Hello . Has anyone any experience of being on Elacestrant ( orsedu)?
It is a new hormone treatment for advanced metastatic breast cancer , just authorised by NICE in the uk . It is for those people for whom a blood test shows that they have acquired a gene which makes the cancer cells resistant to hormone oestrogen blocking therapy. But it’s more likely to be the case if you have been on other hormone treatments a long time before they failed.
I was only on ribociclib / fulvestrant for just the qualifying time of a year before it failed so I may well not have the gene .
I am 76 and not just looking to extend my life on and on -life is declining but that’s ok . I am taking tamoxifen at the moment having declined toxic chemo and treatments as third line treatment.
I’m doing okay on tamoxifen In terms of how I feel, although there is no monitoring of it so my oncologist has no idea if it’s doing anything.
I think it may be unlikely that anybody else has much experience of this drug because it is just hot off the press so to speak after a small research study. My oncologist is very focused on research.