End of Tamoxifen after 5 years

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Hi All

I finished Tamoxifen in June after 5 years. Not going on an AI as was considered “low risk” and as I have mild oestopaenia onc says uit is not worth it.

Most of the horrible Tamoxifen SE’s have gone now but I have just had blood tests and my oestrogen levels have gone up since I came off it and now I am worried sick about all the oestrogen flooding round my body!! This is probabaly why I feel physically miles better but now I am thinking OMG what is it doing??! Onc said this doesn’t make it any more likely to come back but I am finding it v hard to deal with

Also I now have pains in my lower back and hips which are scaring me but am wondering if theycould be due to changing hormone levels? Can anyone offer any advice or has anyone been in this position?

Love to all
Alise

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Sorry Elise, I can’t particularly advise you but I am bumping this up for you. J.

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If you were low risk, I wouldn’t worry too much. Breast cancer usually shows up within 2 years and then the odds of it coming back drop…significantly. All the aches and pains could be stress plus withdrawal from tamoxifen.