So, the tamoxifen isn’t working anymore… so they’re changing me to Letrozole (Femara?) I’ve also been referred to a gynae, for the removal of my ovaries and the cyst. We had to *request* a biopsy of the soft tissue involvement, as they were just ‘going to monitor it’…
I now need advice on how to change my oncologist - I specifically requested to see my onc TWICE yet I was fobbed off with one of his lackeys AGAIN. I’ve just had enough of it.
Hi J
Great that you now have “a plan”, and will hopefully be benefiting from Letrozole very soon, but sorry to hear you’ll be having surgery. As for changing your onc, hope you got my e-mail last week, and I’ve just looked on the NHS CHOICE website for info about changing oncologist. They recommend you go through your GP, who can refer you to another onc for a “second opinion” – but you might be better contacting your local CAB for more detailed info & support to help you do this successfully & quickly.
Thinking of you . . .
Marilyn x
Hi
Glad they have eventually sorted out what they are going to do but what a pain to have to change onc’s when I’m sure you won’t have the energy to do it. It’s all these ‘extras’ that can get to you so I hope you’re feeling up to it and get someone in your Health Authority to sit up and notice. Good luck with the treatment.
Nicky x
Hi J
I am also pleased you have your treatment plan and wish you well with it. I think you are under Christie Hosp? I was when I had my primary and a friend changed her onc simply by asking her g.p. she said they had a clash of personality. When you go for your appointment do you ask reception to put on your onc list as you feel the need for a good chat re your condition. Also when I had my ovaries removed it was keyhole by Mr Brough and he was very good.
Good luck.
Love Debsxxx
Hi Poannie,
You just keep pushing girl, and if you don’t have the energy get your partner/family to do it for you. You deserve the best treatment there is. I think you’ll feel much better once you’ve had a second opinion/got a new Onc. You need to feel you trust the person who’s making such big decisions about your life.
Wishing you the very best of luck and sending up a prayer for a perfect 'match’with a new Onc.
love Jacquie x
Hi Poannie
Good luck with the Femera, I had that for well over a year without any progression and little side effects, but I know others who have taken it for much longer.
When I changed my Oncologist, I got a recommendation from someone, then simply rang him and asked if he would see me, he said yes and I made an appointment with his secretary. I am so glad I did, he makes me feel that my life is important, whereas I was just a number with my first Oncologist. I don’t know where you live but my Oncologist is in Newcastle if that’s any good to you.
Love
Linda
Hi J
I’ve been looking out for this. Glad to see you have got somewhere after waiting how many weeks? 4? I’m not suprised you will be changing your onc. I like BoneyL’s approach. Very personable. Hope the Femara does the trick and I hope to catch up with you soon. Will be back at work from a week Monday so feel free to arrange a coffee meet
See you soon
Love L
Hi
I have been on femara for nearly 5 years now after having had tamoxifen (secondaries in the lung, bones and liver) and almost scared to say that keeping it at bay for now.
Fingers crossed that it will be the same for you.
Ziggy x