Diagnosed yesterday

I am halfway through chemo for primary breast cancer, and yesterday had a follow up CT scan to check on lung nodules which showed up on the first scan. They haven’t grown however I now have cancer on my spine and left hip. I’m absolutely terrified, devastated and can’t think straight. My treatment will be changing immediately. I’ve 2 kids and I’m really struggling. Any positivity much appreciated

Dear Jools-50

I am sending you the warmest hugs at this time.

Even though sometimes it may feel like it, please remember you are *not* alone. There is a strong community of people here who will support you, and if you ever feel like chatting to someone on more clinical matters, you can call our breast care nurses on freephone 0808 800 6000 (Mon-Fri, 9am-4pm; Sat, 9am-1pm). Our team is friendly and everything you say is said in confidence.

Sending positive thoughts your way  :bouquet:

Bernard

Hi Jools,

I’m so sorry to hear of your diagnosis - right in the middle of treatment for your primary as well.  Its a traumatic shock getting the primary, let alone then dealing with a secondary on top of that and all happening at the same time.  Sending you a massive hug right now xxx

I was diagnosed with secondaries in January this year, only 10 or so months after I finished treatment for my primary.  I suffered a collapsed vertebra in my neck, which is how they found out it had spread to my bones.  I can honestly say that you do learn how to live with it and find a way of adjusting.

Its a good thing that the spread has been found sooner rather than later, as your Oncology team can adapt your treatment plan to account for this now and mitigate any damage the cancer might be trying to do to your bones.  When my Oncologist gave me my secondary diagnosis, she told me that although its obviously not good, the treatment nowadays is so good that you can live with it for a very long time and ideally still live a very good quality of life! 

As you’ll hopefully see from the forum, there are quite a few people around who have been “doing this” journey with cancer for a long time, there is lots of positivity here (and a few rants!).  Ask any questions you want, we’re all here to support each other xxx

Hi Jools

Sending you hugs. I was also diagnosed during treatment for primary late last year and found it hard, initially, coming to terms with it all whilst completing treatment. As people have said there is lots of support available on this site. Your team will also be wanting to make sure your treatment is right for you.

Not sure what advice I can offer except that 6 months on I feel well and strong. I cry, feel sorry for myself when I need to, but also am learning to look after myself so much better than I ever had done. I found counselling helped me to think through how I wanted to manage my diagnosis and how best to share the news with kids, family and friends.  I am definitely living my life with cancer not being dominated by it, but it has taken time to get here.

Please keep talking to people 

xx