Thanks a lot for reply and support.I lived and will live in Lowestoft.My GP is very good and I believe him. He sed I can to continue treatment in James Pagett hospital centre.I can to choose between several doctors(onkologists).I do not know which doctor is better.First of all my English is not very good and for this reason I would like to choose careful and courteous doctor. How you thinking - is it possible? Maybe you can to recomend doctor.In Baltic Republics (in Latvia)I could to decide between 7 doctors - onkologists. Sorry for my language. Have I had a lot of mistakes? I try as I can.
Hello My Darlings, Just thought I’d pop in to see you. I’ve just skimmed over the last couple of pages and wanted to say to Nicola how very very sorry I am to read about the progression to your liver. I know how frightening it is for you and having to face the chemo again is dreadful. However, you’ve done it before and you can do it again. M1yu and myself have both been through this crap with the liver and we’re both doing ok so try not to let it get you down too much. (Stupid thing to say really, but I don’t know how else to get it across to you that it’s not a death sentence, it’s just another nuisance to get past and you will do it hon, you really will.) You’ve been so strong and brave in the past so don’t give up hon, don’t let it defeat you. Please know that I am thinking of you and sending you loads of love and hugs. If you want to write to me privately on Facebook please do.
To everyone else, including the newbies, I hope you are all ok today. Mary and M1yu, see you in Fairyland and I’m thinking of you all and sending loads of love and hugs. Dianne xxxxxxxxxxxxxxxxxxxx
Wayne, I see you’re doing lots of reading for your wife. My mum does lots of it for me, too. Then she buys this and that for me. Not sure what has worked, but I’m def feeling a lot better than before. Who cares anyway! lol.
zibzab, it’s good to know you can choose your own doctors. On the language part, English is my second language and I had a lot to learn. I didn’t think even English people heard of those drugs before they got cancer! Just let the doctors write them down for you and then do some research or ask on the site, someone will come along and answer your questions. As for other things like surgery, if you don’t understand, ask them to draw a picture. Always take a pen and a piece of paper, write down all the questions you want to ask before the appointment and write down the answers. That’s how I understood what they are going to do - pictures, just ask them to draw pictures if you don’t understand.
Dianne, good to hear from you. And that the Arimidex is still working for you. Long may that last.
Wayne good to hear from you! I agree with you sentiments, you can bet your life, if it was one of their loved ones, they wouldn’t have to put up with the cr…p we have too!! I hope Maryanne is getting on alright with the hemp oil, I haven’t had a chance to look it up yet, but will do sometime!!
Julie been thinking of you and your appts, hope you managed them, and everything was okay!
M1yu hope everything is okay with you, how is your lympo?
Nicola just seen your latest news on Fb, so pleased you haven’t had to have chemo…that’s a result! Hope you get on okay with the injection, I didn’t get on very well with Aromisin or Fermara, and it looks like Tamoxifen might not be working either , scan on Friday, so we shall see.
Dianne hope you recover from the effects of the flu jab, I have them, and am lucky that they don’t affect me,hope you feel better soon! xxx
Anne is home!! she returned home yesterday, and she is feeling good!!! I expect you will hear from her, when she has a chance to settle!!
Well my dears, thinking of you all,lots of love and hugs, Mary xxx
Just back home, been out this evening and had a really busy day with normal activities. Enjoying the new normal! Just feel like to hibernate in this weather!!! My lympo is getting better, thanks for asking, Mary. Getting better with the exercises. I surprise myself sometimes, lol!!! The self massage is so relaxing that I can fell asleep sometimes halfway through… or is that me wanting to hibernate???
I’ve seen Nicola’s news on FB, too. Excellent!! Now you can enjoy the holiday with your family without the se of chemo!! Still don’t understand why they can’t do RFA though. But hope yours just melt away like mine with the treatment they’re going to give you.
Dianne, sorry about the se of flu jab, I didn’t have it this year. Maybe I should? My WBC count has been going down since the end of chemo somehow.
Good to know Anne is home and feeling good. Looking forward to hear from her.
Mary, will be thinking of you on Fri. Praying for good results…
Well, my tumour marker came back today as 8!!! I had the counting down from 10 for 2 months in a row now. Hmm, would it come back as 7 next month??? Anyway, I’m glad that my hormonal treatment is doing its job.
Thanks for all of your messages and support both here and on facebook. I feel back to my normal self again after seeing the oncologist, he has alleviated my fears a bit. I have had a bad week emotionally and shed far too many tears, but I seemed to have pulled down the emotional shutters again and feel strong and ready to get on with life again.
I don’t know much about Faslodex, but need to take hope from M1yu and Dianne’s hormone treatment successes. Mary I also hope that you put your mind at ease and discover that yours has been working after all.
m1yu - I can’t have surgery because the spots are in 2 different places. RFA isn’t totally ruled out, but is not appropriate now because the disease isn’t stable everywhere else. I guess he meant that if they zap those 2 spots more will just grow anyway.
