Hi, I am new to the forums. Have been on Femara for 3 weeks after finishing chemotherapy for secondary breast cancer, now in my liver. I have been feeling so nauseous but my oncologist seems surprised by this as says not heard of before. Are now trying me on different anti sickness pills but not really working. Also got sweet taste in my mouth & everything tastes sweet. Has anyone else experienced these side effects with Femara. Am feeling so low as my husband died suddenly in his sleep just before my 5th treatment & have lost the one person I was leaning on.
BetteRose
Hello
When I started taking Fermara I felt sick, was told to drink plenty of water, it did ease off after a while.
I took them for 12 months but unfortunately they did’nt work for me as I had a recurrence. Have been changed to Tamoxifen as they work differently so hopefully will have better luck with them.
Sorry about the loss of your husband no wonder you are feeling low.
Hope you feel better soon.
Take care.
Jan
Thank you Jan,
I will try drinking more & hopefully it will help.
I was the opposite to you. I was on Tamoxifen for over 3 years & was diagnosed with secondaries this year so that is why now trying me on Femara
Hope you keep well
xx
Hi Bette Rose, so sorry to hear of your loss, expecially at this time.
I am on Femara for the same reason as you, but have not had the nausea or the sweet taste, for me its horrendous joint pains. I guess we are all different and get different side effects.
Love Jane
Thanks Jane
Sorry to hear about your problems, as you say strange that we all react differently to same tablet.
Have you been on Femara long enough to find out if it is helping to keep things at bay. They say my tumour has shrunk by half but still a worry when you know it will never go away.
xx
So sorry to hear about your husband.
I started Femara a month ago. I was on tamoxifen for 2 and a half years but the wanted to switch me to an aromatase inhibitor. They chose this one, which is not their normal protocol, because I have ME and thought it may be more suitable for me as I was concerned about possible side effects of fatigue and joint pains (which are some of the symptoms of ME). So far I’ve been fine on it - no nausea. I’ve had some more joint pain than normal this last week but I think that is cos I’ve got a bug that is going round - I didn’t notice. I’m not sure if I sleep as well on it though.
Hi Everyone, my Daughter just sent me this link. I have been trying for the last hour, I am really please to join in. I have been unable to find anyone in my position & by reading this forum, I have found loads of you.
I have had my op & Radiotherapy, & now on Femara, lot’s of aches & Pains, no sweats etc but I am finding it hard to sleep with all the pains in my arms wrists & hands.
I am really pleased to be able to get in touch with others having the same problem. I now do not feel such a freak.
Hello Bette Rose
I was so sorry to hear about the sudden death of your husband. What a terrible shock for you. When you speak of your fifth treatment did you mean rads or chemo? It is not surprising you are feeling low. Even the nausea could be attributed partly to your loss. It must be hard to take on what has just happened to you on all fronts. Have you been offered any support from your hospital or gp - should you want it - in the form of counselling etc.
I have been through chemo, mastectomy and rads and now Femara for the past 12 weeks or so. I have had nausea/vomiting, headaches and worst of all urticaria on different parts of my body and which itches really badly especially at night. I started taking the Femara at night to try to sleep through the worst of the side effects. It has helped a little but think I need to take it around supper time so that the worst of the SE may be over by the time I go to bed. My consultant suggested I could change to Arimidex, but I thought I would stay with the Femara for a little while longer since it seems the SE may settle and I do not want to take a new drug and have to go through new SE all over again.
Best wishes
Harebell
ive just been put on this as had 4 yrs on arimadex ,i now have terrible pain in my hip and nausea ,i wondered if his was ses but as i havnt been on it a week yet maybe not! i had joint pain with the arimadex ,but as i also have osteoporosis thats not really suprising .hopefully things will settle down for you soon .x
Hi all, I was diagnosed 11 years ago, had a lumpectomy,chemo then
radiotherapy, recurrence, mastectomy more chemo, this time with Taxotel and then immediately onto Femara as they found liver secondaries. I live in Spain and treatment is very different here.they tend to bombard the cancer with everything they can. I started on Femara while trials were still going on in Uk, and all drug treatment has now been stopped. Not I should say because there is any problem, but because they can find evidence of the secondaries in my liver, but they say they are now dormant.
Sorry to say there is no let-up in the painful side effects of the Femara , mine also were in my hips, but also feet,arms and hands, neck and lower back. As I lead a fairly healthy lifestyle I found that this helped, try not to take painkilling drugs, the pain only comes back when the effects wear off, and you can easily become addicted. I took Femara for 8 years and now, even after coming off them the joint problems are still evident. I’m due at the hospital on Thursday of this week, over here even after such a long time we still go every 6 months for full checkup. I feel for you over the death of your husband, living away from my sons and their families I leaned very heavily on mine I don’t know what I would have done without him.