Hi, Just a quick update. My DN went away a very happy bunny this morning. She is going to get wool for her new cardigan on her day off and then pop it into me to make it up for her. I love knitting and this means I can do it for free! Happy days lol.
x sarah
Obviously this is groundbreaking news and very important…
Morning Girls,
Well itis an awful day here, really getting dark, as I type this, so looks like a downpour coming!!! I hope is not too bad where you are!!!
Louise you are so right…we do spend half our life waiting!!! Everything crossed for you on Monday,and hope that the wound is healing and the rads can go ahead. xxx
Sarah…definitely ground breaking news!!! so pleased that you are in good spirits, and long may those se’e keep away!! Thanks for the info on the gilet!
M1yu wonderful news about your visa, you can now relax,and concentrate on getting your life back!!! You will absolutely love Scotland, the scenery is out of this world!! I am sure Anne will come up with some good suggestions!! Going to be another busy week for you!!!
Anne hope all goes well today, have a great time with your girls this weekend…let them spoil you! I am thinking of you as always,take it easy, and get as much rest as you can. xxx
Dianne, hope you are okay, you haven’t posted for a few days, thinking of you xx
Roz, how are you, do hope that you are on the mend. xxx
Hope things are okay with everyone else,thinking of you all, and sending lots of love and hugs, Mary xxx
hiyyyya all you lovley ladies,
ok its 140am,first things first i hope each and everyone of you are good, as for myself and maryanne we went too the hospital a week ago and we had a bone infusion it went as well as could be expected i guess just made her real tired, chemo is working as far as im aware, numb chins gone, not coughing nearly as much and we can walk for ages, since then we been on holiday too cornwall, rain , rain, rain, and yep a bit more rain!!! oh and some wind for good measure!! but when you have a massive MINT CHOC CHIP AND FISH AND CHIPS on the go do it really matter?? all i will say i dont think i / we have much chance of being anorexic lol!!! main thing we enjoyed ourselfs .got a virus also on the pc so had no chance in logging in still sorted it now anyway again i hope you are all well and i need too get some kip so love and wishes too each and everyone of you. wayner
each day passed is one closer too a cure
Hi everyone,
Tis 8.15 on Sat morning and I feel as though I’m emerging from a nasty dark place, finally. Chemo se’s seem better today, thank the lord! I spoke to my onc, by phone, on Thurs & it doesn’t sound very hopeful re sorting out chest fluid, she’s pinning everything on chemo doing the trick before even looking into any alternative.(she wasn’t in the best of moods, so difficult to discuss further!) I’m going to speak to my GP re this, just in case I can be referred elsewhere for a second opinion.
Wayne, good to hear from you, especially with such positive news! PCs are like cars, great when they are working, a pain in the neck when they aren’t!
Mary,long may your “normality” continue, make the most of it!!
M1yu, So pleased about your visa success, what a relief for you & your mum. Is the application something you have to apply for regularly, or is that it now? Hope your busy week is a good one.
Sarah, you sound fantastic, so happy and in such good spirits, it’s wonderful reading your posts…keep it up!! Sorry if I’m being dumb, but what is DN ?
Louise, Good to read your very accurate rant! Let us know how Mondays app goes, so pleased things are progressing well for you at the mo.
Anne,How are you? Hope your chemo went well and se’s are minimal allowing you to enjoy your weekend with your girls. My eldest daughter is staying with us at the mo, she’s taking a break from her fiance, which is a bit of a worry. They were due to marry in April next year,but have put plans on hold!This has all happened since I’ve had to restart chemo, she’s struggling with her feelings and it’s put pressure on their relationship.
Roz, how you feeling,I’m hoping you are on the road to recovery.
Dianne, where are you!! I’m not used to silence from you!! Bet you’ve been having a a great time! I look forward to reading all your news.
Terri, hope you are managing to cope and remain positive. (I need to take my own advise I think!)
To everyone that pops on this thread,have a great weekend, weather looks promising and I’m hoping to venture out for a short while to make the most of it.
