Hi All
Had primary BC in 2016. Lumpectomy, radiation followed by Letrozole for 7 years. Just been diagnosed with ER positive MBC.
Presented in March 25 with symptoms of UTI and diverticulitis. Ultrascan, colonoscopy and CT with contrast all clear with no ‘sinister’ disease. In August gastro suggested MRI which revealed lesions in various places most significant being in sacrum measuring 3.5cms x 3.2cms. About to start Letrozole, CDK4/6, Denosumab.
I feel fine at the moment but am anxious about fracture due to lesion in sacrum if I continue playing golf. My oncologist is pretty relaxed about it and would appreciate advice? Did the bone mets cause a problem with any sporting activities? What should I expect?
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Sorry to hear of your secondary diagnosis. I have a primary diagnosis so unable to offer any help but hopefully somebody will pop on soon and offer some words of wisdom.
I follow Jo from METUPUK on Instagram @abcdiagnsosis and her diagnosis hasn’t stopped her exercising. I know she is a big fan of Nordic walking, as am I.
It might be helpful to call the BCN nurses on 0808 808 6000 m-f 9-4 sat 9-1 to chat this through as well.
Take care
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Hi @timotea
I’m so sorry to hear of your current situation. It’s what we all steel ourselves to face one day I guess.
I’m pretty sure your oncologist would have advised you not to play golf if they thought there was a risk of fracture. I reckon it is more likely that falls would cause fractures rather than straining movements. As @naughty_boob has suggested, a call to the nurses would be a good idea to talk through the issue. I have a friend diagnosed with bony secondaries and she has been encouraged to keep walking which is her passion. You might also get more opinions from the group for those with secondary diagnosis.
I wish you all the best. Sending love and hugs
Eily 
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I can understand the worry about the sacrum lesion and continuing with golf. Some people with bone mets have been able to continue with sports, but it really depends on the location and size of the lesion. It might help to get your doctor’s opinion on which activities are safest for you. Staying active can be helpful, but maybe try to adjust the intensity or avoid any high-impact moves. It’s always good to listen to your body though. Take care!
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Hello, I’m sorry you find yourself here. I was diagnosed with secondaries in June 2020. I’m on similar meds to you. I’m still stable and I credit some of that to me still doing a lot of exercise. I walk, jog, play netball, swim and do yoga. All of which help me physically, mentally and they have the added bonus of keeping my weight down which people can struggle with. Plus it gives me more energy, which is another problem area. I would definitely be playing golf if I was you. I may struggle with carrying the clubs but I’m sure you have that worked out. Obviously if you feel pain then you need to stop.
Please let us know how you get on.x
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Thank you so much for your reply. I did ask my oncologist and he said it was fine to play golf… even use driver which is great. Dr Google and ChatGPT gave me the impression that my lesion was like the inside of a crunchy bar… brittle and full of holes that could disintegrate at any moment.
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I’m pleased you’ve been given the go ahead to play golf.
Isn’t it funny how Googling can sometimes make things seem worse. There is a place for it but ultimately it’s best to check with a health care professional.
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That’s fab. Now to find the right weather for it!