Hi There
I am new on here, I was diagnosed with stage 4 breast cancer in 2018 aged 45 and have gotten by previously by following secondary cancer influencers on instagram- in the past 18 months out of 10 I followed 8 have now died, 2 in the past week. I have no in person friends with cancer although I have amazing friends, sometimes I just need to listen to someone who just knows. I am feeling very fearful and as these numbers dwindle its a crushing reminder of what having stage 4 cancer means, any one with similar feelings please reach out, I would be grateful.
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Welcome you will get lots of support here from people who understand . There is also a secondary private group you can join.
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Hello KLM
I hear you loud and clear. I was newly diagnosed in June this year, that my 2019 Primary Breast Cancer has now spread to my lungs. I was originally told surgery was the plan, but that has since changed to a three month process of targeted drugs and hormone drugs.
I fully understand how distressing it is to befriend people who support you through this awful disease then for them to pass, and left you both grieving the loss of a confident, but also someone who walked in your shoes.
I myself being a Man have a double whammy thing going on….there a very few other men who’ve had Breast cancer to talk to and even fewer with Stage 4, and like your good self those I did know with stage four several have died.
The nature of a stage 4 diagnosis will always bring with it loss, I’ve pysched myself up for that, but it doesn’t make it any easier …
Very few ladies seem to engage in dialogue with me often not wanting to be singled out as the lady who talks to the solitary bloke. So that often leaves me with very few respondents at all.
I do know how you feel. I’ve been there…
Kind regards
D
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Hey
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Hi klm
I felt the same when I had my secondary diagnosis. The only two women I’d known personally with stage 4 BC had died within months so I thought that would be the same for me.
I’m now nearly two years since I started my secondary BC treatment and I’m still well and here.
I had to have counselling at the time of my diagnosis just to work through the impact and deal with the grief of losing the life I’d planned. It helped a lot and it’s still hard but is manageable.
It’s hard to see our other BC people die. Everyone’s experience is different but I’m making the most of the time I do have left and staying hopeful that my current treatment continues to work, and when it stops working there may be something else.
I hope it helps but get all the support you can and be kind to yourself.
Best wishes, LisaG
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Hi Lisa
Thanks so much for your kind message, the thing is I believe in living positively and I always have hope, I think have just had too many knocks in a short space of time. In my area there are no face to face support groups and just longing to be on the same wavelength of someone who knows what it feels like.
Thanks again, Kirsty
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Sorry you’re feeling so alone. I also follow lots of cancer accounts and seeing fellow thrives die is a reminder of the eventuality that will be waiting. I’m always looking for friends walking this journey- plesss feel freee to inbox me. @klm 