February 2025 chemo starters

Hi All,

My surgery all went ahead as planned this morning,Went into theatre around 11ish and was home for about 5pm this afternoon.
Was fitted a bra and a soft prosthesis by the ward nurse,As I didn’t see the breastcare nurse before discharge.

Felt a bit groggy following surgery and couldn’t stop crying once I had come round!..The Nurse in recovery asked me why I was crying and what was wrong!!:exploding_head::roll_eyes:
I refrained from a comeback of ‘I don’t know-Maybe having cancer,And having my boob amuptated at 40 is a little bit upsetting’

Overall I feel much better since I got home,And having finally stopped crying,
Am not in much pain,Just discomfort and tightness,And am find one of the drain placing is irritating my chest.I have a drainbag that is a godsend rather than carrying them around.

@zoemac My Partner was very supportive from initial diagnosis up until I started chemo and then he just went in the complete opposite direction!!!
We dont live together and it seemed as if he just had no time for me at all,And wasn’t really checking up on me when I didnt see him etc.
I was getting more support and encouragement from people I don’t really know,And even MY Ex-Husband!!!
I found this incrediblly fustrating and hurtful and it very nearly cost us our 9 year relationship!
However he seems to have stepped up today so we will see how it goes over the next few weeks.

Sending :sparkling_heart:

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@rainbowbrite10 - I’m glad it went as well as it could for you. I absolutely hate the “whats wrong?” question when i am upset. I actually question people’s sanity at times.

With love x

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Hi Ladies

I’m searching for shampoo and conditioner post chemo and hoping you can share what has worked for you.

I’ve spent my morning reading but just end up confused which one to try.

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Morning @jaa2019!

The chemo ward recommended me watermans - I did look into this and it has great reviews but I was / can be a little nervous of any nasties in the ingredients lists. (Not that it’s stopped me ending up here!)

I’ve always used and continue to use faith in natures range & have been using the rosemary one which is lovely and affordable (and minus the nasties!) Which you can buy in H&B and some supermarkets now i think. I also have a cornish seaweed one - but used this pre hair loss and before i lost my mermaid locks (as my niece and friends kids used to call them!) :cry:

For eyebrows and lashes i’ve been whacking on some UK lash serums and Jamaican black castor oil which seems to be helping a lot.

I am missing my hair so much so am desperate for it to come back!

There is another one I’ve read about but I can’t remember the supplier now…

:heartbeat:

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Ive heard good things of the MooGoo hair range. Not used it myself, i was very lucky to keep majority of my hair (thanks coldcap) so have continued to use the ‘simple’ range that was recommended whilst using the cold cap. Once ive used this up, i intend to try moogoo. Ill aim to update on here.

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Hi Ladies

Just an update I had my surgery on Monday (lumpectomy and axilliary node clearance), stayed overnight got discharge the next day with a drain. Still painful especially the armpit area, it gets numb on and off.

Doing the exercises after taking pain meds. It’s a tough journey I really hope i can get good results and won’t need another operation. And hoping this wounds heals up soon with no complications.

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Hi @jaa2019 ,
I had my lumpectomy and axilliary node biopsy at the end of July and found the heart shaped pillow from cancer research helpful especially for sleeping, I also purchased the seat belt cushion as travelled several hours the week after.
Don’t beat yourself up about doing the extended exercises after a week or two as I found them really painful so didn’t do them till week 4, I’ve no pain now although the numbness is still around my armpit scar. Be kind to yourself and don’t over do it so that you can heal. Take care :heart:

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Hi

I am usually replying not starting a thread so hopefully I am doing the right thing.

Just wondering how we are all doing and doesn’t February seem like a long way away?

I finished chemo, had double MX with immediate recon with DIEP and 3 weeks radiotherapy. Already on Bisphosphonates and Letrozole…. Just Abeciclamib to go now!

Happy to be finished with the BIG STUFF.

Hopefully you are all good my lovely peeps :hugs:

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@nomoreptosis
Hi! It’s been quiet in here at the moment.
Thanks for starting a thread, hopefully we can get some ladies back again on chatting.
I’m finished 6 months of chemo, had surgery lumpectomy and ALC on Sept 8. Still recovering, tired most of the times, frustrated because of the limitation of things I can do.
Having PHESGO every 3 weeks.
And still staring at my TAMOXIFEN tablets And have not taken it.

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I remember post op frustration. It will pass and be in your rear view mirror soon. Wishing you well for what comes next. Are you worried re Tamoxifen side-effects?

@nomoreptosis
Yup am overthinking all the side effects from it.
I had my surgery Sept 8 and on Tuesday got my results then also got bombarded to make a decision regarding which tablet to take for endocrine therapy. I feel down because the reality is hitting me that for my cancer not to come back I will need to take this tablets that will give me side effects for 5-10 years.

Anyways I choose to try the tamoxifen but my oncologist is more leaning on changing it to letrozole. Am 42 and i thought tamoxifen is what should be given to peri menopausal.
Here’s what she had written on my letter.

‘ We had today discussed adjuvant endocrine therapy, with single agent tamoxifen or aromatase inhibitor given with ovarian suppression. We discussed that the latter strategy is probably optimal but after discussion today she would like to start with tamoxifen only. We have agreed that depending on her tolerability we will consider adding in Zoladex in the coming weeks and if she were to tolerate that then we would switch tamoxifen to letrozole.’

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I think some of the best advice I was given was don’t suffer in silence…you should flag any side effects and they may be able to “do something” about it.

Everyone reacts differently. I am post-menopausal and Letrozole has given me no side effects. I was surprised.

It is worth chatting this through with your BC nurse or someone from this charity…a nurse or Someone Like Me. Did they mention surgery to remove ovaries at all? I did not need that as I hit menopause 10 years ago.

I know there were times when I questioned what I was being told and wanted to rebel but I want to reduce chance of recurrence. Given the wide spectrum of responses, you may be like me and end up asking what was the fuss all about.

Wishing you all the best with these difficult decisions.

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Let me know how you are getting on x

I finished chemo in May and have been doing okish! However ive developed such a nasty cold and cough that I cant shift. Im wondering ifbourvimmune systems arent fully back to normal yet. Has anyone else found getting over an illness isxtakibg longer than expected?

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Personally I have been OK but it is not surprising given what you have gone through. Nasty bugs in general populous in any case. Try to avoid obviously ill people. Hope you feel better very soon .