Hi, I have a newly inverted nipple and thickness of tissue around the areola. When I say newly I’ve been aware that it’s not gone hard when I’m cold and noticed more and more since December. Both my nipples have always been flat but since April noticed my right one just sunken in and my areola has gone tough, thick tissue. I’ve been fast tracked to the breast clinic at nhs. Was told two areas had shown suspicion on my mammogram and then had ultrasound and biopsy taken from behind nipple and further up in my breast probably lobule and then told quite blunt it looks suspicious and then asked did I have any questions. Well I didn’t because I was shocked and mind blank because I’d just had boob numbed and biopsy in 4 different places and hadn’t expected that . I could only just ask if I could go home and when expected to be called back. I since have hundreds of questions what did they see . What did it look like. Could they have told me where in the breast. Perhaps better not to have asked and enjoy the time I have with family doing normal stuff before I go back for results
Hi @louisea77 what a shock you’ve had. Most of us have been in a similar situation. Everyone on here will tell you that the worst time is now. The waiting for results and a treatment plan. The mind goes to the darkest places and in order to get some hope, one turns to Google. That is the worst thing that you can do until you know your results as the information online is very generalised and usually out of date. Before you left the hospital, were you given the number of a breast cancer nurse specialist? If so, call her. They are very busy but always call back. She won’t be able to tell you specifics about your diagnosis but will give you an idea of how long you have to wait and what the process is. In the meantime, make a list of all of these questions to ask the doctor when you go to your results appointment. If possible, take some with you to make notes of what is said as you’ll be mentally processing everything said. Once you have the treatment plan you’ll feel more in control of the situation. The Mixed Disciplinary Team (MDT) that will consider your case and decide your treatment plan are ultimate professionals and are dealing with similar cases day in and day out so you can trust that they are recommending the right thing for you but, remember, you have to consent to every element of treatment so make sure you ask your questions so that you can give informed consent. Good luck.
So I didn’t ask questions because too much shock but a colleague at work gave me a link to nhs to look at my patient records. So have 32mm solid mass at 9 o’clock in my right breast and an 11mm concern at 12 o’clock on my right breast. So without getting my biopsy results which wil be on 27th June I’ve already Been sent an appointment to the family history breast clinic in 10th July. I’m hoping that is because is a benign problem and screening regularly instead of the 50 years plus means it is being watched. My mum had breast cancer post menapause late 60s and picked up in random mammogram. I’m pre menopause but there are possibly high risks for me now
Hello @louisea77
I can very much empathise and sympathise at the whole experience of being “thrown in” to what feels like a totally alien and bewildering world: being asked “do you have any questions?” when inside you are screaming “WTF??” is an impossible situation to be put in: I know because that was me.
You will read many times over on the forum that the worst part is the wait and the not knowing, but please be assured once you know what you are dealing with, it becomes much easier
I truly hope that your test results are negative, but even if they are not, please know that whatever you think a breast cancer diagnosis looks like from the outside, within breast cancer world it looks very different: it is full of the kindest most understanding people you could ever imagine and we are all there for you.
Sending you hugs and keeping my fingers crossed for you
AM xxx
So I had my results today and I have invasive ductal cancer. It was a shock. My next step MRI to make sure there is nothing else in the breast that needs to be biopsies and then an assessment on surgery. 40 mm between both tumours overall span of 75 mm. recommendations from the consultants to follow on wide excision lumpectomy or mastectomy. Lots of information to take in and all abit surreal. Like I’m listening to it but feel abit out of body while I process it .
Hi @louisea77,
I’m so sorry to hear your diagnosis 
It’s completely understandable that you would feel shocked - it’s a lot to take in along with all the information and I’m sure you feel like you’re on a bit of a rollercoaster.
We’re always here if you need someone to talk to and you may find it helpful to talk through things with our nurses - you can reach them on 0808 800 6000. They may be able to help you process things and answer any questions you have.
Once again I’m so sorry to hear this, you have this whole community behind you.
Hi my results are eostrogen progesterone positive HER2 negative. Is there another group in the forum that I might be able to talk to ? Perhaps those with the same diagnosis?
Hi @louisea77 as you are Er+ Pr+ HER2- you have the histology that around 70% of breast cancers have therefore much of the forum will be applicable to you. There are separate categories for women with DCIS/LCIS, Triple Negative and Inflamatory BC, Secondary Cancer and certain threads for women who are HER2+ but these will not be applicable to you. Every other category and subcategory will be mostly populated by women with the same type of cancer that you have so feel free to post in any if you have questions or observations.
When you know your treatment plan, the category ‘Going through breast cancer treatment’ will be the place to go as you are most likely to have surgery, radiotherapy and hormone therapy and there are subcategories for all those things there. There is also a subcategory for chemotherapy but you may or may not need that, it is not always given for our type of cancer (yes I was Er+ Pr+ HER2- too) but that is usually determined post-surgery.
I fully understand that this is all overwhelming for you at the moment but as yours is the most common type of breast cancer, you can rest assured that the medical team you are under are dealing with these cases day in & day out and there is a very well worn path through treatment and recovery.
Thank you so much for your advice. I will look for a thread common to mine. So much support in this group for women. It’s really amazing that women support women. If my thread now takes me on a path of treatment that will stop this thing from progressing then i really am thinking about everyone on a different path. 