Hi Marie, I have xtreme fatigue am si fed up sometimes I just manage to get from bed to settee.i am on 1800 mg of Cape twice a day this is my second cycle. Tell your oncologist about your side effects mine didnt want to reduce my dose he said persevere which is easier said than done. Sometimes I feel so low I just want to cry.i don’t eat much either because taste has gone but do drink lots of lucozade ( doesn’t give me any energy tbough). I find some people don’t understand what fatigue is and find myself getting so irritable when people day are you alright today No this is how I am EVERY DAY!!!

Hi angela60,

I am sorry to hear you’ve been feeling so low and I am sure some of our users will be along to share their experiences and show their support soon. 

In the meantime you can always post on our Ask the Nurse board or call our helpline on 0808 800 6000, who will be able to talk you through any questions you have and offer a friendly ear. The opening hours are below:

Monday-Friday, 9am-5pm
Late opening Wednesday, 9am-7pm
Saturday, 9am-1pm

Best wishes,