Love Sandra x
Hi all,
Lovely to read Wayne’s post - glad you have finaly had a chance to get away and enjoy yourselves - long may it continue.
Sandra, glad the se are easing, I used to try to do too much too soon and find myself back in bed for another day so look after yourself
M1yu - enjoy Scotland - I too am planning 5 days in Edinbourgh once rads are done as we had to cancel our Spain holiday recently
With regards to ranting, I suggest setting up a rant meter as a good gague to how well we are feeling and score each other, based on the fact that you can’t rant properly if you are feeling sh*t! Just kidding! I was just thinking back to the ‘chemo has sent me gormless’ thread we had last year where I was very impressive with leaving the car running, unlocked in a car park while I did my shopping. I’ve just swopped gormless for ranting!
Have a good weekend all and I’ll let yo know how Monday goes.
Louise
Hi Everyone,
Welcome back Wayne, we were all wondering where you had disappeared to, now we know …Cornwall!! So Pleased you and Maryanne,got away for a break, shame about the weather, but you managed to get over that with your MINT CHOC CHIP!!! I am so pleased that things have settled down for Maryanne,and you can enjoy your walks again! Long may it continue!!
Sandra I am pleased that the se’s are settling, and you are emerging from the dark place!! I have an onc like yours, if he is in a mood watch out!!! I would definitely have a word about a second opinion! You have been through such a c…p time lately, and we have enough to put up with,without having to worry about our oncs moods!!! I hope enjoyed your outing today! xx
Louise Hope all goes well on Monday,will be thinking of you!! Rant meter,what a good idea!!! Take care xx
Thinking of you all, and hoping you have a good weekend, lots of love and hugs, Mary xxx
Hi everyone,
Sorry I haven’t posted for a few days, just been busy with appts for me or partner and everyday stuff, don’t seem to have any free days at mo! However, even if I don’t post, I do pop on most days to keep my eye on you all and keep up to date with all your news!
Too much to respond to individually but glad to hear from Wayne with good news. Congratulations to My1u on visa. Hope the colds have cleared for all those suffering. Hope SE’s are minimal for all on treatment.
Enjoy the weekend dear friends, much love to you all xx
hi all
Sandra: DN is my short cut for District Nurse, I have a tendancy to shorten stuff. The one I usually have , to give my white cell thingy boosters, is so lovely. We have a bit of a natter of a morning.
I have had a good day today, went to see RED at the cinema. Went to a matinee showing and it was almost like having a private screening lol.
I would recommend this film, its real escapism and I laughed loads at it.
Tomorrow will see me getting ready to watch Coventry Blaze Ice Hockey at the Skydome. It’s such a good night. Wednesday I am off up to Norfolk for a week, getting back in time for my onc appt next day. I will then be told whether its another FEC or the hard stuff: tax and Herceptin. OOOOOOOOOOOOh the anticipation.
I have finally decided what to do for Christmas pressies. I have a variety of tree decs to knit. Now ladies, this is not so naff as you might think. I have a pattern for a knitted gingerbread man, and plan to embroider some interesting expressions on 'em, equip them with pretty ribbons so they can go on the tree. I shall probably knit a few tiny christmas bears too if the gingerbread men get boring.
Very glad to hear from Wayne. Glad things are going well.
Have a good rest of the weekend all
x sarah
Hi Girlies and Wayne, sorry I haven’t been on site for a while. I seem to have been really busy doing nothing. Hope you are all well, haven’t time to read through all the posts, although I did notice that Wayne is sounding cheerful which is great.
I was a bit sickened by one of the threads on here and partlyas a result of this thread one of the lovely ladies has left here permanently which I think is very sad. I won’t mention which thread it was, but I found some of the comments extremely distasteful.
Anyway, enough of that. Sarah, Mary, Anne, Louise, Roz, Sandra, m1yu and anyone else that I’ve missed out. I haven’t forgotten you and I’m thinking of you all.
