Can anyone tell me if the tiredness/fatigue we feel/felt can rear its ugly head again? I was feeling really great for the past week, but today I feel that horrible fatigue coming back. It is now over 2 months since my radiotherapy finished. Can this happen? My husband says I should “save” my energy when I feel good, but I cant, I have to do things. Do you think this is contributing to it? x
I feel for you! We just want everything to go away don’t we!!!
I’ve got my rads organising appt tonmorrow, I’m still feeling exhausted all the time, my last chemo was on the 2nd.
I just want to feel normal again (Whatever that is, though I know THIS isn’t “normal”) I’m bored stiff of cancer, of it all.
I’ve heard that doing some things actually makes fatigue better. I’m still doing all the housework, cooking, cleaning, washing etc, I do about 1hr a day of that. That’s actually sometimes hard to motivate myself to do that even and really it’s not that bad normally.
i have a wheat intolerance, makes my face swell up, bowels go and i am so wiped out i have to go to be for two days. Sometimes i dont get the swelling just get wiped out for a day and I cannot find when i have eaten wheat so put it down to an occasional problem with corn flour or other starch. That is why i am trying to find a starch free tomaxifen.
today i was walking back from my 8th rad session when i felt as if i had walked into a brick wall, just like a food intollerance, collapsed in bed and fell asleep all afternoon. Fine now, about to go out to band practice and rock the night away.
i am hoping it is food like in the pre cancer days rather than rads, its seems a bit early after just 8 of them.
Im glad im not the only one I was what I thought coping well but this last week I feel like ive been hit by a truck again 5-6 weeks post rads my boob has gone painful & heavy & to top it I cricked my neck & have sinuses grrrr so feeling pretty poopy
I’m writing this from a horizontal position…the only movement I’ve done today is move from bed to sofa and back…wouldn’t it be stupid if I got a DVT…
I’ve only just finished my brain rads but I was told that the fatigue is very varied and having a bad day when things have started improving is normal. I’m waiting for the first good day!
I too have days where I suddenly realise I feel somewhat like my old self, then the next thing I know am doing something, you know, washing up, dusting, pegging washing out, and I suddenly get a wave of not fatigue like when on chemo, but very, very tired I have to sit down and rest for a while then pick up again.
I think you have to realise that maybe for a while at least, you may not be as you were before all the treatment,it does take a toll on your body, its difficult to accept that when you are used to doing things without even thinking twice about it.
What a bummer, it sucks!
Rest, rest and more rest lol zzzzzzzz away x Liz x
Thank you friends. I feel better for knowing I am not the only one. Last night slept like a log and feel better but how long will that last? Not long me thinks. Mekalar: I also have the heavy boob thing too. That had got better too but now has started to play up again. Im OK other than the tiredness/fatigue. I try to explain it to people but it is difficult, because it is not just tiredness. Sometimes I feel I could lie in bed all day long…zzzzzzzz. love and hugs to you all, chris xx
I’m crying as i write this, thank god there’s an explanation for what i’m going through. I thought there was someting wrong again! Finished my Chemo & Rads on 5th July '11 and felt great afterwards. I started walking up to 6 miles a couple of times a week and doing aqua fit once a week to get back to my previous fitness. Then about 3 weeks ago bang, this tiredness/fatigue came over me and haven’t been able to shake it off. I just want to get back to normal, but glad i’ve found an explanation!
All the stuff we’re told includes “it can take a good 12 months to get over chemo and radiotherapy”, but still we want to be on top of the world all the time. Add in not sleeping because of Tamoxifen and there’s no wonder we flop on some days.