Embarking on an adventure, you are welcome to tag along

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741

Ok then, drop me off at the bottom and l will walk, hate heights!!
Well now that is a downfall of living in Switzerland, not having to check the oncs bots before you see them. In the UK we have the choice of three oncs bottoms! ‘pick your own’ we call it! xxx

Tracey, Dont think too much about this Switzerland trip, no straight roads up a mountain, whatever next. Bet Isabelle has straight roads to her farm!
How good is your hospital, my breast care nurse said no heavy lifting but a bit of housework was fine!! will have to change her.
The first chemo nurse l had put a heated pad on for 10 minutes, then it was easy, l was surprised not a single bruise, the second time l went the nurse kept slapping my hand! l said last time the nurse put a heated pad on, oh she said l like to give a good slap first!! l said you might get one back in a minute, she did laugh, each time she came back she took my other hand and slapped it!! she did have a sense of humour, but at my expense! she did come and cuddle me at the end, probably worried in case l put a complaint in!
Yep book me a horse, l can ride better than l can drive a van! xxx

Come on Isabelle, we will be up all night worryng about you! xxx

Hugs
Sandra xxx

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hello, everyone

very short post as I have been out to a friends getting some tips on jewelry making, have to up early as I am going to the Genises centre tomorrow morning. will tell all tomorrow.

just one announcement:-I have bought a dress!!!

also Kay, at least I havn’t had any work done, what’s her excuse!!!

love to everyone till tomorrow

Carolxx

PS, Sandra, was wondering when we were going to see those lovely grandchildren.

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Hi everyone…not posted for a week as hate all this waiting for results.Am still awaiting hormone results and to see oncologist.

I’ve been reading though and glad to see you are all doing ok…

Hope everything went ok for Isabelle today.

Sandra …your grandchildren are gorgeous.

I also don’t know how you can all post a comment on everybody …I can’t remember everyones comments but wish everyone well xxx

Allthe best Anne x

744

Hello Ladies,
SIL has been hogging the lap top all night!!
Good news ( I think). Onc says I don’t need chemo.
I have to have a bone density scan in the next week and will be starting rads x 15 starting within the next 2 weeks. Have recieved Arimidex tabs (different tabs to what I was told last week when BCN sent me Femara details) and vit D tablets. Start taking them today.
So I will after all be the Roving Rads Reporter!!!
The app was suposed to be at 11.15 am. for about an hour according to the BCN, I was told that the onc would go through all of my reports and stats as well as discussing alternatives of treatments.
I eventually got to see the onc at 12o’clock for less than 10 mins! I was told what I was to be given and when I asked about chemo he said because of my Hert 2 negative results I did not require it.
I said that I knew my h2 results were neg and he was sort of puzzled that I seemed to understand about it.He then said that if I wanted to know anything further about my treatment I should only ask him or his department, and I need not discuss it with anyone else ie my dr, ect. I found him to be very unhelpful, in the very short time I saw him, I was not given any chance to ask any questions about my treatment and felt I was just rushed out of the door! The onc is a locum covering for the usual one, I do hope not to see him again!
I have been very lucky not to require any other treatment so we will just have to see how things go.
Thank you Sandra for the PM, loverly photo of the children, hope you have had a good day.
Thank you to everyone for all of your good wishes today, I’m back!!!

