Hi ladies,
I was just wondering if anyone else is on Eribulin and what the side effects are? I’ve just completed the first two injections and as you can see sleep seems to be lost on me tonight or maybe it’s the steriods. I don’t feel too bad on it and last week I had a reaction to the anti sickness tablets so felt totally out of it. I’m hoping this is a blip.
Looking forward to hearing from you all.
Love
Chris x x x
Hi,Chris,I can’t offer you any advice apart from it may be the steroids as my friend was gardening at 5:00am with the steroids and is hyper at the moment. Yes,the anti sickness pills can make you feel slightly out of it.
Hope someone can help with your question.
Hope it all goes well for you,huge hugs ,Helen xxxxxxxxxx
The steroids kept me awake, I had my reduced from 8mg to 4mg.in the anti sickness pre mix,. I got a bit more sleep then. Worse side effects were tiredness and heart burn…
Love
Sue xx
I had 7 cycles of eribulin in 2013. Tiredness, cumulative (my hospital doesn’t prescribe steroids with this chemo). It took me a couple of months to recover from the chemo fatigue. Some peripheral neuropathy, but I’d had other chemo treatments before. And I lost my hair :(
But I had no nausea or digestive problems.
Hi guys, just joined this forum and not sure what I’m doing but here goes…
Starting Eribulin on Tuesday and just want to know how you all got on ie side effects, hair loss, how long it worked for you.
I have mets in the ribs, pelvis, spine and liver and just finished a course of capecitabine.
Much help would be appreciated.
Thanks
Yvonne x
Thanks guys, had my 1st Eribulin yesterday and so far not too bad. I’ve had slight nausea this morning which eased off and this evening flu like symptoms and a headache for which I’ve taken some painkillers. A little tired but have been to work all day so I’m writing this whilst laid in bed x
Thanks EJ. Woke up this morning to a pillow full of hair, wig shopping it is, does anyone have any different ways to do a headscarf? xxx
Hi guys, I’ve already spoke to them. Things have changed since I last needed a wig and now if you are not on benefits then you have to pay a contribution of approx £65 and this is only for an acrylic wig. They will not off set the costs for a human hair wig. Off wig shopping on Monday with my mum x
Hi ladies
I’m joining you as I start Eribulin on Tuesday and feeling anxious even though I know what to to expect from previous iv chemo.
I have mets in lining of the lung and also mets to sternum and pelvic joints. Are there any side effects that are particularly common that I should look out for? Is it really necessary for me to take steroids??
Any tips I would gratefully welcome.
Hope everyone is enjoying the day so far.
Love and light
Dani X
Hi Dani
I can’t comment on the steroids as I’ve had the Erubulin without it. I’ve just finished my 4th round of chemo and for me it is feeling very tired and fluey for 3-4 days after, this has gradually got worse the more cycles I have had. My hair has also thinned to the point where I have to wear a wig but otherwise I’ve been fit and well and carried on with life and work as normal.
Good luck with your treatment and let us know how you get on.
Love Blondie xxx
Hi ladies,
Well I’m still on Eribulin although I think it will be coming to an end soon. It’s kept everything stable apart from my liver which is I have a new lesion and the other one is growing very slowly.
My main problems have been low white blood count, I had a slight reduction in the chemo and have three Filigrastin injections after every cycle.
The fatigue has been awful, I don’t mind the odd duvet day but the last cycle has been far too many. The nausea has been up and down; I wear the travel sickness bands which have really helped me and better than extra anti sickness tablets.
My hair has thinned but seems to get getting thicker recently and I haven’t had to wear a wig/scarves. I use Boots own thickening shampoo and leave on conditioner. Don’t know if it’s help but it’s clung on.
I’m waiting for a scan in mid Feb and see oncologist on the 5th March.
I hope you ladies are having minimal se and it’s works wonders. I think it’s a good chemo but has been hard going. I feel really sad that it’s been taken off the drug fund and it’s one less chemo for other ladies to try.
Love n hugs
Chris x x x
Hi folks, I had 7 cycles of eribulin in 2013 (thanks to Cancer Drugs Fund). Fatigue - significantly worse for me than EC, weekly Taxol, or capecitabine. I did recover from fatigue, took me about 3 months after I finished eribulin. My hospital doesn’t give steroids for eribulin, by the way. And I lost all my hair.
Hi Smartie,
Just returned from my 11th cycle if eribulin. I too was put on it because I had further spread to liver. I also had mets in pleura, lungs, various places on spine and pelvis. Lastest scan results where everything is stable apart from my liver unfortunately. It has another lesion and has grown again which is the second scan now. Oncologist isn’t overly concerned as it’s 8mm but don’t know about the new lesion.
She wants me try weekly pacitaxol if the next scan shows more progression in liver. It is a shame as everything else remains stable?
Unfortunately this chemo is really hard for fatigue mines is awful and I spent too much time asleep. It’s bad on your white blood count too. I have to take 3 Filigrastin injections to keep my neutrophils up otherwise I could cope with this chemo.
I felt great the first cycle but my white count when down to 1 which was too low then I got a uti. Oncologist said it was a common se and put me on the injections. They are really high and then the plummet like a stone but at least it’s kept me stable for the past 7 months.
I hope once you start it gives you a long period if stability and it’s kinder on the se than me.
Take care
Love
Chris x x x x
It’s such a shame they’ve taken this off the drug fund from this March ?
Thanks Smartie, I still had 1.5 more cycles. Wishing you the best of luck on this chemo x