Hi there,
ive Just finished my third cycle of EC and due to start docetaxel next .
ive kind of freaked myself out with all the horror stories out there so I’m wondering if anyone can share less scary experiences and any tips?
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Hi there, congrats on finishing EC! I finished my final dose of Docetaxel two weeks ago and can honestly say it wasn’t as bad as I was expecting. I was the same as you and dreading starting this following EC treatment due to the long list of potential horrible side effects. Obviously it goes without saying that anyone having chemotherapy can experience different severities of side effects. Hopefully my experience gives you a sense of reality rather than horror -again everyone is different and some people may suffer more than others. For me personally EC was more unpleasant, however it’s fair to say that the side effects of docetaxel are just different rather than worse. Oddly, different can sometimes feel worse as it’s unfamiliar. First of all I didn’t suffer with the same side effects of EC such as nausea/sickness or feel like I’d fallen off a cliff once I’d stopped taking steroids or suffer from dizziness and rapid heart rate. Side effects generally started after a couple of days and only lasted a few days. My main side effect of docetaxel was tiredness/weakness, which I didn’t experience much during EC. I experienced an achy upper body on my first docetaxel, but not on the 2nd or 3rd. I also got oesophagitis, but managed this with prescribed meds in the morning and gaviscon at bedtime or after meals - keeping up to this routine was beneficial. Probably the most annoying was my mouth that developed a sandpaper like lining/coating. It wasn’t until my final treatment that I discovered a teaspoon of bicarbonate of soda in a pint of warm water to rinse (not swallow) my mouth out worked a treat when it was at its worst. I did lose my taste for a few days but it soon came back and the pleasure it brings when it does come back is amazing! I personally made an effort to eat bland food for the first week just to minimise irritation. These side effects may sound terrible, but they weren’t as bad as expected and really didn’t last long. Two weeks after my final one I actually feel human again. Try not to worry yourself too much by reading horror stories. We’re all different and will have different experiences, but whatever docetaxel throws at you you will be ok.
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Hi! I just finished my 10th Docetaxel session - 70mg per dose. Filgastrim injections on the 5th and 8th-day post chemo. I take Ondansetron for 5 days, 2x a day to curb nausea and vomiting. So far so good. My medications are working - no adverse side effects after 10 sessions. I do experience chemo fatigue for 4 days but after I get Filgastrim injections, I recover well and am able to return to a regular routine.
I found that diet and exercise helped me cope with the chemo side effects. I make sure I get to walk 30 minutes a day, at least 3000 steps, preferably every morning, and get some Vitamin D. Then I try to eat healthily. Beet juice and celery juice are part of my daily intake. As for food, I eat fish and chicken with salad and fruit most of the time. For snacks, I try to eat yogurt, nuts, fruit, or juice.
It might help to focus on gut health during chemo to help the body release the toxins from all the medicines we take.
Most importantly, take care of your mental health - talk to family and friends, or your therapist. Process your emotions, release and don’t dwell on the negative. Keep in mind that YOU have to help yourself.
I’m no expert. I’m just sharing what is working for me so far.
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Hi
Ive just had one round of docetaxel…
Found very bad muscle pain/ joints/teeth aching.bones ached.tired and fatigued.could.not taste a lot of food.experienced indigestion and heartburn.
Not much energy levels.pain in heels.headches.
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Hi, sorry you’ve had such a bad run with the docetaxel. I’m
Due to start it next week after 3 rounds of EC. Just wondering have your symptoms eased now? How was your second/third dose? Did they lower the dose for you? Sorry for all the questions! Hope you are doing better on it now!
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Welcome to the forum @vickiej27 , good luck with your next chemo - hoping it treats you kindly .x
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Thank you @Jill1998 I am both dreading and wanting it (as I want this cancer seeing off!) at the same time, just hoping it’s as manageable as the EC but again it’s the unknown that’s the scary part. How are you getting on in your journey? I don’t think you can fully explain this feeling of uncertainty or constant worry of a secondary cancer to anybody that hasn’t been through it- as much as people around you try to understand. Sending you lots of love x
Hi @malou just wondering how you are getting on and how the Docetaxel was for you in the end? Hope it wasn’t as bad as you thought it could be and you are on a journey to full recovery now 
Hi there
I had two lower doses of docetaxel but it didnt make much difference still had the side effects. Unfortunately had a lot of side effects had my 4th over a week ago not having anymore thank god! Still having muscle weakness.
Hi
I had 3EC and 3 docetaxel, given at 3 weekly intervals. My final dose was on 10 December last year. Out of the 2 I tolerated EC far better. However we all react differently and some will have a lot of side effects, some fewer, so there isn’t a one size fits all. My experience was not good for my first dose. I did have a reduction for my final 2 which did help. I always felt fine for the first 4 days, then, wham…it knocked me for 6. Breathlessness was awful. I had nosebleeds, mouth ulcers, oral thrush and diarrhoea which went on for 12 days, ( I was taking immodium so wasn’t on the loo all the time, but I had to take it for 12 days until things became a bit more normal !). I didn’t have muscle pains or aches, only when I did the filgrastim injections, but the pains only lasted 3 days. I never felt nauseous. My dose was reduced to 75% I think, and the side effects were much more tolerable.
I saw it through though and have since had radiotherapy. I have a bit of neuropathy but that is getting better and is only in my fingers. It’s hard but doable, and you may get on well with it.
All the best