sorry, but twice is better than not at all
Vicky, good to hear from you. can totally understand how you feel about withdrawing a little, you need to come out of your bubble and begin connecting to the outside world again. I’ve never been to Barmouth but had a friend who always went there, believe it’s lovely.
I used to go to Aldwyn County junior then I went to Fairfield.
didn’t know there was a cupcake shop in Uppermill ( trust someone to jump on the bandwagon) would love to try it out.
have a lovely time in Barmouth and look after yourself
Love & hugs
Carolxx
Hello Ladies,
I hope those of you having treatment today are ok after it.
Denise, glad your feeling a bit better today.
Heather, you and I are totally opposite as far as sleeping is concerned! Since finishing my rads all I seem to do is sleep. I went to bed at about 10.30 last night and slept until 9 am. Woken up by the granchildren who were here for a couple of days. I had some breakfast and had to go back to bed by 10.20 am! stayed there until 2.30 pm. I’ve never been so tired before and never slept for so long.
My skin is a bit sore but still holding up ok so far.
Vickie, I hope that you are having some good days with your boys inbetween your treatments. Hope that you have a loverly time when you go away at the weekend.
Thinking of everyone,
Hugs and Best Wishes to everyone,
Isabelle xxx
Isabelle thought you had been a bit quiet recently so that is why getting some zzzzeds then.Glad to hear your skin is OK too.Jackie
Hi Girls, still never got to spend a night in bed, but DR did say it will take 72 hours to make any difference. I think its duvet day on the couch today, the weather is awful, so I will just shut it out.
Kris, Oh the rat story, I will have nightmares. You must have been shattered after all the work you did in the room. I understand the weepy days, it just comes over me, and a lot of the time I dont know what starts it. I use to watch Dixon Of Doc Green with my Grandma and Grandad every saturday night, I always use to get a bag of sweets. My Grandma use To call our chamber pot ‘poe’ Dont ask why lol
Vickie, I understand what you mean about trying to get away from it. I hope you have a really good holiday, you deserve it. Barmouth was on that television program Coast the other night, it look lovely, I remember saying to hubby that looks like a nice place. Here There and Everywhere is one of my favorite Beatles. When me and hubby got married my son in law made us a Cd to be played while everyone was waiting for the wedding to start, and Here There and Everywhere was the beatles one I chose to put on.
Carol, It took them ages to diagnose my Fibromyalgia, I feel for your daughter. It is another one of those illness that if you haven’t got it you dont understand it.I was working when mine was diagnosed, and the only way I could descibe it is like a pain that keeps travelling round your body. I was a cook when I got diagnosed and I kept trying to work, but when it was in my hands and wrists i kept dropping things. It ended up with me dropping a big pan of home made some, it splashed all my face up my arms everywhere and I realised I just couldn’t go on. It is really hard to find a doctor who understands it, my own doctor is brilliant, he understands about it, thats why I wont have the injections unless he says its ok.
Dee, I said that to my daughter, they cant blame me this time lol. I have 2 strings of real pearls, one was mums and one was my grandmas, they are put safley away in a box because If I wore them I am sure I would break them. I was out one night with my daughter and her husband and I was wearing one of those necklaces that are loads of rows of seed pearls. I stood there talking to them twiddling my necklace and snap it went, and the little tiny pearls started to run down my top. My daughter said mum come on lets go to the loo to sort it out, and I had a trail of pearls following me. I didn’t realise there would be so many. When we came out it was like that fairy story when they dropped the crumbs so they could find there way back, we just followed the pearls lol
Jackie, I feel just like you about these people saying that breast cancer is easy. I was talking to a lady at the hospital when I had my herceptin. She said I hadn’t any knowledge of breast cancer but since I have been diagnosed everybody knows somebody who has had it and there fine now. Like we said these people dont know what it is like to go through it, but I must admit when i was diagnosed in January 2009 I was in complete ignorance of what happens. I remember coming home after my diagnosis, and my daughter and son where there and I said, not to worry everything should be ok by the time it is my birthday in May. That was last year, it wasn’t over for my birthday this year. All I knew about BC was what I had read in magazines and news papers what stars had written, they dont tell you about all the heartache, the tears, pain, hair loss etc I think the only way you really understand is to go through it, and I dont wish that on anyone. I am also really gratefull for this thread, it does let you go through so many imotions, and these ladies give us so much support. And I love it because has well has the support and help with our illness we have a laugh.
