Hello, new joiner, but had SBC for 13 yrs.
I’ve recently been moved onto herceptin with cape and tucatanib and having some side effects - fatigue, nausea and diarrhoea.
Tucatanib is the cause of diarrhoea. Any tips on timing of tablets, prevention and and food/nutrients that have helped.
Cape seems to just knock me out for two weeks, with fatigue and feeling sick. Lost my appetite as well.
Anyone with experience of these drugs, I’d love to hear from you and how you’ve coped.
Hi you can phone the nurses on here and speak to them and also request to join the sbc group too and there is always metupuk you can get in contact with too, google metupuk an incredible lady who was on the threads helped set metupuk up a lady called Angela Oliver. Sadly no longer with us but she along with others at metupuk have and are helping make a difference as does bcn’s research hope this helps you with avenues of support
Shi xx
So sorry to hear that. The ladies I know on cape said it took some time and then there nausea dramatically reduced. I hope that’s the same for you. Either way can you get more anti nausea meds from your nurse? I really regret not doing that when I was on EC chemo. Sounds like with the food you just need to eat what you can. If you’ve got diarrhoea then I obviously wouldn’t try too much fruit and veg. I used to like yaki soba but that is a bit odd. I hope you have someone cooking for you.x
Hi. I also have had bad nausea. Now on domperidone three times a day which has resolved the nausea for now.