eribulin not working

I have just come off Eribulin because scan showed progression,and have been put on MMM Chemo,does anyone have experience of this drug.

KHRISTINE x

Hi Khristine
Sorry that the eribulin isn’t working :frowning: I don’t have experience of MMM, though my Mum did have it way back in 1990’s when she had primary BC - and it did the job for her! From what I know it’s one of the older school type of chemo’s and can be used when others have failed to work properly. Hopefully someone else will come along to give some better advice.
Good Luck and Take Care
Nicky x

Hi there Khristine

You might find a call to the Helpline will offer some support and information about this chemo.

We don’t have a factsheet on the subject but staff on the Helpline be able to point you towards other sources of information.

The number is 0808 800 6000 and they’re open Mon-Fri 9-5 and Sat 9-2.

Hope this helps.

Best wishes

Louise
Facilitator

Hi kristine
I have been thinking about u + wondering if the eribulin was going well. I’m so sorry to hear that you have had progression, that’s really rubbish news, u must be gutted :frowning:
I’ve never heard of mmm chemo (?) but have everything crossed it works well 4u. How many cycles of eribulin did u complete before learning about the progression?
All the best
tina xx

Sorry to hear your news. It was one I was hoping to try at some stage-but my onc hasn’t been impressed with the findings on eribulin, and feels the initial euphoria surrounding it has been misplaced.Perhaps he is right. Good luck with the chemo-it’s not one I’ve had, and I’ve had a few!

Hi Kristine,

I have just been told that Eribulin has stopped working for me (major shock as was feeling good), I lasted 6 months (9 cycles) though which is pretty goo going. Apart from going back onto Hormone Treatment I’ve been told I’ve exhausted all other options but I saw your post about MMM and hadn’t heard of this before. I was just wondering how you were getting on with it?

Thanks,
Suzanne x

Hi Suzanne and welcome to the BCC forums

In addition to the support and information here please feel free to call our helpline where you can talk your queries over with one of our specialist nurses. The lines are open weekdays 9-5 and Sat 9-2 on 0808 800 6000.

I am posting a link to the secondary support BCC can offer you which you may find helpful:

breastcancercare.org.uk/secondaries

Take care
Lucy

HI Kristine and Suzanne,

Sorry to hear that Eriblulin is not working for you ladies. I haven’t heard of MMM chemo before but had a look on the Macmillan site and found this info for you both. It might be worth a look Suzanne and perhaps discuss it with your oncologist?

macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Chemotherapy/Combinationregimen/MMM.aspx

Good luck to you both and look after yourselves ladies.

Love
Chris xxxx

Thanks for the link Chris,

I’m hoping to meet with my oncologist on Friday and will be asking about this chemo and at least I’ll be armed with some information, with a bit of luck it will be a possibility and it won’t be a hard fight to get it. It feels like I’m constantly fighting a battle to access drugs these days.

ElaineD, if you feel it’s worth trying then fight for it. The trial stats said the chances of success were fairly low and that you could gain an additional 2/3 months. However, I managed to get 6, almost 7 months and it was the first drug to work for me after a year of trying a load of other chemo’s which did nothing and made me feel rotten. Eribulin gave me my life back, as well as extending my life considerably, the side effects were so minimal compared to what I had previously gone through, that I have been able to enjoy the last 6 months. No doctor can tell me that it wasn’t worth it. The bottom line is we all respond differently and until we try a drug for ourselves they don’t know how successful/unsuccessful it will be.

Suzanne

Hi Suzanne, thanks for your post re eribulin. I’m just about to start it having been on capecitabine, gemcarbo, taxotere, parp trial previously. My oncologist said she was impressed with some of the results on eribulin, and that the cancer drugs fund wouldn’t throw all that money behind it if they didn’t think I was worth it. Obviously it won’t work for everyone, am hoping this is ‘the one’ for me! Was just pleased to hear your feedback on it, so thank you x

Hi

I started on Eribulin today after weekly taxol didn’t work. The biggest problem area is my liver and the damage markers are high. You are right the EMBRACE study showed a response rate of 12.2% compared to 4.7% i think for the other groups (other chemo or care). As you say everyone is different and so you have just got to give it a go if you can get it.

DiXX