Best Wishes and hugs to all,

Isabelle xxx

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I thought I would have 5 mins looking at posts and replying that was nearly an hour ago as so many posts.Sandra love the photo of your grand children how lucky to have them close by. Mine are coming to stay in Aug on their way back from Germany.The youngest was 5 last week and had wanted some goal keeping gloves which I managed to find and send up. He insisted on wearing them all day and even wore them to bed lol.Now Sandra what sort of qualifications did you want your Oncs to have ?( think about it)might get expelled by the mods if I put something too saucy)Thinking of footie ( and I don’t if I can help it) I was wondering how the final score went in your household? Kris how lovely having your son arriving after 16 months sooo exciting I wasn’t clear if he was bringing his children too? Suze no wonder we haven’t heard from you it was exhausting just reading what you have been up to, nearly end of term now though so perhaps you can get a well earned rest.Karen yes the naked men photo would be good but would have to be for at least a day,if I get a v.poor connection the photos are not on.See Lesley you started this with your saucy pic, the one I couldn’t see lol.Well done karen and Mary in doing the race for life. It seemed to be the hottest day so far here when it was on. I was so touched to find that several friends phoned yesterday and tonight to say they had done it for me. Most of them know me but not each other I did have a weep as I moved by that. Will be joining in next year.Karen I thought the resemblance was to Kay Silverton,AR looks much older than our Carol even with the work she has had done.Now Tracey 2 computers Mm couldn’t cope with that but I see your point. Isabelle hope all went well at your appt and you get the treatment you want/is best for you, and soon you have had your share of waiting.Your farmhouse sounds lovely and all those animals to care for." hols lined up now one in Switzerland then the Lakes.I can’t remember when we last had any rain and my lawn is completely brown.Carol all this I haven’t found a dress yet then you do and don’t say what it is like, how tantalising is that?Do let us know.Maria you really have been so busy all the time this thread has been running hope the holiday is as fab as it sounds.Yes it would be unfair if we came to yours and you missed us but we all met up.Heather so glad you have posted, you really have been on a downer, but your OH says you are still the same Heather that he loves so how wonderful.And he fanned you with a storage box lid, did it do the trick. I hope your blip is passing, you always are one who keeps our spirits up with your hilarious tales. Now Porthmadog and almost having to get the RNLI out. Every time a police helicopter goes over I think of you getting lost in the red shorts, thank goodness I no longer live at the coast or that would set me off too.Oh the joys of Arimidex are nearly upon me. As I did have menopausal hot flushes do you think that works in reverse ie. none on Arimidex, no I didn’t think so. We shall see.My appt with the Onc is at 4.15 tomorrow and there is regularly a sign up at the clinic saying he is running 2-3 hrs late I might take a packed supper and a sleeping bag, have warned my daughter as she rings me every evening and gets worried if I do not answer land line or mobile.The abscess looked so awful even through the dressing that the surgeon kept his distance I would too if I could. But Iwon’t prat on about it any more I’ll tell you when it has healed up.Pippaa your OH looks lovely. Sounds like you are very well organisedfor your op good luck and hugs. Post us when you are able.Mum 51 good luck for Fri seeing your Onc not sure whether you mean you are def on for chemo? Suze hope the Hickman line works really well for you. Sandra fancy the nurse slapping you, I’m sure the hot pack thing does the trick better and less traumatically if having a cannula put in can ever be called that.The drop in centre I can go to is some distance away but today I managed to book an aromatherapy massage for end of next week so am really looking forwards to that. Have decided not to go back to work in the gap betw surgery and rads. I have felt fairly wiped out with 2 infections one after the other so need to recuperate a bit.Ladies I do hope I haven’t missed out anyone Hugs and sleep well to all. Jackie

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Isabelle our posts crossed so see you are about to have rads and starting Arimidex I think ( according to BCN )I am about to do the same but rads starting in about 4 weeks but all to be firmed up with Onc tomorrow. So I might be a joint roving reporter with you.After all that waiting 10mins with the locum but at least you know what the plan is now. As of last Fri when I saw surgeon still don’t know HER2 status so I am awaiting that too. Thanks for letting us know and sleep tight. Jackie

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Hi Isabelle,
Well that sounds like excellent news! Start popping those pills with the brandy and lemonade, work wonders!
Gosh your onc sounded a bit brusque! hopefully you will see a nicer one along the way!
Wonder why they have changed you from Femara to Arimidex?
All this time to be told you will get the treatment they first said? could have been over and done with!
At least it will be over and done with by the time the cruise comes round xxx

Hi Anne, Thought you had jumped ship! when do you see the onc? xxx

Hi Carol, yes two of my lovely grandchildren. need to get the other two in! oh and the dogs and Toby.
Wow will we see the dress?
slow down, you are wearing me out!

