Hello,
Just wondering if anyone is there this evening?
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Just in response to your worries about high ALT. I also had a pretty high ALT (170-180ish?) it was weirdly high before my first chemo but within range, then dropped to 80 after first chemo, then before second chemo it shot up again.
Obviously my mind went to mets. My oncologist wasnāt very concerned because they were going up and down. But I was very worried about it, so he kindly sent me for an ultrasound.
It showed I had mild fatty liver disease (a bit of a shock at 28 with a healthy BMI but I had been baking a lot of sausage rollsā¦). One of my friends is a sonographer - he said that ultrasound scans usually canāt pick up mild fatty liver disease well (usually can only stop moderate/severe) and even though it sounds a bit scary, it may well be from the chemo (or the sausage rolls). He suggested spike in ALT before I started chemo was from the fertility treatment I had.
@tigertot I hope you get some more answers with further tests, Iām sorry youāre having all these delays. Itās so disheartening to feel so out of control.
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Hi There,
Am glad you have decided to join the group,It really is hard going trying to face things alone!!
I have found everyone on here very friendly and supportive 
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Thank you. I think Iāve made some decisions today which has made me feel better & more in control.
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Morning everyone. Ive had 5 chemos so far, one left. Last 2 have been Doxitaxal. Is anyone else having trouble walking any distance. I can do 3 or 4 minutes then I have to sit down. Am I expecting too much I am wondering.
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I had 12 weekly Paclitaxel and tried to walk every day as advised by my team. There were days when I could barely get out of bed and others I could walk up to 15 minutes. I was told that chemo is cumulative so as time passes the side effects can worsen and that could possibly explain why you are struggling walking. Be kind to yourself, your treatment has taken a lot out of your body.
If you are concerned, maybe call your team or chat to the BCN helpline but itās not open until Monday at 9am but MacMillan have a helpline every day between 8-8.
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Hello @dkc66 - docetaxel took me down tbh & I was wobbly on my feet for a few days after & I have been struggling a lot with stairs. It has / does ease up though.
Hope youāre ok. X
Thanks for your messages. Think im just expecting too much from myself. Dreading last chemo as having zoldronic acid with it and Ive been told side effects are flu like symptoms. But fingers crossed its just tablets after for 10 years.
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I understand - how many do you have left? X
Just the one left on Thursday. I will tell the nurses on Monday though when I go for bloods how I am feeling. I read somewhere drinks with electrolytes might help but I wont take any until I get go ahead from nurses.
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Amazing to just have one left!!! How are you feeling?
I have anxiety this morning. Monday tomorrow and i feel like that always sets it off. Iām still trying to work full time & I have an appointment with the oncologist on Wednesday following a rather stressful call last week. X
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One left, wow. Hope it goes ok for you.
Im sure you will want to check for yourself but at the beginning of my treatments i was given the ok to take electrolytes.
Got to be worth a try, if it can make tour symptoms more bearable. 
Good Morning Everyone,
Hope you are all well.
I am due my 5th round this week and will be changing from Docetaxel with my Phesgo injection to EC with no injection(These will resume after surgery)
I have managed quite well whilst on Docetaxel,And am a bit anxious about the change in drugs and what to expect.
I know everyone is different but was just wondering how people have found the side effects from EC compared to Docetaxel?
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Afternoon all,
@rainbowbrite10 Iāve finally switched over from EC to Docetaxel on Friday, although that was 8 weeks delay due to liver problems after 2 x EC . The discision came to missing the 3rd EC and straight to Docetaxel as my liver just wasnāt tolerating it.
Yet Iāve seen a lot of people get through EC better than Docetaxel 
.
So from EC to Docetaxel for me ,it feels very different. EC gave me over a week of what felt like a massive hangover, I couldnāt drive and had a lot of nausea although no sickness. Personally I believe that it was my liver saying āNO , ABSOLUTELY NOTā.
So please donāt use me as an example on this. 
.
Docetaxel is very different and no signs of the hangover feeling. But still on steroids so i should imagine by day 3-4 the niggly stuff will start.
Not sure if that helps to be honest.
Im just glad I finally got my 3rd chemo done and can actually say Iām finally half way through!
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Thank You for your reply,
I am so glad you finally got your 3rd cycle 
!
I know how fustrated you were with all the setbacks 
Hopefully you can continie on treatment now without anymore setbacks 
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Weāre the opposite way around - any tips for the docetaxel?
EC was ok for me, the first cycle made me very tired and my taste wasnāt great but the few after that were OK & I managed to bounce back relatively quickly.
I know exactly how you feel about the change, i am and was exactly the same.
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I found the day after chemo I was fine,And then for about 5 days after was very tired and had a low level headache,Am not sure if this was from the docetaxel itself or the injections I have 
I did get a loss of taste and a bit of a sore mouth(No actual ulcers),And really red and sore skin on my face,Which I just used plenty of my normal moisturiser on-This usually settled around day 10 post chemo.
Luckily I havnt suffered with any sickness or nausea at all
I have found the side effects after my last round werent not as bad as the previous 3.
I just dont want to lure myself into a false sense of security changing over thinking it will be the same and then it knocking me for 6 for the last few sessions-If that makes sense?x
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Totally, I felt exactly the same. I made that mistake & itās so hard to know / tell.
I had much more of an appetite with the EC. But it did impact my hearing a little bit (like i felt like I was under water and my ears needed to pop) which the team told me was a slightly unusual one. Sadly, I also struggled with constipation - I think that I was so stressed about it all that I forgot to stay as hydrated as possible.
X
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@sbee Have you started your Docetaxel yet? Sorry , canāt remember what you said 
.
Like I was saying to @rainbowbrite10 its probably a little too soon for side effects kick in.
As still on steroids until after tomorrow.
But have noticed my tongue and mouth is becoming quite sensative and tingling. So Iāve got my Benzydamine mouth wash at the ready if it gets too bad.
Getting a few hot flushes too today, But canāt work out if its the steroids or Docetaxel.
Certainly no nausea or sickness so far.
But will keep you updated. 
x
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@tigertot - I have had 1 round of DT but struggled if Iām honest, like you mentioned the SEās were different to the EC. I did also get hot flushes! Have you managed to eat well? X