It’s just about being thorough Magsta & ensuring they have all the info to get the right treatment plan for you, so it is usual for it to vary between us.
Having scans is so stressful, I had to have an mri scan & remember this as being the most stressful part of it for me.
Afterwards, I was glad it had been done as I found it reassuring that everything was done to get the diagnosis & treatment right.
When you’re through this awful stage of uncertainty & your plan is in place, it does feel a lot better.
Easier said than done, but I found it helpful to take it one appointment at a time & not to think to far ahead or get caught up in the ‘what ifs.’
ann x
It is very stressful already. Can’t imagine it could get worse. The fear is overwhelming. ? it is very hard to take one step at a time, when your mind is racing
I feel i will be on high alert for the rest of my life ?? soo many stories on here on BC returning after yrs or less. Is it possible to return to a recon breast?
Sorry I am very down at the moment. The panic takes over as soon as I wake. Out comes the negative thoughts. It takes me hrs to calm to some kind of pretend normal.
It is was a big mistake looking around and I don’t know why I do it to myself… the fear is immense.
Went to gp yesterday, who was very nice but I didn’t leave there feeling any calmer. There was no reassurance. She said I can go back every 2 weeks to see her if I want Or can.
Maggie’s centre is not far from me. I do have an appt there on Friday for surgery seminar. Also my bone scan is booked for that day. Had ct last night. Very scared of results. I feel if I feel like this now how would I ever cope I’d there was more bad news to come. It is so overwhelming
Just to add, Magsta, it’s the uncertainty of not knowing when waiting for results that is the worst part, as the mind goes into overdrive in trying to fill in the gaps. It does get better when we know where we are with it all.
You will cope, we all do & before you know it, you’ll be quite likely supporting others coming after you.
ann x
I will be taking a friend. She will be very good at listening where I may wander off in thought.
Thank you all for your support. 
Well first appt is 9.40. Injection for bone scan. Return 3 hrs later for scan. My Maggies appt is 1.30… I hope i have enough time. Anyone know how long the scan takes?
Jumping in here sorry. Being nosey. Is this for bone density? If so I had mine today but no injection and took 10 mins. It could be a different bone scan we are talking about as mine was done because of rads and hormone tabs and long term effects. Not sure if it’s rads or tabs that it’s done for as read that many leaflets over the last 24 hours I’m getting a bit lost. But hope I have helped in some way.
Hi Magsta,
Just to jump in here, at the second appointment after you’ve he radioactive stuff put in the scan takes about 30/45 minutes. If you can relax and keep your eyes shut it’s easier.
Told just over a week ago I have her 2postive. Totally scared, trying to be very positive . On letrozole, staring herceptin within two weeks. Trying to get through the fear every day .going on bike rides to challenge my strength.
Told just over a week ago I have her 2postive. Totally scared, trying to be very positive . On letrozole, staring herceptin within two weeks. Trying to get through the fear every day .going on bike rides to challenge my strength.
Yeah that’s right but looks like Magsta was talking about the bone scan that you have for staging.
It wasn’t too bad really. I’m just finding everything nerve racking at the moment. Ct results came back good. Apart from the lymph nodes area. Which we knew anyway. But was told yesterday that I will very likely need chemo or/And rads. I wasn’t told this last week at diagnosis. It was hormone treatment and masectomy. So this upset me so so much. And one had rads after surgery …In particular with an implant ? The doc advised against implant because if this. I’m so confused and worried about recon using tummy ect. ?
Hi Magsta,
Well, that’s great news about the ct results, so that’s one main thing out of the way.
Pending results of investigations, treatment plans can change & so they should, to make sure you’re getting the best plan for you. It doesn’t help the anxiety though!
Try to take it a stage at a time & not to leap ahead into the ‘what ifs,’ your team will explain what’s needed. If rads is needed, then my understanding is recon is usually delayed until afterwards, so there’s plenty of time to decide what you’d want to do about it.
The most important thing is, you’re now well on the way to getting it sorted out.
Sending hugs
ann x
Ann-m… this is part of my confusion… I’m to have the masectomy next month. Any treatment will be after! They want a desision by Monday regarding staying flat for now or doing the long recon using tummy. Implant is not in the mix any more really as he said rads may damage ect ?
Thank you Anniej