Taxi and Elaine, hope your peachy went ok, and fingers crossed you wont have many side effects.
Maria, soon be your kitchen opening day, have you got the ribbon. Hope you have a nice evening, dont get to tiddly, remember you will have to clean up your new kitchen lol
Well hope all you other ladies are ok, I am going to try get some sleep, I have got to ring BT about Broad Band, but I cant do it till I have some kind of sleep or I will end up going to sleep on the phone if they leave me on hold lol
Take Care Peeps,
Love Heather,
xxxxxx
Carol, I went to Fairfield too!
I have rads to come yet, planning us 17 sept and they start 24 sept. Thanks for your wishes everyone, will still be Reading your news and hhis thread, just trying not to read the forums at large. I had got yo the point when I was Reading virtually every post and checking the site numerous times a day and that has got go stop!!! No chance of moving on if I sm doing that! I really really appreciate the friends I have made though. Am not leaving, just trying not to obsess.
Have a nice day if poss, tho suspect suze will find it tricky to!
Vickie can totally see where you’re coming from with checking around the site…it’s good that you feel ready to face the outside world again as I’m sure that’ll help your recovery.It shows you are recovering a bit more emotionally.
Heather you do make me laugh with your stories…so not to be trusted with pearl necklaces now added to the list…
Hope everyone is ok today…am off for lie down.
Good mornig all. Well 1st Peachy mother was ok. Felt more and more nauseous as the evening wore on despite the sickness tablets and then was very sick about 11.30pm. Felt much better afterwards. Didn’t get much sleep but managed to stay in bed. Feeling a bit spaced out today so think it will be a DVD day! Thanks to all of you for your kind words and cyber hugs and thoughts.
Vickie I can totally see where you’re coming from. In the beginning I used to spend ages on the site checking threads, trying to support everybody and anybody. When I found this thread I realised that for now anyway I didn’t need anything else. So here I am and very grateful for it. It will probably change as my treatment progresses but for now it’s fine.
Heather sorry you’re still not sleeping. I watched Pretty Woman again last night in my sleepless zone. I was exactly like you when I was diagnosed in May this year. I told everyone it was just a glitch and I would be fine. Totally expected to start my new dream job in September, but that’s not to be! Lucky for me my new boss’s sister had breast cancer so she knows what the effects are first hanvb and was far more realistic than me. LOL
Good to hear from you Isabelle. Sorry you’r not feeling too good and hope it improves soon.
To anyone having treatment today I hope it goes well and to those of us suffering from SE I hope they pass soon.
I’m now finding my eyes are closing so think it’s time for some shut eye. Hope you all have a good day.
cyber hugs to all
Elaine
Another discovery on this adventure. On fec I could mow the lawn in one go (takes me 2 hours) on a good day in week 3. On tax I can’t. 3/4 hr resting after just 3/4 hr mowing and my pulse is still 100, it is usually about 60 !!
My curtain rail has fallen down again, I hope my kitchen man can sort things out before my guests arrive tomorrow, he is coming to replace one of the lamps he broke when he put the spot lights up, so it will be worth his while coming now.
Elaine, I hope you are feeling OK today
Anne, hope you had a good rest today
Vickie, I’ll just say hi !!
Heather, what is it with you and pearls…
Isabelle, if you are sleepy don’t fight it, your body needs it.
I’ll have to sign off each time with hugs and a reminder not to read ALL the threads, especially those about you know what.
Maria xx
Hi Girls , Well what a sleepy lot we are !!
Since finishing rads I´ve been really tired , thought it was just me , but find out that it affects alot of people tis way . Then I started gabapentin a few weeks ago , and oh boy , am I sleepy or what ?! I cn now fall asleep on a clothes line . Keep dropping off early evening , last night I almost ruined the dinner , it all ende up rather thick , cos I nodded off . I know when I wake up that I´ve been lolling there with my gob open , proberbly dribbling , what a sight . Some times i will get so tired in the afternoon ,that I feel quite ill . We do push ourselves and this journey is no picnic .
Heather , I know what you mean . When treatment finishes , it´s like being cast adrift . To use the journey analogy .
