That’s all great to hear! Two weeks tomorrow was my last chemo but no bell to ring either!
The mouthwash has been a miracle cure for my ulcerated mouth and I can eat again. I’m beginning to get some energy back. The neuropathy in my feet is really bad. Hands not as bad.
Surgery scheduled for 7th July. Then probably immunotherapy after that.
I’m loving the weather too. I actually got to my beach hut twice last week.
No, no break for me @rayofhope6 … finished Phase 1 on Thursday just gone, start Phase 2 this Thursday … this weekend has been hard, I’ve cried quite a bit as I’m mentally exhausted … ploughing on week-after-week to not having any medical feedback before starting Phase 2 has demoralised me, but also I’ve been so focused on completing all 12 sessions one after the other, now it’s done … I’ve caved!
I’m so sorry to hear you haven’t had a break hun. That’s so weird that they didnt do that. Your treatment now will be every 3 weeks right? I truly hope that they side effects wear off during the time between and you can have some rest. I wish I could give you a big hug, this journey is so hard and we are doing so well. And cry if you need, I do all the time! Are you part of any face to face support groups? I’m sending so much strength and resilience to you!
The nurse last Thursday questioned it because she said that normally, TN or not … you’d get a couple of weeks break! My Oncologist came back to say that because I’d tolerated the 12-weeks ok, and because my bloods are consistently ok, we’re carrying on … I get it, and I’m not complaining … I’ve not had an emotional blip since I was diagnosed, I just feel mentally exhausted this weekend! It’s not helping that they’ve prescribed me three different medications for a sore mouth and tongue - and - yet none of them are working!! … I’ll be fine, it’s just a blip
Ah I see, I’m glad you tolerated it well I’m holding thumbs for the EC. Let me know how it goes, I start week after this one. I wonder if side effects will be drastically different. My god I’ve struggled with my gums and ulcers so much! Also using bicarb mix to help during the day because the mouthwashes get a bit much after a while. I hope your mouth feels better soon! Xx
Just had my first zoladex injection - she told me not to look at the needle! It did hurt but only for a sweary second. Starting the tamoxifen tonight, and then off to radiotherapy tomorrow, what a week!
So I have had my CT planning scan today now have 4 tattoos and start 3 weeks today.
15 sessions in total. The total shit show is you only get your time the day before which isnt great as my hubby needs to book time off to take me on the 2 hour round trip without the treatment.
Anyway shouldnt moan.
@rubytuesday so glad your onto the next part. If you have any tips I would appreciate regarding aftercare. Im having breast collarbone and heartline done due to my lymph node involvement. I find out what hormone tablet I will have 20th July when I next see my chemo oncologist.
Hope everyone is enjoying a bit of a cooler Monday after the Heatwave
Well that’s my 2nd Docetaxel done! 5-6 overall so 1 more to go after this
Hoping the SE are easier or that I’ll be better equipped - Filgastrim way worse for me on this compared to EC
I have my meeting about the Hormone Therapy on 26/06 lots to read up on - was perimenopausal before all this with relatively stable oestrogen at 53 so we’ll see what they say options wise
Final chemo today! I rung the bell since my mum was with me, even though I still have radiotherapy etc to do. I’m back there tomorrow for my first therapy session!
It feels weird to be done, I’m probably going back to work next week until I start radiotherapy. Won’t be hard, I just can’t be bothered
Yeh same, most people have stopped messaging to enquire how I am. Just a few stalwarts still make the effort. And of course for us it all just goes on….GP tomorrow to ask for DEXA scan and second opinion on Letrozole. Sympathy @vizsla_mum
@sam1204 appreciated, but not looking for sympathy . It’s been a long road for us all, including our friends and family. My husband’s chat this morning just summed it.up I think and here’s me thinking he was paying attention
Last round completed. So impressed by this body for getting through 8 rounds - though I’ve got a couple of weeks before I’m out of the woods. This forum has been a godsend when I thought I might never get through. I don’t have to do radio according to the oncologist, so next stop- crash menopause Anyway, we move!
@vizsla_mum because I want to know the current state of my bones before I decide whether to take the hormone blocker they want to give me. Likewise with cholesterol. Hormone blockers (AIs) stop any oestrogen being produced (post menopause body still produces a certain amount, in fat not ovaries), which is associated with a lot of things such as osteoporosis, high cholesterol, high blood pressure. And that’s on top of the actual SEs of the drug.
Anyway - GP said I can’t have a scan as I’m not high risk enough. Her answer was (as I now know every medic’s answer to be) that they manage osteoporosis with other drugs (ie zolendric acid). High BP is managed through medication and cholesterol also (statins). If I get joint pain or depression they’ll give me painkillers and anti depressants. If I want a DEXA scan I need to pay for it. Likewise getting a second holistic opinion on the AI. Only thing she could give me is a blood test.
So it’s over to me to source and pay for baseline tests to help me make an informed decision. I’m not surprised but I am annoyed.