Well I will be having my final check up soon, 5 years on from being diagnosed (where has the time gone)? Just wondered what to expect from the appointment.
When I switched to Anastrazole after being on Tamoxifen for 2 years I was told I’d take it for the remainder of the 10 year term. I really hope this has not changed as if it has I would rather not have switched but have just stayed on Tamoxifen for 10 years.
Anyone who has had their final appointment and been in a similar position and could offer any insight as getting quite anxious about it.
I can’t advise you about 5 year appointments or your individual hormone treatment time. I just did not want to bypass your post without wishing you well for your appointment and generally.
Hopefully you can put your worries to one side and see what is said at your appointment. I think the Nice guidance advises practitioners to recommend or consider (depending upon a person’s risk profile), extended hormone treatment of over 5 years with an aromatase inhibitor like Anastrazole even after 2 years on tamox so don’t know if that may allay your fears. If they originally said treatment for at least 10 years, has something happened to make you doubt that that will be the case?
Hi MM I think we have chatted over the years? Here we are finally reaching the 5 year mark. I’ve just had my 5 year check up, it was strange that I felt really nervous about what my consultant would say. At my 4 year check up she had said it was up to me if I take tamoxifen for 5 or 10 years. What the hell do I know?? You spend years waiting to come off it but when the time comes it scared me to think I wasn’t giving myself the best chance I could. Anyway at my 5 year check up, they just said we recommend you take it another 5 years and I felt relieved…so strange I know! I always write down all my questions to take with me so I don’t forget what I want to ask. I showed my concern at this being the last check up, my consultant reassured me that if I did have a reoccurance my body would show me, this did help me as my bc didn’t show on a mammogram yet I had 3 tumours. I know its difficult, but try not to worry and ask all the questions you have going round in your head.
Hope this helps and please let me know how your appointment goes…xx