@awr Thank you! I’ve not been on here for a couple of days as work is hectic! So I have 20 rounds of radiotherapy starting on the 2nd April and ending on the 30th April. The planning meeting and scan was so quick! The main part of it all was the breath holding which they had me practice because they are treating my right side and also across the central portion too because of a node showing up on my MRI last October. I seemed to manage it though so fingers crossed I will when it’s the real thing!
Day 15 of the last chemo cycle here now and the side effects that are ongoing are the bleeding nose, sore nails, numb fingertips, remains of the blisters/peeling skin under my toes and the dodgy taste. Oh and watery eyes! My skin seems to be clearing up on my face and the exhaustion is expected but still a real nuisance when I need to be alert during the day! I think I can feel my hair starting to stage a comeback already though…still clinging on to my lashes and eyebrows on day 78 in total!
I hope you are doing ok and not too tired! Remind me what’s next for you after this? x
Hi @rubytuesday sneaking into the feb starters just to say well done on starting the 2nd half. I believe we have the same regime so I’ll be looking out for your feedback haha I have only done 2 ECs so far and the start of the 2nd lot of paclitaxel feels mountains away.
I get the impression it was a longer day than the ECs? How is this possible??? Although I do like the idea of having a nap to pass the time
Hi ladies, I don’t post much but I try keep up with the posts as you are all an inspiration and I’ve got some great tip. I’m heading for my last EC today and just like @sammy75 said I hope it’s kinder today Onto 4x Docetaxel after this. Got some frozen ice lollies as they help with the taste from EC and an enormous water bottle to help getting dehydrated.
Hi, I sneak onto the march chat sometimes too to see how people are doing!
For the EC I was usually there about 4h, with the faffing before, the 30 min precook, 1h EC and 90 min after. For Pax it was 6h, and actually went quicker than I thought it would. There’s no one sitting and talking to you like EC, they just hook you up and leave you to it (the lovey nurses do keep an eye on you). I had good things downloaded on my iPad to watch, and lots of snacks to deal with boredom rather than hunger!
You will get through it - I woke up feeling pretty normal, waiting for it to hit as no steroids after this one but the emotional rollercoaster will probably start when I least expect it!
I’m also finding Day 2 not too bad! Hot flush as normal post the pre infusion steroids. I’ve never had steroids at home only the one at the hospital and yes hopefully you will find sleep much better without. No nausea so fingers crossed that’s a bingo symptom that doesn’t appear again
@foxgem the infusion time for dose dense paclitaxel is 3 hrs Vs the 45 mins for EC hence the longer time just for infusion, @rubytuesday is going the extra mile with the cold cap hence the extended hrs!!
I felt so much better not cold capping this time, it was definitely adding to my anxiety on the day.
Wow, that’s a long session ref Paclitaxel. How often were your cycles? My plan is to have it weekly, the chemo nurses advised the infusion itself is about an hour.
Its fortnightly dose dense, thus the 3h cycle plus the before and after with cold cap. It went quicker than I thought but ws definitely losing the will to live in the last hour
I was diagnosed in Feb with triple positive grade 2 breast cancer. I’m 25 and I’m looking to connect with someone who has been or is going through the same thing at my age. I just had a lumpectomy and will start chemo soon.
@trixie17 my weekly paclitaxel takes 1 hour 10 mins once they get it going. That’s after flush, pre meds then a wait, further flush. Shortest time I’ve been in there end to end is 2 hours 45 mins. When I have the herceptin injection every 3 weeks that’s about another 30 mins. Hope that helps.
Just sending you a huge hug youngpearl. Goodness having to go through all this at your age. What a brave young lady you are.
But please be confident in the knowledge that, everyone here is going through the same thing (with different treatments etc of course), and are all happy to welcome you into all the discussions and support. Cancer shows no age limit. We are all equal on that score.
But yes, its truly hard to be diagnosed when you are just finding your way in life.
My friend had cancer when she was young. She’s still alive and well at 63. Her cancer family included sisters, friends, mums, grandparents, aunties, nieces….it was huge.
Embrace the FAMILY. We are all here to support each other. Regardless of age etc.
I was only diagnosed in January. Mastectomy in February. Treatment yet to come. Its all new to me as well.
Im just finding my feet with the Forum. But you may want to access Breast Cancer Nows Someone Like Me. They match you up with people going through similar experiences. They may have young people on their lists. Or older people who had cancer when young. They are wonderful. Truly wonderful.
Get on their website and search Someone Like Me in the menu.
You can email them or ring.
They are truly fabulous.
Hoping you find someone. But this community is always here. Never forget that.
Hi everyone haven’t been on for a while, good to hear you are all doing okay. Had my 3rd cycle last Friday so half way through, real fatigue this time round, only just starting to feel okay today. New sickness tablet helped me. I have an ultrasound next week to check progress, just crossing fingers it has shrunk. Xx
Hi all, hope everyone is doing well, i’m counting down the days for my last TC on Weds, day after my birthday so no meal out for me the day before im going to pilates instead
Saw the oncologist today to discuss whats next my original plan was to go on and tackle my kidney cancer to remove the tumour and half my kidney and then radiotherapy however the new plan is starting Zoladex injection after my chemo on Weds (I am scared!!!) and they have changed their mind and want me to have the radiotherapy before my kidney op which makes more sense to me. So now I wait for more dates for radiotherapy and operation dates.
and just like 
stay strong. Xxx
im going to pilates instead 
my original plan was to go on and tackle my kidney cancer to remove the tumour and half my kidney and then radiotherapy however the new plan is starting Zoladex injection after my chemo on Weds (I am scared!!!) and they have changed their mind and want me to have the radiotherapy before my kidney op which makes more sense to me. So now I wait for more dates for radiotherapy and operation dates.