Hi everyone. I’m am never sure if I should post good news but I know I like to read good news so I thought I would post how I feel at the moment.This time last year I was on chemo hoping it would kill the liver met found in my liver. After 6 docetaxols,Pertuzumab and Herceptin the met had gone, great. Continue on Pertuzumab Herceptin and Tamoxifen. Had a few ups and downs since, periods came back,scan picked up possible bone met and generally never thought I would feel like my old self. Well hopefully periods now stopped, possible bone met turned out to be a healing fracture.I sometimes hate saying it out loud because I feel like I.m tempting fate but over the last couple of months I feel more and more like my old self before cancer (apart from itching from the Tamoxifen,a small thing to cope with). I have an appointment with the onc in the nxt couple of months but no scan results to discuss so its just a chat to see how I am so no stress.I am hoping and praying that I am lucky enough to have dealt with the mets and stay NED for a long time and the more research I do the more ladies I discover at stage 4 that stay NED for years and years. I am even considering having reconstruction which I never thought I would do.I have gone back to work and running around after the kids and planning for the future within reason but I do very much believe you should live for today.I know there are never any guarentees but today I feel like me and not owned by cancer. I have been told time and time again that stage 4 cant be cured but medicines move on so one day maybe stage 4 will be cured. I know so many primary ladies that live in fear that their cancer will come back when they finish treatment, I meet many of them at the chemo ward. So I look at myself as one of those ladies where chemo has dealt with the cancer and I am lucky enough to stay on treatment that presently gives me next to no side effects. So I will keep taking my meds and hope they keep the cancer away. But in the mean time live is for living with or without cancer.
That’s great to hear Elliedog. Long may it continue! Xxxx
Oh,Ellie,thanks for posting that’s fantastic news,you go girl. You and NED will have a long relationship .
Massive hugs ,Helen xxxxx
Wow Elliedog this a very positive news. Long may it continue x
Hi elliedog. That is fantastic news! Hope you stay NED forever!?
Love Sheila xx
Hi elliedog
so pleased to hear that you’re feeling so well! As someone who has only been diagnosed with lung mets 2 weeks ago, thats just what I need to hear
My bc nurse told me that she attended a conference in March where there were a few professors giving talks on metastatic breast disease.
The most encouraging part of the day was when they stated that there are now so many more ladies surviving longer these days with mets, can we now stop calling it an incurable disease and instead now class it as a chronic managed disease.
I have been so frightened I cant begin to tell you. Not seeing the Onc till 10 june for all my results and treatment plan so may feel a bit better then. Going to Greece then for 2 weeks on 16th. Hoping that will do me and hubby the world of good.
Long may you continue to do well!
Love Bev
Hi elliedog
I so hope youre right about being here next year and 10 years on hopefully!
Im feeling really fit and well…in fact better than i have been in ages…exercising more and eating healthily. Although i always have.
I had TNBC in 2005 and had lumpectomy but no node involvement. Then a new primary er+ under my lumpectomy scar in 2009! Again no nodes affected but had mastectomy and axillary clearance for peace of mind. Had lat dorsi recon in 2011 and have been feeling great! This came like a bolt out of the blue. I never thought this would happen to me.
But like you i have an excellent team based in the Velindre Cancer Centre of Excellence in cardiff and have every faith in them.
My bc nurse said i have a huge ++ in my favour in that im so well at the mo…apart from the cough which isnt too troublesome. And she said that there are quite a few ladies under her care who are coming up to 10 years with lung mets…its so encouraging abd i just want to be one of them.
Its stories like yours that “keep us up there”!
Do you take any supplements while on treatment…ive mixed feelings about that.
Take care…lots of hugs
Bev