Think l am off to bed
Goodnight to anyone still up
Sandra xxx
Hi Jackie, Night Jackie! xxx

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Isabelle…glad you’ve got your treatment plan but sorry that you only got 10 mins with onc.I feel the same way as you about having chemo.

Sandra…sorry no appointment yet so don’t know when I’ll see him.Don’t have my er.pr or her2 results yet…think I’m playing the same waiting game as Isabelle.
Had my op 3 1/2 weeks ago and bcn is on holiday at the moment.The waiting is the worst bit

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Hi all,

thanks for all your messages re race for life. Felt a little tired yesterday but think that was the wine not the actual race !

So I hear a resounding YES for the photo. My only concern is that it will show on any thread that I have posted on so could be a tad strange for some people viewing it with no idea why !!! I will try and post it later today and leave it on for the remainder of the day.
I think he is cute but you all may disagreee !!

K x

750

Good morning everyone,
Just taken my double dose of steroids in preparation for tomorrows peachy mother, so I hope I can make the most of my energy it should give me, got to take some more this afternoon.
No more men in my house, except one of the best ones (my older son) to whom I have give a list of tasks to do while he is here, after getting him his breakfast !!
Horses to get up to my place, what a great idea, i think I’ve got room to accommodate them, although I know nothing about horses, I was never a horsy girl, although I like all animals.

K, I am waiting for the photo
Isabelle, its great you don’t need chemo, when do you have your next onc appointment? I hope it is soon and it will be someone who you can talk to. Your bc nurse might be-able to give you some answers as she told you he would spend more time time with you to answer your questions. You can start t get exited about your holiday now.
Jackie, you certainly pack in a lot in “5 mins”
Anne, sorry to see you are still waiting, it really is the worst part of this adventure.
Carol, lets see the dress
Sandra, I thought it was “pick and mix” the onc !! I hope yu have number one nurse and not number 2 nurse for number 3 peachy mother. Maybe you could “pick and mix” the nurses too.
Tracey, yes I suppose I have done a lot, but then I always have and I get frustrated when my brain wants me to do stuff and my body cannot follow. I am a lazy person deep down and not proud of it, so I have always keep myself busy. Does this make sense ! How many horses do you have ?
Heather, if you are here, we’re still thinking about you and sending you positive thoughts.

I hope everyone has a good day. It’s very humid here today, not conducive to much work.
Hugs Maria

751

Hello ladies,

just a quick post as i am waiting for hubby to get home from work so that he can take me to leeds (having treatment in leeds even though i live in middlesbrough) we are going to stay in my sisters flat overnight and then get up early to go to hospital. i have to be ont he ward for 7 am so didnt fancy that drive in the morning.

just thought i check in with you all as im not sure when ill be able to post again - dr said ill be in about a week - but i will let u know how things have gone as soon as i can.

i wish everybody a good week and {{{{{{big hugs}}}}}} from me xxxxx

752

Good luck. Will be thinking of you. Xxx

753

Hello Ladies,
BCN rang me this morning to see how I got on yesterday with the onc.
I told her what happened and that I was not at all impressed with him. She asked if I would like another app with someone else, I said I thought it was pointless as they won’t tell me anything else now and we might as well just get on with things as they are. If I need to know anything I can always ask when I’m there having treatment.
I felt that after waiting almost nine weeks for the app after my op the whole thing was a let down, He never actually talked to me about anything that I could ask questions about, just told me what was going to happen and I was back out quick as a flash, my 1 hr app turned out to be less than 10 mins, and he was 45mins late for that!
I was not very impressed I can tell you.
Maybe I’m just being a pain in the butt, and I was expecting too much, most probably. I just feel worked up about it and feel like I was just brushed aside. It can only get better.
Iv’e been working out in the garden this morning trying to keep occupied, the small rose bed looks nice and tidy now, I wish the rest looked that good, it will take quite a bit of work to get it all up to scratch, if ever!! Might go back out later and start on another one, but I need to put a casserole in the oven for supper first as Iv’e got to go out to babysit later.
Pippa, good luck for your op this week, I hope all goes well for you and that you are back home talking to us and telling us how you got on very soon. hugs xxx
Jackie, I hope you get on better with your onc than I did yesterday. Let us know how it all goes, good luck!!
I hope everyone else is having a good day so far.

