I have recently been diagnosed with encapsulated apocrine papillary carcinoma and have been told that it is extremely rare. My head is a bit all over the place. I see the consultant next week to talk through me having a mastectomy and sentinel lymph node biopsy. How do people cope with all the unknown factors and waiting for results. I feel I will be a nervous wreck until my op in mid September and then the wait for biopsy results.
Welcome to the forum Trish .it’s an extra challenge having a rare diagnosis alongside the cancer diagnosis and having to search for answers that even Dr Google can’t help with !
Regarding the waiting and anxiety re results , all you can do is try and keep busy and focussed on other things as much as possible , also talk to people who understand here on the forum or maybe in local groups if you have any . Always someone to talk to here . Best wishes Jill x
Thank you Jill. I am holding an Afternoon Tea in August and find organising that is helping. At the moment I feel it is all taking so long. It was thought to be just a cyst when I first went to the Breast clinic beginning of February. The ultrasound raised concerns about a nodule so I had to go back a couple of weeks later and have a marker inserted and biopsy. The results in March were a intraductal papilloma and recommended surgery to remove the cysts. A Magseed was implanted in May but this raised other concerns and I had a guide wire inserted and then the surgery early June. Due to the difficulty of the diagnosis, I received the results last week. Because of the length of time gone by already I am just feeling so anxious. It seems that usually the time from first being seen to a diagnosis and start of treatment is much quicker.