Had my last of 4 EC on the 27th December and now face starting Paclitaxol on the 16th January, 9 cycles over 18 weeks.
The EC caused me a few problems, one being an infection on the 3rd cycle, but I got through that and the 4th one has not been to bad.
I was grade 2 E+ H-, my oncoptic test came back as 36, so I’m high risk for the cancer to return, my lymph nodes were clear, but the cancer was deep and I’ve been told there is a possibility the cancer has spread through the vascular system.
I have read all I can about the Paclitaxol and the side effects and it is scaring the hell out of me, I’m 62 and have always been positive thinking, with a wonderful loving husband by my side for 45 years. I’ve always been active walking hills and do a lot of sewing and craft work and now I have to make a decision and I’m struggling.
The side affects will totally change my life, if I get them and I believe in a good quality of life, I can’t face the thought of not being able to sew, or do the long walks we do together, or being left in constant pain in my hands and feet and I know if I don’t continue the treatment, the cancer will return sooner rather than later. I’m going round in circles in my head. I’ve discussed this with my BCN and with my husband till my head is spinning, but I know I have to be the one who makes the decision, but it just doesn’t affect me, it affects both of us.
I’ve spoken to so many people on forums who have had taxol, they have all had peripheral neuropathy from the taxol in some degree or other, but the majority have still got it after finishing treatment some years after, in some cases quite sever.
I would like just one person to say, I’ve not had this side affect, but so far, no one has. So now I feel like saying, no more chemo, just do the radiotherapy and I’ll take my chances.
I need to know, has anyone been in this same position?
Can anyone give me positive feedback regarding Paclitaxol?
I’m not asking for anyone to give advice on what I should or should’nt do, I just feel so alone, I’m just reaching out for a helping hand.