A few of you have mentionned there’s an active FB group for us, can anyone copy me a link to the right one? I’ve looked but am a bit put off by the number of different ones and would like to join the UK one…
thanks Sarah
Hi sarah
I think my FB is in my profile or look up FB forward slash Lulu.McL and add me as a friend and i can add you… The group is secret so you cannot search for it.
Lulu x
Chat girls is specifically for metastatic/secondary women, it is a closed secret group so you won’t find it by searching but as Lulu said if you PM one of us on here with your FB details we can friend and invite/add you to the group. We have women of all ages and are very welcoming and friendly xx
Hi could somebody help me join the Facebook group chat girls?
Hi belinda, I’m waving, I don’t use fb either (my life isn’t that interesting) but I have set up a profile under a suedonysm with the ihtention of only accessing the chat girls page. It was straight forward to do. Ethel x
Hi all could somebody tell me how to join the Facebook group,I have secondaries in liver ,chest nodes and bones.
Thanks
Kaye x
Hi Kaye, if you pm Julied (above) with your fb info she can get the invite sent. The benefit of the fb group is 100+ women with knowledge, experience and understanding of having sbc and it’s available 24/7 which is invaluable to me. The women moderate it themselves and it enables you to find women in your area. I joined through chocsolates earlier this week and have already had tea with a woman in my area and next Tuesday a group of about 8 women in the local area are meeting too!!! Jackpot! For me it’s already had a huge impact on reducing my sense of isolation. Ethel x
Belinda you should join us on Fb! You have a wealth of knowledge to help us and you will definitely get something out of it yourself.
I do get what your saying and if I’m perfectly honest there was a bit of me that ‘twigged’ that by joining I was putting myself in that position. What it does offer is the 24/7 chat experience that is limited by time and access on this site. I am not a fb person but the way fb delivers/presents seems to be so much more user friendly than other places but I suspect that this is to only be expected because of the way the sites are used and financed. The chat girls forum also offers that unique experience of the participants all being sbc women and that in itself is so comforting for me. Ethel x
Hi belinda, I’d love to see you on chat girls (bc lass is so right) but no pressure it’s only for my own selfish reasons. Usual jitters doesn’t make them any less horrible. Just be kind to yourself. Ethel x
Oh Belinda doesnt get any easier does it. Wishing you all the best x
Thank you chocolates as always you have understood me so well! I needed time to adjust to the dx and to know that the fb group has a range of different people. I too would not want offend anyone here as we have enough to cope with without one of our own writing the wrong thing. Ethel x
Chocolates who are you on chat girls?
You have explained it well Chocolates. I would meet all my late friends again, I would choose the same path but over time, especially if you meet up, the loss after loss is hard to bear. I often look up late friend’s messages here, just to ‘hear’ their voice again. I closed our chat forum last winter as we 3 who were left were rattling around an empty room as it were and it was too sad. Easier to email. I have kept in touch with late friend’s families, children, been to funerals, visited graves. That said I have also had so much fun, support, friendship. We ate chips by the seaside, were up in the middle of London at 3am. We used to usually meet at a chosen hotel, have a meal together, a breakfast together before all going home. The girls still help me now when I’m having a wobble, I can think what would they do, say.
And life is all about reaching out isn’t it? X
Hello, I’d like to join the Facebook group(s) too. I’ve added Julie as a friend but not sure how to send a private message.
I’m Caroline, just turned 44, diagnosed with primary TNBC June 2013, finished treatment April 2014 and diagnosed with liver mets a few weeks later. I live in Luxembourg.
Can you invite me to the facebook group Julie?
Thanks,
C
Chocolates, belinda, ethel, julie…i recently joined Chat girls on fb and it was ok at first with lots of encouragement and support but all of a sudden in the space of a few weeks we lost a handful of ladies.
It upset me so much and i was really distressed to read the posts from daughters and families of ladies in the last stages of their lives. It put me in such a negative state of mind that i decided to come off for a while. I’d find myself dwelling on it all day and quite often got physically upset.
It wasn’t good for my family to see either. Maybe I’ll feel differently later on.
So i would say yes think hard about joining.
Love and hugz…bev xxx
Yes Julie…j was particularly moved by the recent passing of a lady who only lived a few miles from me. I really felt for her daughter who was posting. I have a daughter around the same age and a son a bit older. The thought of leaving them under these horrible circumstances is unbearable. It hurts so much to think of how they’ll cope with it…and i just dont want to go yet.
Sorry for being so glum…love and hugz. Bev xxx
Hi ladies, i’m not on fb either but reading these posts on how interesting and helpful it can be i think i might give it a go.
Please can you tell me how i go about it?? I am useless with computers etc but my daughter would be able to help me sort it
thank you hugs Janette x x
Thanks chocolate and Desi, mmm not sure now about what to do, don’t want sad news to bring me down!! Will mull it over for a few days i think
Love and hugs Janette x x
Bump xxxx