t hesitate to use the helpline service here, calls to the helpline are free 0808 800 6000 lines open M-F 9-5 and Sat 9-2.
Hope this helps. Kind regards,
Jo, Facilitator
hi mum of 3, my heart goes out to you, thats the one thing I have said about my cancer, I can cope with it better than if it had been one of my kids, and here is you having to deal with both, just really sending you my love.
take care, loads of hugs
Carol xxxx
hello Mumof3
bless you for having to cope with all of this and have a poorly son too! I am so sorry you are going thru this! this is a fabulous site and I have been so fortunate to meet and talk with the world most lovely, dynamic and self affacing women.
I found at the beginning you can only take things one minute at a time and one day at a time.
Any faster or further forward and I felt like my head was going to expload with information over load and be a total wipe out with worry!
Try to use the NHS services to the full, fone here BCC and fone your breast cancer nurse (BCN) make sure you get support and let others take a bit of the strain for you.
thinking of you xxxx Rachel
Mumof3, I just can’t believe what I’ve just read.
My daughter was diagnosed with Rhabdo in November 2007, she also has Li Fraumeni. I was diagnosed with breast cancer exactly 6 months to the day before her. I’m astounded at how similar our stories seem. She is also 4!
Believe me things seems impossible just now but you can get through it. I was going through radiotherapy when my daughter was in intensive care fighting for her life. My treatment paled into insignificance compared with hers, I could go on and on. My point is you will amaze yourself at how much you can cope with because you just have to. I’m not saying that you won’t feel like life is complete and utter hell at times though, we had very dark times but we got through it and we’re OK, my daughter’s treatment finished in January this year and she has regular MRI’s just to keep an eye on things.
Please send me a private message if you want, I’m right here for you and understand what you are going through. Hang in there.
All my love and best wishes to you,
Take care
Veggie
I am so sorry to read your thread, the other ladies have really said it all but you will find there is always someone on this great site to “chat” to about your many anxities. Just remember to take it slowly as you need to deal with this one step at a time, its hard not to rush ahead in your mind, (I certainly did when first diagnosed in August) but it really helps to focus on the present. Once you know what you are actually dealing with and what the treatment plan involves it seems more doable.
Big Hugs to you.
Chris x
Hi, a quick update already. I asked the brest care nurse to contact the genetics doc who diagnosed our li fraumeni to see whether there was anything they could do to get a quicker MRI and I got a call to say that they have arranged an MRI for me for Thursday afternoon at the same hospital where my son is having his chemo. We go in for chemo tomorrow till Friday so the new appointment is perfect, slightly more scarey that it is so soon though. With my other MRI (a week away) they said it would take a week to get the report and then they would be looking at surgery for the week after that but now the genetics doc is on board too the MRI report will be done on Friday (day after MRI) and hopefully forwarded to the breast clinic at my local hospital before their MDT meeting on Monday morning so hopefully they will have that and the second biopsy results next Monday. Sorry if thats a lot of waffle, x
Hi mumof3,
I’ve Pm’d you as well.
That’s great that you’re getting your scan done at the same hospital as your son, good timing and you’ll get the results quicker as well, it sounds like everyone’s trying their best to help you which is fantastic, it helps when people care. There are definately some doctors, consultants, registrars etc etc that are more natural than others at the whole emphathy thing, we found that when our daughter was going through treatment. You never forget those people.
I hope your son gets on OK with his chemo, it’s a long haul isn’t it? does he have a Mesna up? we all used to watch it dripping through and chant Mesna! Mesna! Mesna! to hurry it along! Good luck for your MRI as well.
We are off on holiday for 2 weeks from Saturday so I won’t be around but you and yours will be in my thoughts.
Take care
Veggie
Hi mumof3
I just wanted to say I’m sorry to read your story, and to echo what everyone else on here has already said. I was diagnosed four months ago (at the age of 38, with a 9 month old son) and it was like I’d been hit over the head with a brick.
Once your treatment plan is in place, it does get a bit easier to accept as fear of the unknown plays a HUGE part. My son has totally kept me going through the past few months. I know I can’t sit and feel sorry for myself, because he still needs his Mummy.
Hang in there, and good luck at the scan tomorrow. I also wanted to say Happy Birthday for tomorrow, though I know it won’t be one you will remember for the right reasons. But, at least they have found the DCIS, and can treat it.
Sending love and hugs ((()))
Shenagh xx
Hello mumof3
My thoughts are with you x
Mine also - I just don’t know what to say but I will be thinking of you x
So, so sorry for all you are going through. Life is unfair. It’s hard when you get a blow like this when you have other health problems and also members of your family are ill. I do understand how you must feel - you cannot take any more blows. I went through this whole thing (I posted to your question worrying if you had passed DCIS to your baby) a while back having battled hideous illness throughout my adult life (with another disease) whilst my husband also became chronically ill/disabled. Bit much to bear as you feel you are being hit over and over, rather than just maybe once like other people. Please use the support you will find on this site. We are all thinking of you.
Hugs
L x
Hi Mo3
me again - just a quicky to say good luck and thinking of you and your family. Keep us posted as to how you and your son are doing! this is genuin and hoenst interest from us all and we hope that while we can;t be with you personally all of our thoughts go with you.
If it gets too much I am sure the moderator would agree that a quick fone call to the girls on the help line will give you some time out and much needed contact with understanding and caring people.
i am glad your docs and nurses are standing up for you. t
you do really remember the ones that advocate for you and stand along side you in the route to well being again. I still have all of the letters and cards that my patients have sent to me over the years and i feel a gr8 deal of respect for these poeple and their hard won physical and mental well being. equally the nurses and drs that have formed part of my care also earn my respect and thanks. In may for me life felt over, now in October with help of BCC, my medical and nursing team and family and friends I’m pretty chipper every day. Slowly does it,
love and hugs - i did say this was going to be quick - don’t think i’ve ever managed a quick posting LOL
Rachel p.s happy birthay honey
hello, can’t believe i missed this thread yesterday. i just read your story and just wanted to say how so very sorry i am that all this is happening to you. i really feel for you. there is nothing i can say to add anything to the support and advice you’ve alreday been given by others but i just wanted to send a massive hug…
i was diagnosed when breastfeeding my son and i’m so thankful for him. he is what gets me through all of this… i really do not know how i’d cope if he became ill. my god life is unfair for you and you need a bit of good news… sincerely hope that all your scans are ok. thinking of you. sorry about the emotional stuff, but i just had to post. xxx
Hello Mumof3
I am so sorry to hear your story.
Life is very cruel.
I will be thinking of you and your family
and I wish you all the very best for the
future and may you enjoy your Birthday.