Did you have to wait long for your telephone appointment? I’ve had a video appointment come through but it’s not until June! It’s got me worried
Feb starters - feeling more like April starters for me .
Still delayed with liver function issues. Enzymes shot up to 333 after a weeks delay, following week down to 200, this week still at 150. 
Started chemo 7th Feb - had 2nd infusion 14 March. Still waiting to have my 3rd EC provisionally booked fir 28th April. This is such a drag its hard to “stay positive” when you should be having a cycle ever 21 days and its more like every 6 weeks!
I dont know where I would be with out my Reiki. 
Just needed to vent,
Hugs to you all x
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@tigertot you are doing great and you will get there in the end. Your team want to make sure everything is ok for your body to cope with chemo.
This forum is so good at allowing us to share our feelings and rant. We get it.
Take care.
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Thank you 
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Vent away @tigertot , we are here for you. What number is normal for enzymes? You will get there.
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So sorry you’re getting these delay’s. It must be so frustrating as you just want to get it all done.
Let’s hope thing’s improve now.
I was worried wouldn’t get my final one of my 12 yesterday as haemoglobin levels dropped really low. The did go head so that was a relief.
Know it’s hard for you, thank goodness for your reiki helping you cope.
Everyone is is here to support you or vent whenever you want to get things off your chest.
Try & enjoy you weekend sending love 
x
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Thank you @wba .
Reiki and meditation/chakra balancing every day if I can to support it. Of course not always possible, being a single parent, but that’s my aim. 
Seems to be a lot of , not just physical, but mental battles on this journey.
Glad to hear you’re making progress with your treatment despite any issues. 
xx
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Hiya. For those of you who have had PICC line problems/clots, can I ask what your symptoms were? Mine is really painful today - no swelling or redness but I can feel it all the way into my armpit and it hurts to move my arm. I sat in urgent care for 4 hours but they can’t ultrasound it until after the bank holiday 
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Have you been sent home? Did a doctor check you over at the hospital and have they let your team know do you know? Do not be afraid to go back to a&E over the bank holiday if you’ve been sent home, they have a duty of care to you and just because it’s a bank holiday doesn’t mean the nhs should stop for a holiday they are or should be providing care 24/7. Sending 
Shi xx
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Glad you’ve been prescribed something in the meantime but if you don’t feel right do go back are they getting you back in Tuesday morning for ultra sound Shi xx
I had problems with my picc line and they sent me to a&e and I had a chest xray then ct scan. They should be able to do a chest X-ray 24/7
My arm was swollen, they started me on blood thinners until my ultrasound.
Unfortunately yes it was a clot.
Hope you have a better result x
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Dear All, I am just in the process of getting my blood test results through as hoping to have round 4 of chemo on Wednesday. It has come through that my platelets are high, hospital have not rung to cancel yet but is this common as I think the chemo unit were only working half day being a bank holiday so I cant ring them. Sending love and healing hugs to you all xxx
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Thats very frustaiting. Hope you feel better soon. I ended up eoth chest infection too, but Im very prone to it so I know all the sympotms and all the tricks to get better. But its viral one and its keeps hanging on and doesnt want to shift.
Good morning everyone. Just went through last weeks messages and its like we all have something that is wrong again.
Going to share some goos stuff too so we know thigns will get better.
Finished my 4 EC and ahd my MRI and spoke to surgen and oncologysts: good news, chemo is working and tumor is shrinking. Thats was such relief that I went home crying and ceashed out as its been fucking though 2 month.
Not so good news, possibly picked up cold/chest infection sometime aound my appointment too. To the point, i told my staff what to do at work and spend few says in bed resting as much as possibly hoping to get better as I was supposed to be moved to Paclitaxel this Monday. No such luck, spoke to hpotila Saturday night, my cough got worse during the night. Went to see them on Sunday, doctor said same as I already knew, its viral. Chest is clear, but as I have history of chest and sinuses infection, I already knew all my sympomts and knew it wount go away quickly. Doctor saod my bloods were clesr on Thursdays, but since it would be first paclitaxel and to give time for my body to fully recover, she precribed me antibiotics to be 100% sure if would not get worse and moved my next chemo by a week. Which in my situation I was relived, to b honest. Especially since its Tuesday already and I havent had a good night sleep in 2 days, as my cough doesn’t want to shift. My sinuses are playing up bu generally I can breath properly ok. Vaporrub and warm mild at 4am was my savior and I was able to get more sleep. Just a bit fed up with all of that. Had a go at my flatmate for smallest thing on Sunday too before I had to appologies and broke down crying again. Fed up is understatment. Just keep reminding myself I have 4 Paclitaxel chemo to go and thats me befoe surgery, but it’s difficult to motivate myself at times. But again reminding myself that the “fucker” is shirkinging and since genetics team said I dont qualify for tesr, as I have no history of breats cancer at all in my family and im over 40. Means I will get mastectomy and “tummy tuck” too. So one more thing thats been decided and easier to “mentally prepare” for. Just need to make sure my weight stays the same. If you read all of that, thank you for rearing my moans. Julija
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Seems like we have a similar virus - my chest and sinuses are bad and it has stuck around for over a week. I’m never ill (well, besides the obvious) but this is kicking me hard! Congrats on finishing EC and on your MRI results. I’m strangely looking forward to my mid way MRI next week - desperate for a sign it’s working! I move onto EC next week and didn’t find paclitaxel too bad at all, so hopefully goes smoothly for you. Feel better soon x
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Try not to worry, you will get there. We can only manage what is in our hands and leave the rest for the body to get under control. What is the normal number for enzymes , did you doctor speak of it?
Hi @sms normal ALT (liver function) readings should be between 7 and 56.
Before starting chemo my readings were 27.
After 1st EC of 21 day cycle I didn’t get the readings and was just told they were too high, and delayed twice. By week 5 they let me have 2nd EC at 25% reduction as ALT levels were still sitting at 87.
My readings were as follows after 2nd EC…
Week 3 - 333
Week 4 - 200
Week 5 - 150
Week 6 - Back up to 187 !!
So have been delayed for the 4th time, and ALT levels just not coming down.
Liver scan is showing as clear. So oncologist is baffled by it.
My 3rd and final EC (before moving on to Docetaxel) Is provisionally booked for 6 May. Thats IF levels have come down enough.
I’ve got to be honest I’ve not come across anyone who’s experienced these sort of levels.
So if anyone has experienced or knows of this happening I would be interested to hear from them.
Thanks for reading. x
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Thank you for sharing @tigertot. This is the first time we are also experiencing such elevated liver enzymes, and have no clue how and what to do about it. The doctors have only asked us to sit back and wait for things to get better so that’s what we do. Wishing you health and prayers for all your blood levels to come within the normal healthy range very very soon.
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Sorry to read you have been delayed again.
So frustrating let’s hope they one down.
x
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