Itās so hard, I cried I still do when Iām battling to get my wig on or look in the mirror.
I think sometimes a good cry & a soppy movie is whatās needed.
just let it all out.
Itās a big thing when our hair goes.
Youāre not alone, we will all here for you & we will get through this.
Hopefully your hat will arrive tomorrow.
Iāve got a bamboo one off Amazon thatās nice & soft, putting a scarf on top of it.
Hope you will sleep better tonight This insomnia is horrible.
hope you feel better tomorrow. x
@tigertot thanks for update hadnāt realised about using mouthwash all the time, was just waiting to see if I needed to. Did you brush after ever meal??
Day one post chemo nearly over for me. Havenāt felt too bad today. Been out for walk and cooked for me and my kids. Had afternoon nap as pretty tired. Worst thing for me at 50 years old is the night sweats which I had pre HRT but are now back with full force. Anyone else having this immediately after chemo.
Hope youāre all managing and thanks for your responses. Youāre all doing so well so one day and a time ladies xx
Iām sorry to read that you have had a down day. It is entirely normal and to be expected. What we are going through is a lot and if I didnāt have days when it all felt too much Iād be worried!
I felt really flat earlier in the week and sad for myself. Hearing about friends holiday plans when aside from cancer related appointments, I feel unable to plan anything as I donāt know how Iāll feel. No pleasure in eating as everything tastes horrid. Little energy to anything aside from potter about the house. My world feels very small. Itās reminding me of Covid.
When I washed my hair on Sunday I was left with very little so husband shaved what remained off. I look at myself in the mirror and I donāt look like the me I know, nor do I feel like me.
Today my chemo acne has returned so Iām bald and spotty. Was going to put on some foundation but with no hairline wondered where I should stop! Visited a friend and whipped off my hair and she said being bald suited me. Not sure if Iām bold enough to go bald outside but I am indoors if the heating is on!
Are you under the care of ESH or UHS? Iām not too far away from you. Could meet you at Camelia Botnar, Iāll be the one in a bouffant wig! X
@dkc66
Sending hugs to you, sorry to hear youāre not good at the moment, but donāt feel you have to wait to be more cheerful to share your feelings. x
Weāre all here for each other , through good and bad days.
I know what you mean about your scalp feeling tender , mine started feeling like that today, so I know that at some piont my hair will begin to shed any time now. Iām cold capping too and keeping fingers .
Hi, I live in Plummers Plain and know Camilla Botner well. I would love to meet up for a coffee and chat. I had my operations at ESH and am having chemo at Crawley Hospital. Its 3am in the morning and wide awake again. There should be a night time coffee shop open for insomniacs! I am not working since all this so free most times except Tuesday and Wednesday mornings. Where are yiu having treatment?
Thank you @anb1. Yes that was my 2nd ec chemo. I am devastated at the moment. Shed about 70% of hair since weekend. In the night I saw a huge black thing on my pillow and screamed out loud thinking it was a massive spider, but no just my hair! I have fine hair anyway so I will get it shaved off next week I think, if thereās any left that is! I am sure it must get easier day by day. Not there yet!
Good morning ladies. Just wanted to say how gratfull Im to read all the messaged. To know what in this word we can support each other in this horrible journey non of us would rather not have to do.
Im sorry to hear that things are tough. I just hope im as brave as you are when week when its my turn.
Im in Dundee in Scotland. So its been raining a lot, so i cant go out much at the moment. But driving to my friends for lunch tomorrow to trwat myself before chemo on Monday. Ive been manic cleaning aorund the house yesterday, in preparation. I found out in theprapy that how I cope with anxiety and I think in scared I wonāt be able to do it when chemo starts. I think self compassion is like a life lesson in getting to learn from scratch.
Itās sooo good to read all these messages and to know that things are up and down for everyone else. Absolutely exhausted today with no energy whatsoever and yes like everyone else there is disaster in the head area. Beginning to shed which I find utterly tragic. Of course I knew it was going to happen, but I just wished it wouldnāt, and yes I did hope a little too that I wouldnāt lose too much! Itās sort of sets a sign for everyone who sees you that things arenāt okay. The thought of going bald I find appalling, even if I can cover it up with a wig itās still horrifies me. But onwards and upwards I have booked a wig fitting this coming weekā¦.
@kav50 im with you there on the night sweats but Iāve not started chemo yet. But having stopped HET on diagnosis this new symptom has gripped me with avengeance.
I hope they stop some day but I feel they must be there for a good while yet!
Hi all, started chemo this week EC thru PICC line, after a whirlwind of scans and hospital appointments since diagnosis the week before Christmas (great present huh?). All found via routine mammogram. Still learning all the lingo but have a large mass 10cmx7cm G2 IDC and it is HER2 3+. Also in 1 armpit node although they are still not sure on that. Have escaped relatively well symptom wise this week, just v tired and bunged up a bit. 3 more EC to go then T Paclitaxel for 12 weeks and Phesgo every 3rd week, then surgery and anti HER2 drugs, Zoledronic has been mentioned. Seems a long long way off til life is a bit normal again (will it ever be?) and the appointments are relentless. I found out a lot just by reading my NHS app letters which isnāt great. Luckily my oncologist and specialist nurse are lovely and more informative than my breast clinic consultant who is very clinical and just wants you out the door asap. Going to read lots of forums to gain some more personal rather than medical insight.
Hi @jacx70 Welcome to the forum. These monthly chemo threads are a wonderful way to support and get supported by others who are having a similar treatment to you.
As you are HER2+ your treatment will continue after chemo and you may want to consider joining a thread that has been going for more than a year call HER2+ and need some buddies. Everyone is at a different stage of their treatment but itās such a friendly bunch.
Hi @jacx70 welcome to the forum. As said before, everyone is friendly and we pick each other up when weāre not feeling so good. Plenty of support on here, and thereās no such thing as a stupid question
This insomnia is horrible.
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