I’m off to a Victorian market in the town this afternoon. It should be really nice as all the stallholders are dressing in Victorian costumes. (Pity we can’t pay with Victorian money…) Then we’re going for an early dinner at a nice restaurant, then back home to watch Strictly and X-Factor results. Hope you’re all having a fab weekend and Happy Halloween to all of you. Mary and m1yu, I’ll see you in Fairyland and Anne, thanks for your lovely message.
Loads of love to you all, Dianne x x x
hi all dianne i think i know which thread you are talking about and agree totally. i have heard that there aare sick people out there who come on these sights to cause hurt.
well been out a couple of times this week which is good only in the wheelchair but it was better than nothing.had my lung drained again on friday which is delightful. but i can breath a bit better. next time i have to have a pluredesis, which i am dreading but looks like it isnt going to go away. Also saw my onc and he agreed about having the pluredesis done. He seems to think that the tamoxifin has softened the breast lump a bit but needs a bit longer to see if it is really working. nice to hear from wayne and that marianne is doing ok.great that you got away to cornwall. i hope that you are ok and send you all love.
a
Hi Jodie and terri, I know the thread you have both mentioned as I contributed to it. For me I could not ignore a cry from the heart, which is how I interpreted the posting from another forum user with young children. I have read and re-read the thread, in fact I have agonised over it as I have read comments about it on various other threads. I don’t believe anyone was, is, at all unsympathetic to the original poster, breast cancer is truly awful for all, whatever your age, 19 or 90. I truly do not believe anyone was posting to deliberately cause hurt and it saddens me greatly to think others may think this. My sincere and very best wishes to you both…xx
hi belinda im very sorry but i think i was thinking of another thread a couple of weeks ago which was very hard to read and the person concerned actually removed it. i do however know the one you are talking about ,as you say this illness is hard for all of us, and though the coment was a bit insensitive i understand the frustration.Well i think no more said, lifes too short. take care and good wishes.
Hi all,
Just back from the hospital where I was unfortunately told that the scan I had on the morning of my op showed that a second brain lesion has developed. Its tiny, 5mm, too small to operate on at the moment and should be zapped by the rads that start next week. No change to treatment plan but very disappointing. I am assured that there are lots more options including surgury in the future which I’m pleased about but this disease does seem to be progressing in my brain and I don’t know how to stop it!!! I’ve often read here about peoples’ frustration with the use of phrases like’battling or fighting cancer’ and I know what they mean today. I can’t do anything just submit to the next on slaught. Bring on the rads next week
Hope you have had a better day than me.
Louise
Hi Louise,
Just popping in to say that I’m sorry to hear your news. Hope the rads will zap it. I’m thinking of you all the time, esp next week. Hope it goes well.
Didn’t have a good time at the dentist today. Thought it was the last time I need to go, but they didn’t reserve a long enough slot for me, so have got to go back on 20th Dec!!! Just took temp filling out, took pic and then put temp filling back in!!! What a waste of time … Why didn’t they think??
Thinking of you all & take care xx
hiya all you lovley ladies
ok when i say this i dont want NO one getting the wrong end of the stick ok!!! anyway cancer awareness day at work today everybody has too wear something pink as useal i go over the top and borrowed maryannes bikini DAM i got too say it cut in LOL now i know what you girls go through and being a skip driver they all thought i came out the closset whats all that about? lol. still at the end of the day we raised loads of money towards this scummy S**T!!! so thats good even if maryannes starting too ask the odd question lol!!.
hi diane
dont worry too much about doing nothing its not that bad if im honest i do it quite a bit now!!, dont worry about that other thread you know what they say if you live by the sword you will die by it! this is one of the only poxy things thats not racist, agist, and dont care who it affects and if who ever it is is dumb enough too take the P**S then i pitty him / her just a (SADO) ok off the soap box, anyway diane be good and stay well,
terrie
i hope you are doing well and again dont let idiots get you or anyone down stay well,
louise
so sorry too hear about the scan, im sure sure it will be ok when treatment starts if you want too shout we are all hear too listen so dont worry, love and best wishes too you,
m1yu
flipping heck, dentist im sure they say you need a filling just because they want too hit the £50,000 mark a year i mean how would you know if you needed it or not? i thought my teath were fine but he rekon i needed a filling so i did not go back lol anyway hope you are doing good,
julie
i know what you mean about free time!! WHAT FREE TIME!! i dont seem too get any either if its not this its that! if its not that its this! just need too take out an hour a day feet up and coffee and some loose women going on lol, hope you are doing well,
sarah
red at the cinema, sounds good but then again i watched calamity jane last night god how sads that but if im honest with my girlie side going on i.e. my pink bikini i bloody enjoyed it lol!! hope you are good,
anyway ladies if i left anybody out i appologise so be good and be safe,love and wishes too each and everyone, wayner.
