@99649268roxy I do that when I wake up in a morning then it suddenly hits me again I have breast cancer xx
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This is me every morning too. I find mornings the hardest. X
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Me too. X
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Hi all, not been on here for a while as I had lots of stomach issues with Paclitaxel fighting my diabetes medicine for 3 weeks, was a wrung out sponge! Ended up in A&E on drips but now back on track with just 6 weeks left and Phesgo every 4th week. I slumped when I first heard Iād be having 12 weekly infusions, especially after having had 4 EC first but it is going so fast. Saw my oncologist today and she couldnāt find the lump easily, hurrah, and reckons it has gone fron 10cm right down to 2cm now. Got an MRI next week to get proper analysis and then breast clinic to discuss surgery, lump v masectomy. Already said I donāt want reconstruction straight away, just too much to contend with, give me a chicken fillet just so I donāt look wonky for now! Sad to see so many of you lovelies are feeling down. Focus on the little wins and take one day at a time. Keep on going, weāve got this xx
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Hi Ladies
I finally had my 1st weekly pax with phesgo today, I was too weak last week and Iāve asked for a break (had my period so painful and cold/cough).
Phesgo was stinging at first but I really had a great nurse today, In spite of the delay waiting for pax (2 hours), the nurse look after me very well. I was at the unit from 9:30-15:00 (cold capping). I also did used the suzzipod for my feet and hands (30 mins each), hoping it works.
I felt nauseous the whole time, Iām probably nervous as well, but I was lucky there no reaction when drugs was being given, so pax was given for 1 hour.
But I had been toilet already after coming home so I would be taking loperamide to combat this side effect.
Iāve already took an omeprazole.
Still early days, but to compare with EC.
This is much calmer,got 11 more weeks to go.
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I have the same as you and on the same drugs. My body didnāt cope with 100% chemo. I had stomach cramps and nose bleeds etc. my oncologist said I can drop the dose to 80% without it affecting the treatment and it improved. I have just had my 5th of 6. Next stop is another MRI and seeing the surgeon on the 16th June. Possible radiotherapy also. Best wishes to you.
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Good morning lovely people. Can here to have a moan.
Had another mammogram lady week and ultrasound. Tumor is still there, but as radiographer said, less dence and my armpit is still clear. Had another MRI yesterday.
My chemo last week was a very long day, as I had neuropathy in my feet and āthey felt funnyā for most of the time after my second paclitaxel so nurse chatted to me and they have reduced my dose so had to wait for long time. Not moaning about it, as day 3 and 4 wasnt as bad as last cycles and im feeling ok overall.
My moan is about surgery. They phoned me lasf week and basicly, last chemo is next Tuesday 10th of June, surgery is 8th of July. Like 4 weeks after that. And im so scared. Bloody hell, last time i hd major aurgery i was bloosy 6 yeara old. Since than my only.surgery was 2 year sgo for like half an hour. And I know I choose reconstruction too and stuff but just thinking about that and recovery is just scary. I know I have friends around for help. My flatmate is here and my other friend is moving in for at least a week after I come back home after surfery, but im still scared. My family is far away. And i tols everyone I dont want my mum here, as it will only make situation worse, as I will be worried about her as well as myself. Im trying to read and prepare for everything after the surgery as its my way of coping, but there is only so much I can prepare. Im trying to stay busy and work jsut now while I still feel ok physically. But there is just too much. Im so tired of everyone telling me I look good and im so strong. Like I have a bloody choose not to be.
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@misha. You are doing great. The tumour is shrinking so your chemo is working. Itās very common to be scared of surgery. For me the surgery was the easy part, I had it first then chemo and Herceptin. The chemo was much harder for me.
Thinking of you.
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Thank you so much for kind words it meNs a lot.
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How is everyone? I know itās been quiet for a little while. X
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@sbee. How are you feeling now? How many more treatments do you have to go? I have finished my chemo now and have mastectomy on 10 July then further her2+ treatment. Xx
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Hi all
I finished the chemo on 13th May but am continuing in Herceptin. Iām beginning to feel better. Cycle 6 wiped me out. Feel my brain finally has some clarity!
I have my pre op appointment today in readiness for double mastectomy, sentinel node removal and reconstruction in 2 weeks.
Time seems to have flown and it feels like Iāve achieved very little aside from getting through it. Feeling slightly envious of those around me booking holidays and going out. My life seems to have been slow and has been dominated by appointments and managing side effects for the last 8 months. Hopefully Iām half way through now and that the waiting at the start and the chemo has been the worst of it. I still donāt feel able to look too far forward. Iām doing one day at a time. X
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@mrsjelly hope you get on ok today with your pre op appointment. I have mine 2 weeks today then op on 10 july. In one way the time has gone quite quickly but feel like Iāve not done much. I had appointment with surgeon Friday and my lump has shrunk but is still showing on scan (so annoying after all the awful side effects) so am expecting kadcyla but am still hoping that it maybe just dead tissue.
Xx
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I have found every day a struggle if Iām honest - had round 7 on Thursday and canāt taste much or get myself going at all. Living and being alone is hard and I think the docetaxel hits me.
How are you?
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@sbee I am not too bad but still very anxious it must be terrible for you on your own. I too was on docetaxel and have some awful side effects. Xx
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What were your side effects? We have reduced the dose but Iām still finding it horrendous
@sbee I have really bad oesophagitis, migraines, sore watery eyes, sore skin, alternating diarrhoea/constipation, hot flushes do you have same? Xx
@anb1 - pretty much, my mouth is covered in gack, the sweating yes and very very crusty eyes and mouth too. I am as white as a sheet. 