It´s like being on a coach tour . We are taken everywhere , places we´ve never been too , did´nt know existed , and all the while , the tour guide has us by the hand telling us where to go , and passing us onto other guides to go to differnt places . Always having to go with the flow . Then the next stage of the journey is like "half board " You have certain places you have to go to , they may be good , or not , it depends , and you won´t know until you get there . There is no tour guide until you reach your destinATION , so it´s a bit scary , but you still fell that there is someone in the background for you . The last stage is the journey you take totally on your own , no one at all is there for you , you loose the comfort you had before . No places to go , people to see , it´s scary .
Thats how I see our journey , it´s in stages , but the ending of the journey seems as equally scary to me as the begining .
Is it making me a stringer person ? Well certainly not yet . I have more worries , fears and concerns now that I have ever had , and somehow i think , certain things will always stay with me , they may slip to the back of my brain , but they will definately be there . This last eight months is´nt going to go away in a puff of smoke , anyone who thinks it will is a complete a*** . Like Heather , I´m frightened of being cast loose .I want to know that they are still there for me . I thank god for this website and foor the nurses there , always available to talk to when you have fears , or are worrie about something , and of course all you girls , my new friends , so glad I met you ,shame we could´nt have met at Blackpool , Bournemoth or anywhere else for that matter .
BC is "good news " what planet are these people on ? Try it ands see , yes a laugh a minute ! No cancer is "good news " ,it´s devastating news !..planks !!
No Sandra , we don´t have houses anywhere other than here . I travel around the UK once a year visiting relatives . I´ve klived in a few areas , come from Wales , Swansea , lived in Scunthorpe , Ponthir , Portsmouth , Yeovil , Penzance , Kidderminster , Al Kobar , Paris , Pau , Montcoup , Alcaucin . My son lives in bournemouth . Wish i did own another house or two , but no chance ,we´re lucky to have this .
Nice to have you back Vickie , four weeks grace before you start your next journey . Wonder if you´ll have 11 tatoos like Isabelle . I´m really jealous , I only had four , I would have liked a little flower or butterfly while they were at it , instead of just a dot . Does´nt wash off girls !
Sometimes you can get carrie away on this website , drifting into uncharted waters on other posts , some i have to say , I regret going into , but so glad they are there for the ladies who need them .
Um , Brest cancer Awareness month , it´ll be a bit strange this year , cos like most of you , this time last year i was totally unaware that I had something growing inside me . I´m coming back to the UK in October , and there will be much more made of it there .The very first person , famous person that i remember having breast cancer , was Olivier Newton -John , and I immediately thought she was going to die , because that was what I thought whenever cancer was mentioned . Thankfully I was so wrong , she´s alive and well today ( and she was a young woman when she had it ) and cancer does´nt mean that anymore . We are all living proof .
So to all my "living proof " friends . Have a happy day , if you need a "duvert day " go for it , all the insomniacs , so hope you can sleep .For PM and TAX sufferers , yet another day over towards recovery .
love to you all,
luvKris
ps hope this goes through , it´s so slow i could hand deliver this to you all personally in the time it takes !!
pps You back with the kitchen men again Maria , hussy !! Put that cutain rail down at once !
If tthat has´nt appeared , I´ll be spitting feathers !!
Kris, what is gabapentin for ? I don’t believe this journey ever really ends, always something new to discover, new way of looking at everything, new way of doing things, new way of dealing with things. A real adventure (ha, ha)
I had to find some excuse to have a kitchen man back !! But it is not the topless one or the young handsome one I’m afraid.
Maria
A late evening Ladies,
Anne, Gosh, fancy us being the same day as each other! Will only cancel if it’s hospital etc or something like that; will be good to meet you!
Vickie, nice to see you back; hope you have a good time in Barmouth. It’s ok to be down, don’t punish yourself for it.
Love the beatles too, I have ‘Things we said today’ as the ringtone on my phone.
Maria, Gosh if my hair comes back curlier I’ll have a real battle on my hands! it was curly before PM!
Isabelle, Enjoy the sleep whilst you can; if you’re sleeping your body must be telling you something.
Carol You mentioned the fish ponds that you used to clean, took me back to when our fish disappeared the other week and you loaned me your orf - well ours ‘came’ back two weeks later so I must return yours… We couldn’t believe it! My son spotted one, then another, they must have been hiding, and I reckon they must have had a big fright, but yes they’re back! We’ve lost about three or four so not too bad considering we thought they’d all gone.