each day passed is one closer too a cure
Hello my darlings!
Firstly I’d like to shout lots of swear words! I’m so sorry about your scan result louise.You must be absolutely gutted. However, try not too let it get you to you too much, as you say it is v small and the rads will zap it, I hope this week goes quickly for you so that treatment can begin, I think it’s easier when you know something is being done. Also try to remember your team seem quite positive about future treatment possibilities if necessary and that in itself is a positive to hold onto. I will be thinking of you. Sending big hugs xx
Wayne, you make me laugh! I can picture you in a pink bicini with DMs on your feet and a mug of tea in your hand, lol! I love Calamity Jane.
M1yu, sorry about the dentist, what a waste of time and a nuisance! Hope rads ok.
Dianne, just seen your cruise pics on FB, ship looks lovely and so do you!
Anne, hope cold has gone completely now. Sorry you didn’t get away but sure you will have enjoyed the break from work. How’s the new treatment? Hope se’s not too bad. Take care of yourself and rest when you can.
Mary,terri,sandra,sarah nicola and anyone I’ve missed hope you’re all doing ok, thinking of you all. Love Julie x
Hi all
Thank you all so much for hugs and thoughts. We have decided to go up to Edinbourgh this afternoon till the weekend so that we can squeeze a holiday in before rads start. It will be a good diversion if nothing else.
Have a good week
Louise
Hi Louise.
I’m with Julie, I want to use a lot of expletives as well!!! So very sorry about your latest news,but you have to hold on to the positives, your team have said there are things they can do in the future,if need be!! Hopefully the rads will zap the bugger!!! I am so pleased you are getting away, it will do you good,spoil yourself. It will help the time pass until you can start treatment. Thinking of you, lots of love and hugs xxxx
Thinking of everyone, will post later, lots of love Mary xxxx
Hi everyone, my goodness what a lot of posts there has been since last time I was on, I have had the dreaded cold but feel much better now, had to get out of my sick bed on thursday to get my yearly bone scan done, wont know results for another two weeks, but I have been to the hospital today as I have fractured my big toe, to cut a long story short I dropped a table top on it on sunday and let out the biggest scream, went to A&E and the put on this awful soft cast and it felt worse with that on than it did without it. Had to go back today to see consultant who told me what I already knew, I had broken it and it will have to heal on its own, but had the cast taken off, he asked if I wanted a boot on or it tapeing to the next toe, I opted for the tape version, so I am hobbling along, was meant to be going xmas shopping tmm but had to cancel. Good job my daughter is now off her crutches and can help her mum!!!
Anne, so sorry that you didnt manage to get away in the van, wasnt that cold a bummer?? your household sounds just like mine with the both of you out of action, took your advice about the telly. If I have worked it out right you will now be back at work so hope you are fully recovered. Its a worrying time when they change your meds but I suppose it shows that they are keeping a good check on you, hope all went well on Thursday.
Sandra, Well what can I say that the others havnt, I am truely disgusted with your treatment, dont we have enough to put up with. I bet you enjoyed your KFC I love them two.Have you got any followup appointments yet?? good you managed to talk to you onc, lets hope that the chemo does the trick regarding the fluid as you do seem to have been through the mill iwth it all.
Terri, I have read on a few threads that a lot of ladies take antidepressants to help with the se’s we all seem to get and that they seem to work well, my advice would be take whatever it takes to make you feel better.Good to hear that your onc thinks that the meds are working.
