Hi all
Im HER2+ secondary bone mets, been on targeted therapy etc, for approx 16months.
Recently for about a month have been experiencing a bloated/extended stomach, 4 months ago diagnosed with diverticulitis. My Gp thought it was a flare up, so did i, but a gut feeling told me maybe not, especially this long and still bloated no matter what i eat or take for it.
My ca153 has been increasing over last few months.
Im not feeling hungry at all, but still try to eat even though not alot (struggle)
Gp ordered the ca125 last week, she phoned this morning with results. Now on a 2 week pathway with gynea.
Im so worried ,…
Has anyone else had this, any support would be so much appreciated.
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Hope you get the answers soon 
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I’m sorry I don’t know anything about the CA- markers so I don’t have any useful experience or advice, I just wanted to send you a virtual hug. The waiting and worrying is awful and I really feel for you; I hope the wait passes quickly and you get some positive news at the end of it.
Take care.
Lisa x
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Thank you lisa49 for replying, im just trying to get my head around all of this, i just hope and pray that its not ovarian cancer on top of everything else.
Im trying not to stress, just feel very teary…i hate bloody cancer. Feels like its one thing after another, never ending!!!
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If your cancer markers are going up does it mean the targetted therapy isnt working ? I started on targetted therspy and then moved to chemo. I have abdominal cancer which started as an extended stomach. I was orginally sent down the gynacological route by my local hospital as they didnt have my cancer history so wasted a lot of time getting a diagnosis.
Hi SuzyK1,
Sorry only just replying to your question. I saw my breast/bone mets oncologist on tuesday. He cancelled my ultra transvagjnal scan and any potential appts with the gynea dept. Yesterday had a ct scan with contrast. It appears but needs tobe confirmed that my invasive lobular bc has spread to my peritomeum. Hence ca153 now elevated to 280.
Having fluid drained soon, so hopefully will feel alittle more comfortable(waddling around like im 7months pregnant) isnt very nice especially with abdominal pain and nausea.
So yes it appears my first line of targeted therapy etc has stopped working or just not controlling my invasive lobular secondaries anymore.
Scared of outcome prognosis as ilb grows in straight lines and not a lump like others.
I need to have a drain every 3 months but some have a permenent drain. My first drain took 7 litres of fluid out but since then it has been more like 3-4. It does make you feel a lot better x
My targeted therapy stopped working so thy moved me to capecitabine (chemo tablets). Have a CT next week to see if that has worked. I is a roller coaster ! I would like to know if anyone else who has ascites has any other suggestions as to how it can be alleviated or is a drain the only option ?
Hi SuzyK1,
Thank you for reassuring me that you do feel better after the drain. Im due to start the same drug as you, onologist said that once started it should stop/ease the fluid buildup?
can i ask how long you have been on capacitabine and strength…also any side effects tobe aware of.
I too would like to hear of any other solutions, as the first drain, just the thought scares me.
Sending hugs
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I started on 2 weeks of chemo then one week off now i am on one week on one week off. The neuropathy seems to be the worst side effect plus tiredness. My ascites was never as bad as the first time but it always comes back x