My sons happy again - and it’s good he was the one to spot them too. Needless to say we have the pond covered now… OH still not convinced about the heron, but think I might get one anyway.
Elaine hope the sickeness is easing; I’ve felt sickly this evening, it’s horrible isn’t it.
Maria Hope you get your rail fixed before your friends come round - it is difficult on your own at times isn’t it; and I do understand. I lived on my own for 17 yrs until I met my OH 9 yrs ago and used to try and do things too, managed decorating but could never master drilling holes and fixing things so never had any shelves up LOL
Heather, I don’t know what to say, other than love your post, you’re so cheery and make us all smile despite you being in so much pain. Hope, I really, really do hope, you have at least a peaceful night and sleep would be good for you too ((Hug)) x
Kris, Yes it will be strange won’t it BC month? Last year we all had it and didn’t know and my mum was recovering from her second mx, now she’s watching her daughter go through it. Gosh, Olivia NJ think she was my first famous too; my grandmother was the first - she had mx probably about 30 yrs ago now, she was 72 at the time, lived a good few years after it too.
Woke up full of bounce this morning and started the day off ironing, ‘had’ to do the washing cos it was nice and wanted it to dry outside, took the car in for two new tyres and took my son to his martial arts class, then was whacked by 3pm and haven’t recovered since! Think I may have done a bit too much, I’m tired now but my head is buzzing… is this normal chemo brain? Want to be ok for tomorrow as my son and his class mates are doing a martial arts presentation for us all, so looking forward to that.
Anyway, going up to read a book and hopefully calm down and sleep will come soon…
Night night ladies, sleep well
Denise xxx
evening ladies,
must say chemo no2 is easier than number 1 as am full of energy today.was expecting to be wiped out today…
Denise it will be lovely to meet you and I’ll recognise you from your photo…does your card say where abouts it is in the hospital as mine doesn’t…they tried to explain but I was panicing at chemo at the time…lol but did say if i went into mcmillan unit somebody would take me down…sorry to hear that you don’t feel too well today…are you drinking a lot of fluid as it does help.
KRIS…what is garbpentin?..is that a chemo?
Heather …do hope you get some sleep soon
Isabelle…rads are said to be very tiring so if your body is telling you to rest then that’s what you need to do
know I’ve probably missed others but hoping ses not bad and everyone doing ok xxxxx
Morning, ladies
Denise, now I hate to say it but I told you so re the “missing fish”
Glad you son saw them, I bet he was thrilled. If you get a heron, make sure you move it to different places, herons arn’t daft you know! A tip I always gave to my customers was to put a line of fishing wire round the border of the pond, the heron can’t see it but when it touches it usually gives up. never tried it myself. our new fish are growing apace, mind you they get fed twice a day.
Now that’s a nice new pic.
My Oh stroked my head this morning and said “you’ll have to get you hair cut soon” It’s growing quite well, can’t tell yet wether it will be curly, doesn’t look grey though.
sounds like you had a busy day yesterday. I went to my local Toyota garage yesterday (we have a Rav4) where bought our car cos they had a slightly newer diesel one for sale, ours is petrol, gobbles fuel. it had a few dents in it so we didn’t bother.but booked ours in for it’s service next month and asked about tyres cos we thought twe needed new ones, but he said it would pass MOT so we won’t bother as we have aske them to let us know if they get another diesel one in.
yes buzzing head is what I get. I put on my relaxation tape every afternoon but sometimes stuggle to switch off.
take it easy today
Carolxx
Morning Carol and other Ladies
Carol…lovely to hear that your hair is growing back…must be a lovely feeling.
Please can I ask something?
My bad boob has become very red…I have no temperature,no itching or anything at all besides it being very red is this normal?no rash or anything.
As anyone else had this?
Hi Just a quick post to say hello as I will be away for te weeekend (going to Berwick upon Tweed).
Vickie have a great time away …will miss you…we will do the cupcakes soon xx xx
Heather hope the pain gets sorted out and the sleeping and everything else!!! xxxx
Gotta dash as a hundred jobs to do and I can’t believe I booked to go away the day after peachy!!! Talk about chemo brain…God knows what will be in my siutcase when I get ther packing with chemo brain.
