Hello
I’m reposting here, in the hope of reaching ladies who’ve had double mastectomies, and who might share their experience of subsequent testing. I’m finding very little information anywhere. Here’s my post, which was possibly not on the right thread previously:
‘I’m trying to get in touch with other people who have had double mastectomies, like myself, to try to find out what tests might have been offered for the future. I know there’s lots of anxiety about yearly mammograms - but even that check isn’t an option for me. All I can find out from nurses is that I have to be ‘breast aware’ (!) and report any changes. At the moment - 4 months post surgery - there are frequent changes in hardness, swelling, tightness, lumpiness. So that doesn’t seem straightforward. I’d be interested to hear how others have managed, and if any other tests are on offer around the country. I’m hoping to gather more information before my oncologist review next month. Any advice would be much appreciated. Thanks all! x’
Hi Nuthatch,
Thank you for your message. I wondered if you might find our Someone Like Me service helpful, which can help you find someone who has had a similar experience to chat to, either over the phone or through email: breastcancercare.org.uk/information-support/support-you/someone-talk/someone-me
I hope this helps, take care,
Claudia at Breast Cancer Care