Diagnosis invasive ductal cancer

Hi, after 14 days of waiting, I got my biopsy results - grade 2 invasive ductal carcinoma er+, pr+ and her-. Surgery is already booked. Wondering if anyone else has a similar diagnosis?

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Hi @bluesatsuma invasive ductal carcinoma (IDC) which is Er+ and HER2- is by far the most common form of breast cancer so absolutely loads of people on here have it or have had it. I, too, had an Er+ IDC although it was Grade 1 and there was also a tiny DCIS in the same area so they came out together.

Usually treatment is lumpectomy, radiotherapy and endocrine treatment for 5-10 years if no lymph nodes are involved. That will most likely be determined during surgery. The road to wellness with this diagnosis is a very well trodden path. Have they given you an idea of its size?

Now you have your biopsy results and a date for surgery you’ll begin to feel more in control. Waiting is always frustrating and possibly frightening but it won’t be long before things start to move in a positive direction.

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Me! Sorry to hear it was bad news for you :smiling_face_with_tear: I am both ER and PR positive IDC and had a grade 3 and grade 2 x 3. My lymph was micro mets. I avoided chemo due to my Oncotype test as it was 10/100 therefore low risk it recurrence. I did 15 sessions of radio. You’ll have a lymph biopsy during surgery. What surgery are you having? I had a mastectomy. I am nearly a year in :smiling_face_with_tear: it’s been a tough year and after suffering with side effects from Letrozole and zoladax I am now trying Tamoxofen only and so far not so bad. I did start on abemaciclib too and tolerated that drug well but having a break from that for now and will decide on the new year whether to go back on it. It seems ER and PR positive are very common in breast cancer diagnosis. Stay strong and lots of love to you and strength xx

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Thanks. Yes it is 3cm. I feel better knowing and im not too worried as i know prognosis is good. However im not a fan of medical treatments (who is?) So nervous about that stuff. Very pleased its not a higher grade and not her+. Fingers crossed its as straightforward as everyone says. Thank you for your reassurance

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Hi Natalie, sorry to hear its been a tough year. I am having a lumpectomy with lymph nodes taken to check. I then wait to see if theres anything in them i guess. They said radio after and only chemo if needed. I will have to have the drugs to stop hormones too. Feel so much better with a diagnosis and plan, although i know it might change after op. Good luck with your treatment

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I am glad you feel better with a plan. It a roller coaster but one step at a time you start to get over the hurdles. I hope your surgery’s and treatment goes well. Take care xx

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Lumpectomy was the first surgery I’d ever had and I was 66, about to turn 67 at the time. I was sent home with a box of Co-codamol for pain relief and I never had to take one. No pain at all. Just do the exercises they give you religiously, is my main advice. It’s a nice feeling to know the little bugger has gone.

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Great to know! Thank you. Itll be my first surgery too!

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Hi . I’m a year on from you . I’ve had bilateral surgery so removal of a 4cm grade 2 tumour and reconstruction on both breasts to make me symmetrical . I then had a 5 day radiotherapy about 12 weeks post op and have been on tamoxifen for a year / another 4 to go . I had a micro metastases in my lymph node which was removed and an oncogype score of 19 . So completely relate to your wait and current fears . The only thing I would say is use the experts - if you need advice call the teams .there were a couple of times when I should have asked for advice meaning either I spent more time
Worrying about something than I needed to
Or should have got help quicker . I was so lucky with my surgeon he was kind and efficient . I hope yours goes well .

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Hi blusatsuma
I had similar diagnosis and am a bit of a hospital doctor phobe. However it is very do able because it is your way forward . I found everyone at the hospital so kind, caring and reassuring, especially the anaesthetic team . So don’t worry, you’ll be out the same / next day . Again recovery is very doable, just take it easy at first and be kind to yourself . Do your exercises, I was reading recently it’s beneficial to do them before your surgery so you can learn them when you are fully fit . I’m 6 months down the line and feeling good . Best wishes , you’ve got this :heart:

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Hi there, i was diagnosed last year with exactly the same but grade 3, mine was 30mm. I had a single mastectomy then 6 rounds of chemotherapy over 5 months. My tumour was sent to America for oncotype testing to see if i would benefit from chemotherapy and my score came back high at 51, im 58 years old. I had 3 x EC and 3 x Docetaxel chemos and luckily for me was quite doable. Im now on long term preventative tablets called Exemestane, calcium, vit D and 6 monthly bone infusions. Hugs to you, take one thing at at a time and often the journey changes as i was originally told i wouldn’t need chemo and surgeon was suprised at the high score so my plan changed. My lymph nodes were clear too xx

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Hi @bluesatsuma
I’m similar too. Diagnosed August grade 3 er/pr pos her2 neg. Mastectomy end of Sept then the hormone blocker Letrozole for 6 weeks up until I started chemo 2 weeks ago, following oncotype score if 31. I had multiple tumours growing in a star shape. For some reason they only count the largest, being 25mm, not the overall size, 52mm. I’m not not sure how that could have fitted in a C cup to be honest, or how it could have got to such a size in less than 2 years since last routine mammogram.
I took the news like a swan. All in my stride above the surface but paddling like hell underneath.
The waiting is certainly the hardest. Now I’m on the road I just have to arrange my schedule around the many appointments and the days when I expect to feel like I’ve been hit by a bus.
I hope you don’t have to wait too long for treatment to get going, whatever is planned for you x

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Please research Endoxifen and try to join the trials by Mayo Clinic and others, it will save your life! I’ve had 2 Er+ tumors, in 2 breasts, 5 years apart, 1 the rarest kind, the second the most common kind (same as yours) and Endoxifen has stopped both from returning or spreading! It’s nothing short of a Miracle! My sister died in August at age 63, 4 years younger than me, in Canada, supposedly with their “Superior Medical care”, which is so hopelessly outdated that she stood no chance. SEE: Breast Cancer Breakthroughs: Endoxifen: An Effective, Affordable, Safer drug for All stages of HR+ Breast cancers! God Bless!

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I had exactly the same diagnosis back in July. It was a real shock to the system and took a while to get my head around it. I had a lumpectomy and sentinel lymph node biopsy which went well. I had clear margins and nothing found in lymph nodes too. I then had 2 weeks of radiotherapy and now on Tamoxifen which I started 3 months ago. Seems to be going ok but struggling with tiredness at the moment.

Definitely do all the exercises regularly after surgery, they really do make a massive difference.

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@africassnowwhite interesting info, thank you. I will take a look. @booby12 I hope that my treatment follows a similar path. Good luck with ot all. @isitreallyme It sounds like youve had a few bumps in the road but coped brilliantly. I hope I can be the same. Good luck with the remainder of your treatment. @ddlevs your story is what im worried might happen to me. My dr said they would do the oncotype test after surgery. Good luck and keep us posted. X

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Hi! I had a lumpectomy for early stage breast cancer in October and treatment was brilliant. I did the exercises religiously after surgery and healed really quickly from 2 scars one on breast and one underarm for lymph nodes check awaited results for afew weeks and was told I had clear margins. Am taking letrazole with no side affects for next 4 to 5 years and have radiotherapy starting second week of January (5 sessions) I’m 57 years old and my mum had to have a mastectomy at 70 years old and she’s now 96 years old! Going for regular mammograms is such a good idea.

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@57ecmoonstone what a fantastic and positive post! I hope we are all in a position to tell a similar story in a few months. Merry Christmas

New Link: Breast Cancer Breakthroughs: Endoxifen: An Effective, Affordable, Safer drug for All stages of HR+ Breast cancers!