Best Wishes,

Isabelle xxx

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Pippa,

Leeds is lovely - the saff are wonderful, I had my op there 3 weeks ago, its a new ward, only been open 12 months, had a real laugh with the other ladies n staff, hope there is a nice crowd in with you (when its full there are only 18 in there !!)

Good luck hun, will be thinking of ya

Tracey xxxxxxxx

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Afternoon Ladies,

Sorry just had to get that quick note in for Pippa just incase she is still around - wish I had known she was having her op in leeds before, could have told her hubby where to park easily.

Maria, dare I ask what “peachy mother” is ?? don’t forget I’m new and still learning.
I don’t have horses, my sister does, she has a small holding and a non conventional kennels, all the dogs sleep in her kitchen and run around together all day, its lovely. She has 3 horses, 3 mini shetland ponies,8 pigmy goats, chickens, ducks, pigs & 5 dogs of her own, she also breeds chocolate labradors so is on the go constantly - I farm sit when she goes on holiday and need another rest when she gets back.

Isabelle, you are not a pain in the butt or expecting too much, to be rushed in and out in 10 mins is just not on. I hope the radiotherapy nurses/doctors treat you much better when you go for your treatment, I’m sure they will have more time to spend with you.

I received an appointment for the Onc for next monday, wasn’t expecting it, just thought I would go for my chemo on 26th as thats what the consultant Onc said when I was in clinic. Been to Gp this morning to fill up with potions & lotions just incase I don’t feel well enough when I start chemo and she was well pleased with me after the second op, and can’t beleive I am still so positive, and trying to get organised before chemo. I feel very lucky to have such a good team (so far) looking after me.

Kay, for some reason I don’t get photo’s up everytime I log on … can’t you leave it longer, especially if he is cute :o)

Sandra, am taking mum with me for my chemo, if anyone hurts me she will sort them out, she might be 74 but still lots of fight in her but she is back to treating me like a 6 year old not a 47 year old, guess I will always be one of her babies. Gp said today that they may put a line in for chemo, as it makes it easier for them and less stressful for me, will ask about it next monday.

Libby, I hope you enjoy your aromatherapy massage, I had one last week and was floating afterwards, I was so relaxed you would have thought I had been sat in the pub all afternoon chilling … I’m going back on thursday for another one - can’t wait, I hope goes ok with your Onc and that you are not stuck there all evening, you never know you could be in and out like Isabelle.

Hope you are all having a lovely day

Love and hugs to all

Tracey xxxxxxxxxxxx

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Hi Pippa,
Hope l haven’t missed you! Just to say l will be thinking of you, sending you lots of Hugs and Lots of Love
Take care of yourself,

Sandra xxx

757

Hi everyone im new to all this so can someone give me a helping hand please? ive just has my second dose of fec and im finding it very hard to get thru the day! Help

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Hi everyone, what I really like about this thread is the good nature and general chit chat and laughter… keep up the good work girls!!