Sarah, you made me laugh with the comment about your onc smiling at you, mine is a very smiley man, and always seems to be in a good mood. Did you get a new gilet?? your style sounds great will have a look on the web site you recommended. So glad to hear that you seem to be avoiding the se’s. long may it continue. I am sure your men folk love you arranging their lives.
mary, I hope you are still feeling upbeat, thank you for your lovely comments regarding my cold, we are both much better.
m1yu, I am so pleased that you visa application has been a succes, at least that is one less worry for you and you can concentrate on feeling better, yes go to scotland it is the most beautiful country, I am biased as I was born there nad it always feels like I am going home when I go back. You and your mum will love it. Sorry to hear you had a wasted juorney to the dentist, have a good appointment with the onc on wed.
Wayne, so gald that you and Maryanne had a lovely holl, it will have done you both the world of good, Maryanne sounds as if she is doing well with her treatment now, long may it continue. I love fish and chips, we have some lovely fish and chip restaurants around us, they all get their fish from grimsby as it is not to far away. Would have loved to see you dressed up in the pink bikini, you know when you get pictures in your head!!! glad you raised lots of money it all goes to finding a cure for this crap we put up with.
Dianne, I to read that thread and thought the same as you. I read about the Victorian Market in Louth on Sunday, was it good??? I bet you didnt leave without buying something!!! Hope you had a nice meal, I missed Strictly and x factor results as I was in A&E from 6pm till 9.10pm, oh joy.
Louise, god this disease has a way of making it very hard to be positive, but we have to find the good things and keep hold of them, I know you must be disappointed, but I am sure that the rads will do the trick and as Mary and m1yu say ‘zap that bugger’, sending you hugs and xxxx
Have a lovely time in Edinborough.
This has turned into a VERY long post, that will teach me not to leave it so long, Love to Nicola, and Julie, dont think I have missed anyone, but if so hope you are all keeping well.
Lots of love Roz xxxx
Hello my darlings, Lovely to read all your posts. First of all Belinda, I understand the fact that the poster was scared and frightened by this illness and so are we all, but I still maintain it was an ugly thing to say and I am still disgusted by it.
Louise, I’m desperately sorry to hear your news, I really hope you enjoy the time in Scotland (fab place) and it’s good that they think it will be zapped by your treatment. Don’t give up hope my darling, you’ve been so brave and I’m sending you loads of love and hugs.
m1yu, what a bummer at the dentist, you always seem to be the one who gets beset with problem appointments. So sorry to hear about yet another one. Great news about your visa though, what a relief. Thankyou for the lovely comments re my piccies on FB.
Mary, it was great to get your e-mail, hope you are feeling good today and stay upbeat. How’s Fairyland treating you?
Roz, poor you, in the wars again! Hope the toe is feeling better today and that it won’t stop you hobbling to meet me in a couple of weeks time. (I’ll understand perfectly if it does though, no probs).The Victorian Market was very nice, although not as good as the Xmas one, we stayed out far too long and drank far too much wine, but the meal was lovely! (I think…)
Terri, glad you’ve managed to get out and about a bit and that your breathing has eased. Long may it last.
Wayne, you sound as if you and Maryanne had a good time at the cancer awareness day. Now you in a bikini - that’s a pic I would like to see!!!
Julie, thanks for the lovely comment about the pics (it took ages to upload them and I still haven’t put them all on) Hope you are ok today.
Sandra, hope things are improving for you and that your treatment gets sorted out soon. It’s disgraceful that you have to put up with rubbish like that on top of everything else.
Sarah, hope all is well with you today.
Anne, hope you are alright sweetheart, thanks for your messages on FB. Always great to hear from you.
Well, not much to tell really, busy as usual. Had my blood test on Monday and will see the Onc next Monday for the dreaded result! Managed to go shopping yesterday and bought some Ugg boots. Was supposed to be going Xmas shopping and then I thought ‘Sod it, I’ll buy myself a present’ - selfish little git!!!
Hope I haven’t missed anyone out, as always I send you all my love and hugs. Dianne xxxxxxxxxxxxxxxxxxxxxx