hiya all you lovley ladies
ok just a quikie while im having a dinner break ,if im begining too get on anyones wick please do just say and ill SHUT UP!!!, ok the only other thing ive found too come remotley close too DCA believe it or not are apricot seeds BUT YOU MUST NOT TAKE NO MORE THAN 6 PERDAY!!! also they must be RAW and they taste like s**t (VERY BITTER)theres only a couple of places in the U.S.A that you will get these as per normal the good old u.k. government cant help them selfs so they wont help us either im afraid, in saying that the only seeds you can get in the u.k. ive seen are baked and these have all the goodness removed!!! also one other thin is a vitamin called B17 Amygdalin, Laetrile and as far as i can see this comes from the US also ,just put any of these in the google, yahoo, wickepedia, all you need too remember you will only get theses from the states as far as ive read, and the seeds MUST be RAW!! you will not get them in the good old u.k . i hope this helps love too each and everyone,
wayner each day passed is one closer too a cure
Interesting about apricot seeds. Is this the same as apricot kernels?? I started taking them not long after I was diagnosed. I get them from an organic shop called Harvest (I’m blessed to live so near it). But, goodness me, they’re expensive!!! I put them in home made smoothie, mainly because I’ve got very bad teeth now. Every time I buy it, I was told to eat no more than 2 a day. Sorry if it’s not the same thing, but it’s one of those “wonderful things” I’ve been suggested.
Hi Wayne and everyone - I found bitter apricot kernels through ebay. Not expensive. A lot of the advice you have been reading can be found on the net or in a book by Ty Bollinger called ‘Cancer - step outside the box’ These ‘treatments’ are quite controversial and most medics dismiss them as nonsense. The apricot kernels contain cyanide which is apparently transported to the cancer cells and kills them. You can build up to around 20 or more per day apparently. I have taken up to 10 a day with no ill effect. Who knows whether they work or not! I did loads of reading and research for my niece and got her bitter apricot kernels, zeolite (cliptominite) powder, MSM powder ellagic acid and essiac tincture. She’s not had any real benefit from these but I guess it varies from person to person.
love
alex
x (sorry for butting in on your thread)
ok alexmay09 you are quite right in saying they have cyanide in them, but i will tell you all now ,my friends wife is a chemist and today after i left the previous message i did phone her too ask about this and she said and i quote ( you will not get the VITAMIN B17 in this country AND the APRICOT SEEDS you will also NOT get in this country i.e. RAW ) you can get them baked dryed but then she said they are not worth a bag too put them in the bin basically useless!!! i found 3 sites that do this and i placed a order last night i think it was about 96 but my friends wife did say you need too watch how many you take if they are raw as they can make you bad according too the site its 5 every morning ,the best thing everyone can do on this one is have a good read as there is plenty on this subject of apricot seeds and vitamin B17(amygdalin) and weigh things up for yourselfs, anyway i hope this helps love and wishes too each and everyone of you,
wayner each day passed is one closer too a cure
Just pooped in to share some good news! I had a scan this morning
and the doc has just phoned with the results.there has been no progression, and the lymph node in my chest has disappeared, and the one under my arm has shrunk,no other organs involved!!! I am so relieved as you can imagine!! I have been feeling so unwell the last couple of weeks, and what with my markers going up, I really thought the news wasn’t going to be good!!
Thank you for your support,and good wishes…don’t know what I would do without you all!!! Thinking of you all,and sending lots of love, Mary xxx
Hi Mary, Fantastic news for you and coming just at the right time so you can really celebrate this Christmas. Have a great one. We will all raise a glass to you tonight. Thanks for sharing good news with us. Love Val
WOW!!! mary now thats what im talking about !!! just so happens im going for a drink tonight and you can bet your bottom doller ill have a few for you and you make sure you do the same you deserve it!!! love hugss and wishes too each and everyone,
wayner each day passed is one closer too a cure
Mary,
That’s great!! Thanks for letting us know. So very happy! Have a great weekend you deserve it!
Val, hope you get equally good news next week.
Wishing everyone a relaxed, painfree weekend.
Lots of love Julie xx
Thanks for your words of support ladies. I don’t expect to hear a thing about results for 2/3 weeks so won’t have any news to share for a while. I get claustrophobia in the machine but I have a pill to help out and I will be keeping my eyes tightly shut like I did last time which worked. But will be glad when the MRI is done. Enjoy your weekend whatever you are doing. Love Val
Excellent news Mary! I am so pleased for you.
Val, do your MRI people allow you to play your own music? That might help a bit.
Hope everyone is having a good weekend.
I went shopping to Banbury yesterday and it was lovely. I felt almost normal.
Hoping to be off to hockey tonight. I missed the last game 8-(
Glad that its not so cold though.
x sarah
hiya all you lovley ladies
i hope you are all ok , seems like a bit of a ghost town still so they say no news is good news i hope!!! ,
ok myself and maryanne went for the 5th course of xeloda today, god its gone quick, things seem too be improveing i.e. markers are falling, the only thing theres a slight fluid build up in the right lung (not sure how too take this chemo working or not?) ,anyway, having ovaries out in the new year too stop the estrogen so should be a bonus, but then he said could stay on xeloda for 18 courses?? god dont these people talk in riddles!!! oh i asked about the raw apricot seeds he said loads of people take hem but he did say the same as i read, dont take no more than 5 perday as they contain cyonide!!! hells bells and apricot seed with cyanide well nothing ventured nothing gained,
anyway ladies its bitterly cold so be sure too watch your selfs its not worth taking the chance ,i hope you are all getting ready for christmas and speak too you all soon,love and hugs and wishes too each and everyone,
wayner each day passed is one closer too a cure
Hi everyone, I got results of MRI last night. I phoned my BCN on Thursday to ask her when I would get results. My Oncologist phoned me at home last night to tell me nothing new found. I am so relieved. My next appointment with her is in January. Just thought I would let you all know. Love Val