Hello
Just to say that a couple of weeks ago it was 5 years since I was diagnosed straight at stage 4 with spread to liver and bones. Have had mets in liver and bone ever since but they wax and wane and I change treatments as they alter. Just wanted to share because I think that often a diagnosis of liver mets/organ involvement can be scary.
Celia
Thanx for sharing that Celia, am in same position as you, liver and bones. Liver diagnosed a year ago and latest scan showed up completely clear! It’s lovely to hear that you have managed this for 5 years. It gives hope to others xx hugs from Gen xxx
Hello , your posts are just what I needed to read today, just joined the forum today, I was diagnosed with liver mets this Tuesday and these posts have given me a well needed lift xx
Hi Celia, thanks so much for your post. Am currently on taxotere for liver and lung Mets. Also have Mets to spine. Your news has helped me a lot. Take care. Sheila. X
Hello celiab
Thankyou for sharing such a possitive post . I was diagnosed nov 2013 b/c . Jan 2014 secondaries to liver and bone Also . It has been a very scary few months as you say ! I have just started treatment . Tamoxifen, monthly zoladex / zometa . Great to read stories like yours . Just what us newly diagnosed need . X
Hi Celiab, thanks for posting. I was diagnosed with lung and liver mets at outset one year ago. It’s lovely to hear your great news. Thank you so much for sharing. Katherine
Thank u so much for your reply. Iv been doing really well of late just try to divert my mind into positive things and it seems to be working for me. I had a ct scan the other day and although after 2 sessions of chemo it hasn’t improved it has not worsened and they said the cancer is stable. I pleased with that outcome at the moment. Its so heartening to hear ur story. Good luck and thank you. X
Hi Celia
I am new to forum. Congrats on your five year survival. I was diagnosed a year ago exactly the same as you at stage 4 with liver and bone mets being given a 2-9 year prognosis by the onc. Of course, having reached the year marker, with possibly a year left - (yes, I was having a bad day!) - your email really helped me. Many thanks.
Juliax
Thank you Celia for you post. I was diagnosed with liver/lung mets at outset last year. I still live under the shadow of cancer but am enjoying and appreciating life with my 19 year old son. I hope both you, I and the other lovely ladies on here continue to chalk up many, many years to come.
I’ve started turning to this site more and more over the past week - just found out I have liver mets after original BC diagnosis/surgery/chemo in 2010. Waiting to have MRI and PET scans to see what treatment i will be offered. On a good day I think thank goodness it’s been found and can be dealt with; on not such a good day I find it surreal and terrifying to try and get to grips with it all. It’s really helped though to read posts from other women who are going through the same thing, especially when there are so many good news stories out there. It’s so great that people takes the time and trouble to share their stories to help others like this.
That is great to hear, I also have liver mets I am 2 years on now, changed treatments. Nice to hear someone that is 5 years on. Hope you keep well
Hi All,
I was diagnosed with Liver mets back in February 2015 and in March I was put on weekly taxol and 3 weekly herceptin. The taxol was stopped mid September as the side effects were knocking me bandy and I was struggling to combat even a simple cold. The scan showed no worsening/growth of the cancer, but also no real shrinkage. I am now just having the herceptin and Anastazole.
I can say that I am now starting to feel much better physically, but psychologically I am terrified that I am not doing anything to fight it. Every ache and pain I get panics me and I started to have panic attacks. The Complementary Therapist at the Hospice I attend weekly as a day patient made me up an inhalational aromatherapy stick which is helping alot with the panic attacks, and I am finding that my main coping mechanism has to be positive thinking and keeping myself busy.
Not sure if this is any use to anyone but I felt that I would like to share it as I feel quite lonely and isolated at times as I am sure all cancer patients do - despite having a great deal of family and friends that support me.
Penny
Thanks for this forum
I am 39 and i was diagnosed to have liver mets since one month , will start treatment shortly
Hi guys thank you for the inspiring stories.I was diganosed last her with mets to the liver I am er/pr postive and her- i am currently on tamaxifine and zoledex.Is anyone on these treatments and are they working for you
last post here was 2014 is anyone still around
Hi Lillypin (and Nicky),
just wanted to reassure you that some of us are still going strong! I’ve just celebrated 10 years since liver mets diagnosis and my liver is clear. Im generally fit & well & have a good quality of life, although feeling a bit bleagh today after chemo yesterday (I have mets in my abdomen - peritoneum).
wishing you all the best in your treatments
Jacksy xxx
Hi Jacksy ,
Just wanted to say congratulations !!
I was diagnosed with stage 4 with liver mets 2 years ago - like you I’m generally fit & well- I do 8 hours a week doing yoga , tai chi & qi gong , working & running a house
I try & stay positive all the time - keep telling myself & friends that one day a cure for secondary liver will be found & that I’ll get that treatment
All you can do is be positive, live every day well & happy ?
Hi. What is the treatment for bone and liver Mets.? I was just DX less than a year after having BC. X
This mskes me happy and positive. Ive a plerual effusion and waiting on it being drained n tested. 10years clear from bc. Its a shock but staying positive. I have to my girls are 19 n 13. I need tp fight cx
This mskes me happy and positive. Ive a plerual effusion and waiting on it being drained n tested. 10years clear from bc. Its a shock but staying positive. I have to my girls are 19 n 13. I need tp fight cx