So yesterday I was given the dreaded news. I have a grade 3 tumor. The biopsy I had on my lymph node came back as inconclusive and I’m still waiting result on HER 2 So my plan is MRI and CT SCAN so depending on all results I will either have chemo before or after a lumpectomy.
Not sure its fully sunk in yet as I am very calm, I’m sure it will hit me soon. The waiting is the worst.
MrsS
Hello and welcome to the forum, you will get loads of help and support on here from the wonderful ladies who have gone through or currently going through this.
Yep this is the worst time waiting for results, once you have your treatment plan in place it does get easier, honestly.
Just keep coming on here whenever you want to ask questions, rant, rave or just generally chat, there will always be someone on here to help
Sending you hugs
Helena xxx
Waiting is the worst, once you have a plan you can work forward. Twelve years ago I had a Lupectomy followed by Chemo. Both were doable. You have to be kind to yourself and make time to rest. Stay on this site, you will find lots of help and support. Hugs Cazzy
Thank you ladies I don’t know where I’d be without all the brilliant advise on here ?
Hi MrsS, you sound as though you are managing, but as Helena says, we are here when you want to rant and rave if or when the calm before the storm ends. I was diagnosed as grade 3 , stage 2 , Er+ With LN involvement in January last year. In fact one year ago next week I started chemo, and here I still am! ?. Not an easy journey, but doable . As my tumour was oestrogen driven I am now on an aromatise inhibitor for the forseeable future. My Onco is fabulous and assures me he has a full bag of tricks , and that I should treat this as a chronic illness. Once you are on, or in, the NHS conveyor belt you will feel much better. Action is positive and means you are on your journey. We are all here to help you over the finishing line. Good luck. X
I was diagnosed on Friday. Awaiting ct and bone scan. Out of my mind. I keep having panic attacks and a constant feeling of dread I’m going to die. Is this normal? I feel like I’m loosing my mind as well as my body. I can’t eat. Or think of anything else but the worse. The anxiety is taking over me. I feel like a coward. I have children and I can’t even put a brave face on for them. I can’t cope
Thank you ladies. It is helpful to be on here, when my mind is racing and playing tricks. The waiting is awful. Like a living nightmare. I am going gp tomorrow. Shamefuly I have been on Google. Can’t help it even tho I know it will upset me. I’m 43 with 5 children and I’m mentally floored, feeling and sobbing like a baby…Waiting for the moment I get my boxing gloves on and fix up!
Invasive ductal. 2, small. Slow growing- grade 1. Oestrogen positive. Masectomy is a defo.
Lymph nodes possibly involved too. Still awaiting results of that biopsy too, as first was un diagnostic. I think that is what she said. This is why scans are now happening…this is why I feel like I’m not out of the woods just yet. I’m imagining all sorts like bones spreads ect. Still have to stage it yet. And that’s another hurdle.
Oh and thank you for the “tough pants”
That is the only thing I’m holding on to. I just want the scans done. Results in. And I may be calmer and ready to go with surgery.
I have heard the hormone blocking treatment will throw me into menopause! Was thinking what can be then taken to reduce symptoms… because surely HRT won’t be possible under the circumstances. Does anyone know?
I found mine by pure accident… I was putting my hair up whilst facing a mirror, both arms up, saw on my right breast, right under like where the bra wire sits, a weird shape to it. Like a bit was missing. Had a feel around. Nothing. Lay down to have a more easier feel and felt a hardening. Bit of a strange shape. Not a round lump as such, just a hardening. Even thought it was my rib for a min. I h i was getting in a shower. ? makes me so scared I could have missed it. And worried how long it was there. As I said it wasn’t something you would have felt whilst checking in the shower ect whilst standing up.
Why are the mornings so hard!?! It hits me like a ton of bricks. Been awake for hrs n hrs. Pacing the floor. Shaking. Pains all over. Which make things worse.
That feeling when your stomach drops but it stays there. When will this feeling stop. It makes me feel emotionally and physically weak. And not at all able for what’s ahead. ?
Thank you all ladies. It really does comfort during my bad periods. ?
Hi magsta. Morning are not good for me either but they do get easier just tell them gremlins to do one and think of something nice and just drift. I am often giving myself a good talking to maybe not so often now but a couple of weeks ago I was just the same as you and I remember jobey telling me it would get easier and you know what. She was right and it will get easier and you will see you are stronger than you think. Once your plan is in place and you know what is happening and when the weight on those shoulders lift and you can then focus on what you need to. One day at a time don’t look ahead and don’t think of the what ifs. You also have Helena’s pants which have lots of pockets. We are sharing them st them at the moment as I need them for tomorrow. Will make sure their washed before I send back. You will get there and it will get easier. Take care and just tell those anxiety gremlins to sod off.
Hi Magsta, sending you a massive hug. I know how you feel about waiting for results it is the worst thing ever. I’m still waiting for my HER2 results, my others were E- P- Got my CT and MRI Scans next week. My lymph biopsy was also inconclusive. It is such a scary time, but there are lots of lovely ladies on here who have been through it before and ladies like me who are newly diagnosed. We are all here to hold your hand and get you through it. Take care chick
Hugs Mrs S xxxxx?
Hi sunflower. Yes your are right had my date bought forward. Had same surgery as yourself and have been in the April surgery thread most days. At my results appointment I was offered the oncotype test where the tumour is sent of to California It is these results I get tomorrow. If the score is low then no chemo on the fence my choice high they recommend chemo followed by rads and hr tabs. Hoping and praying the score is low as the thought of chemo terrifies me. Anxiety just starting to build but I’m doing ok. It’s one of those things I cannot control but I can control how I feel so really swearing st these gremlins at the moment. Will let everybody know tomorrow but app is t till late afternoon.
Sunflower… I couldn’t get an appt at the docs. They have changed the system and I have to call in the morning to get on the call list or wait till next week!!
On the plus but scary side. I now have a ct scan appt tomorrow now and bone scan on Friday.
I can’t wait till these are over with and I know the results. I’m petrified of it. Just when you think you’ve heard the worst…another one could hit you in the face after these. ??
Anyone know how bad these scans are… Do you have to hold your breath ?
Thank you for your reassurance ladies. X
The scans are fine, Magstar, I’ve not heard about anyone having to hold their breath & a ct scan doesn’t take too long. MRI scans can be a bit more involved as you have to be still for a longer period, but the team will help you.
As ever, the prospect is always worse than the reality. L
ann x
Ann.m why do some have scans and some dont? It scares me they think it’s already spread or something. ??