Just got back from my bloods and Onc review - so home early and time to sit and catch up on the posts. My onc said I was ‘doing well’ and that Tax isn’t ‘smarties’ its strong stuff and I am coping ok - its really nice to hear that and maybe I need to be kinder to myself - rather than beating myself up for feeling tierd and ‘unwell’

Everyone seems to have so much going on in their lives which is great and I think a good escape from the treatment regime - its difficult sometimes to carry on with things but reading this thread gives me so much inspiration - there are soo many ladies out there feeling exactly how I feel, going through exactly what I am going through and understand what its like - yet we all share our ‘memoires’ and generally gave a laugh and get on with living… brilliant and thank you to everyone for the support and the 'lift’I get when reading them!!!

hugs to all xxxx

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Afternoon Ladies,
A Little cooler today, l was doing some paperwork, brain felt it was on fire, so the wig is on ‘its’ head,looking at me!! scary!
Woke up to no hot water! what pain, but then the plumber lives next door!! so very handy! my grandsons call him father christmas because he wears a red jacket and has a grey beard and long grey curly hair! Gosh he sounds old, but he is younger than me!!!

Hi Jackie, Yes l am lucky the grandchildren live near me, and yes they are beautiful, well l would say that wouldn’t I!
Our grass is, well just dead, the poor tortoise walks around wondering where all the weeds have gone!
Good Luck with the onc on Wednesday. He might want a look at your abcess, Hey what about a photo of your abcess on your profile!! ok might put some off their dinners!xxx

Hi Taxi, Results, the never ending waiting game, fingers crossed for very soon xxx

Hi K, I think you are teasing us!! ok girls altogether 'oh why are we waiting, why are we waiting…xxx

Maria, So are the steroids still for three days? but double the dose? if so did they say why?
Will be thinking of you tomorrow, hope TAX is as kind and helpful as it can be! Oh so you have the best men in the house now! sounds fantastic.
Pick and mix was woolies!! pick your own is veg!! and perhaps meat!!Lol. xxx

Heather Hope you are reading and taking note, i am not getting any coffee or tea breaks with these ladies, l need longer posts!!
Lots of Hugs to you xxx

Carol, do we get a sneak preview of ‘the’ dress? xxx

Isabelle, I may be wrong, did you have 2 lumps and they went from a grade 1 to a 2? l know your nodes were clear, but l thought your bcn said you may need chemo! you wonder if you are in a grey area, what they decided upon to just give rads? as lovely as rads only are!
Obviously they know what they are doing, you just wish they had made their mind up earlier!
No you are not being a pain in the butt, we just like to know what is going on and for what reason. perhaps another word with the bcn as to why no chemo, IF she said you may have it!
Anyway you have a holiday to look forward to, so do you need to go dress shopping like Carol? xxx

Hi Tracey, Yes l have a 90 year old mum and she treats me like l am 6 instead of 63! but that is a Mum for you, and long may they do so.
Ok girls looks like we have somewhere to go after Maria’s and after Isabelle’s…Tracey’s sister! ok so where abouts does your sister live? sounds like heaven xxx

Hi Sheba, Yes just tag along with us, we will help you through, l had my second FEC on the 2nd July, your energy levels will get better as weeks go by, just in time for your next one!!! xxx

Hi Saffronseed, Love to see you are doing so well, even on TAX!! and if your onc says you are doing well, that is enough for us!
In my early days, you are one of the first ladies, that use to help me along, so l always like to know you are well and coping in all this rubbish, well when l say coping ‘we’ all know what l mean!
Good Luck with No 2? TAX tomorrow

Oh have l missed anyone, sorry!

Lots of Love, Lots of Hugs
Sandra xxx

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welcome alomg Sheba2 these girls will look after you have no worries about that. Shall we book you a seat on the bus to Switzerland and then ti Isabelles farm? What is your tipple so that we make sure that we have some ready for you.
Pippa= probably not cought you but thinking of you.
Heather= Hope that you are ok we are missing you.
Sandra= I’m ok with you driving but I’m a scared of horses so will someone let me ride with them.

Someone asked if I am definately having chemo, yes e-cmf should know on Friday when that starts.
Had my hair coloured to-day and hairdresser didn’t charge me as he said would be my last colour for quite some time,how kind was that.