Hi all, it’s been a while since I posted on here but would really appreciate the views of others. I was diagnosed last year and had surgery, chemo, radiation and am now on Exemestane and Ribociclib. I had an SMX with immediate reconstruction last year and last week (18th) my first mammogram since diagnosis. I’d previously raised with my oncologist my concern about the mammogram and whether I should have an MRI (I was seen the year before diagnosis and it was missed/not there yet and I was told I had dense breast tissue). My oncologist said she would raise it at the MDT after my results were back. I also had 3/6 positive lymph nodes and despite SMX, no clear margins.
So today, a week after my mammogram, I get a telephone appointment come up in my app with my surgeon next Tuesday at 4pm. It’s really triggered me because the exact same thing happened when I was waiting for my biopsy results - after the MDT I got an appointment for the following Tuesday at 4pm, although that was face to face.
I’ve tried calling the secretary but got answer phone. My mind is spiralling. On one hand it’s a telephone appt so not likely to be anything major, but the short notice of the appt makes me wonder, also with the consultant. If it was all okay I’d surely just get a letter. And if for some reason my surgeon wants to tell me whether I should or shouldn’t have an MRI, why not just write to me. I just don’t know what to make of it all and my head is spiralling. I had one of my counselling sessions today and was really starting to feel a bit better!
If you’ve read this far, thank you, I just needed to get this out of my head and on to paper so to speak. Has anyone had this experience? Xx