Not been on here for a while. I’ve had neoadjuvant chemotherapy (had total pathological response), followed by surgery and radiotherapy.
I’ve had phesgo before alongside chemotherapy, but chemo made me so ill, it’s difficult to know what side effects of the Phesgo were.
After a break I’ve now started back on Phesgo every 3 weeks for a year. Had my injection on Monday (I assume a loading dose as I’ve not had it for a while now), but by Wednesday I started to feel a bit nauseous, followed by diarrhoea and now heartburn. Not sure if it’s the Phesgo, and feeling a bit daunted at the prospect of feeling like this every 3 weeks for the next year! Has anyone else experienced this on Phesgo?
Hi, I had side effects during chemo but didn’t know what was from that and what was from phesgo. I’ve had a couple phesgo jags on their own now and also felt nausea and had diarrhoea (on/off). I wrote down when it happened and what I’d been eating as it seemed more frequent than during chemo, and I noticed that it was after I ate certain foods. I’ve cut them out the last few days and been much better, so maybe just keep track of things and see if you’ve developed any sensitivities/intolerances as well? I think chemo messes with our guts so much it’ll take a while for it to go more normal (especially if still getting phesgo jags).
Other than that, I contacted my chemo ward and got tablets for nausea and am using Imodium when I need to for the diarrhoea. It’s so weird as now I’ve found some triggers that make it worse it’s definitely more manageable. Definitely make your ward aware though as it’s better to discuss and get stuff to help you rather than suffer!
I had Herceptin alone not Phesgo which is Herceptin and Perjeta and I always felt unwell for a few days after my injection. Generally diarrhoea and flu like symptoms. I remember that nausea is a common symptom but I didn’t get it. I already take omeprazole for indigestion so I didn’t notice that.
There is a thread with HER2+ buddies where some are on Phesgo others Herceptin. They might be able to answer you question. It’s a really friendly group.
I am 11/18 Phesgo down. Like you I had it with neo-adjuvant docetaxel then a 5 month break for EC chemo and surgery (also got total path response - hurrah). I found the loading dose on the restart certainly made me feel worse than the subsequent ones. I still have to manage my energy levels and I’m getting some skin reactions (possibly from the Pertuzumab element) that I manage with steroid cream. Yes I occasionally get diarrhoea, but there is usually a precipitating factor (spicy food, flu jab, etc). Hopefully you will find the remaining injections a bit easier. Hang in there!