A big hug and hello at everyone else, have a great weekend all
Love Suze xx
Hello Ladies
Just a little one before I go off for a smooze - really shattered!
Anne, I haven’t got a card as I booked over the phone; they said to go to the Macmillan place as the hospiyal is having work done and it’s not easy to find the place we’re going to so will make sure I arrive in good time - what’s the parking like?
Carol, How llong is it snce you chemo finished; it’s interesting to know how long it is before it starts growing back
Suze Off galvanting again - are we at yours this weekend then? don’t forget to leave a psare key somewhere safe for us! Enjoy Berwick-U-T
Hi to everybody else
ZZZZ’s are calling…
Denise xx
Have a nice time Suze xxx
Denise …have answered your pm…have a nice snooze.
These boards are so quiet the last few days…guess it’s the slowness of the site.
Hope everyone is well xxxxx
Hi Girls , I´m earlier today , we´re going out this evening with friends .They are over from Saudi Arabia just for a week , as they want to find a builder for their house , and a long rental , they hope to move over here in December . Just hope i can stay awake ! The weather does´nt help , the last few days it´s been over 40% mid afternoon . Should start to cool down in the next week or so , ( I hope !)
Gabapentin is actually a drug that was developed for people suffering seizures and convulsions . However somehow , they came to realise that it could reduce sweating , hot flushes , night sweats in women getting intense menopausal problems caused through cancer treatment , chemo and aromatase inhibitors .I´m on letrozole ( femara ) and since I started , I found those side effects extremely hard to cope with , others , ok I put up with . Tried everything , and eventually , one of the nurses there at Breast Cancer Care , sdvised me to ask my onc for gabapentin , and she had heard they had had good results with it . So I am now on 900mg a day , and it has helped , not perfect by any means , but better . Yes there are side effects with gabapentin , but those i can deal with ,tiredness is definately one of them , but I just nod off whenever .
Everything we take or have dripped into us has side effects , but we really have no choice on this journey , we have to accept that we are taking things that we would rather not , but that it´s all helping to keep the cancer away , and thats the most important thing .
Enjoy berwick on tweed Suzi , hope the weather is good to you , do you good to get away mid peachy .
Carol and Denise , what are you both up to ? I know herons are´nt daft cos i see a pair most days around the lake , and they´re off long before we come upon them . I think we need to report you both to the RSPCA , catching herons and moving them around the pond with wire mesh around it´s feet ,shame on you ladies ! Almost on a par with that witch that threw the kitten in a wheelie bin , like to do the same with her and have the bin men cart her away to be crushed !Although in saying that , it happens all the time here , kittens and puppies in bins .Hope the bank sacks her , hateful mare !
However , glad you´ve "found " your lost fish .
That happened to our neighbour after the really awful storms and rain we had early in january .The stream above his garden broke it´s banks , ( it´s normally a "dry " stream ) and flooded into his garden where he had a really big pond with about 25 fish . When he´s away , my OH or I go and feed them . When my OH went up the whole garden was devastated , and he could´nt find any fish . Then a few days later he found one , so he caught it in the swimming pool net and brought it down to us , cos we had a huge builders bucket , so we filled it with water and a few bricks , ( very artistic ) and put him in there ,feeding him twice a day . Then a few days after that he reported seeing another one , this was a cunning little fish , did not want to be caught . I would say that he was proberbly terrified having escaped once being swept away , but if they really have only got 10 second memories then he won´t remember will he ? Eventually we caught it and put it with his friend , called them Mike and Jo after the neighbours , he was pleased to get the two back , but very sad about the others .
Lovely for you both Ann and Denise to be on the same day so that you can meet up, nice to have company and friends that know what you are going through .Hope you both feel better after resting .
I think you´re right Maria , it´s not a journey that ever really ends is it ? Even after 5 years we will always be "looking over our shoulders " So your kitchen man is an old knacker ? What a shame , waste of an opportunity ! Damm , you must be narked . If you´ve got to have one back , have a good one , thats what I say , mind you , these days I´m too tired to know what to do with one .
Elaine , Sandra ,Heather are you ok ? luv and hugs to You ((((HUGGGGSS))) hope you got some sleep .
Vickie , Jackie and everyone else seems like we´ve left his lordship ( wonder if thats where jackie has got too ?! ) Looks like we´re going to Suzi´s , anyone know exactly where that is ?
See you there ,
luvKris