I’ve been told that I have grade 3 DCIS with comedo -necrosis. I can’t have radiotherapy because of pre-existing conditions so my oncologist has said that a mastectomy is essential.
i had an absolutely horrible time in hospital for my wide local excision - surgery went fine, breast care service pre and post great but my experience on the ward was absolutely horrific. I had to stay overnight and discharged myself at 5.30am. I hadn’t been offered anything to eat or drink, saw a nurse once a few hours after surgery, was in bed next to a woman with dementia who shouted all night and who staff neglected and abused.
I’ve put a formal complaint in, but am now very, very anxious about any future admission based on what I experienced. I can’t go private because I have a complex medical history and they don’t have the resources that I may need.
So for the moment I’m going to rely on monitoring and keep my fingers crossed. Not sure why I’m posting - maybe for other perspectives, anyone else made this decision? Any advice?