Hi Nicky, Ange and Lyn,
Glad all is going well, apart from your poor dad Ange. It never rains but it pours. Hope they can sort him out properly this time, bless him. Must be thoroughly sick of hospitals by now. Bet you’re looking fwd to your hol in Tenerife, you enjoy. Nicky, slap aqueous on religiously at least twice a day. They like it to be applied 2 hrs b4 appt so that it can really soak in. My skins never been so well moisturised! If you can, do it 3 or 4 times a day, it really helps.
Work is going fine, by next week I’ll be doing my normal f/time hours, then will hopefully take a few days off and get ready for August holiday. It’s our 30th Wedding anniv next week and I’ve booked the room in the hotel featured in ‘Four Weddings and a Funeral’ believe it or not it’s OH’s fave film! He loves horror and war films and dislikes girly ones but loves that film! Hope the place lives up to expectations as it cost a small fortune…
Jacq, how’s rads going for you, ok I hope? Lyn, you should be fine for your trip to Prague but, if there’s any sign of skin breaking down (mine did about 10 days post-rads) get the special dressings to take away with you. They’re excellent and really do a great job of helping the skin heal. Yep, give the magnet a go, I still get the flashes although not as many as not as intense. It was bloody awful in that heat last week, I felt like I was melting! Any relief is worth it.
How’s everyone else doing - good I hope. Take care all and you’re all nearly there.
love and hugs, Pat x
Hi all, hope all your treatments are ok and everybody going on holiday has a great time - I’m very jealous.
Pat, your OH has great taste, that film’s near the top of my favourites too. Whereabouts is that hotel, it looks lovely on film?
Had a crap day, only 4th zapping of the 25 and back wound started to open up already - whoopeedoo. It’s in the exact place that the rads exit through your body, but the nurse on the unit is going to dress it and keep an eye on it every day for me - phew! Hate these rads so, so much.
Listen to this though … had just arrived and checked in at Reception and a trolley came trundling round the corner, so had to back up against the wall to let it through. On it was a body completely wrapped in a sheet-like shroud. OMG, poor sod, I thought. Then as they pushed it past, an arm came out from underneath the side next to me and pulled a bit more sheet over itself! What the f**k?!?!
Turns out they’d wrapped this (live!) person up completely in the sheets to protect them in the hailstorm that was drowning London at the time - to ferry him across the road into the main hospital building! Stupid, stupid idiots, surely they could have left a bit of face uncovered so that I could see they were alive. I nearly had a frigging heart attack.
D’you know what … there are times when I think something like Candid Camera is on me 90% of my life. Not just since all ‘THIS’ - my life has always been like this. I could definitely write a book - trouble is - nobody would believe it.
I was already totally stressed out from driving in the worst weather I’d ever driven through in my life - couldn’t see a bloody thing. For Londoners to slow down to a crawl on the roads, it must have been bad. Terrifying!
Why am I still putting on weight with all this stress?!!! x Jacq x
Hi ladies,
Oh Jacqui it could only happen to you!!It did make me laugh but if it had been me I would have probably passed out!! Sorry you are having probs with the rads already, especially with so many still to go.
My boob is just starting to look a bit red and a little irritated but nothing too serious and I have just another 7 to go-finished next Friday-roll on!! What happens after that?? I feel as though I have been going to and from the hospital for so long that it’s almost become a way of life! Do they give you a follow up app to the rads? Nicky I am using the aqueous cream in the morning before my session and emu oil at night as it is a bit more intense and stays on the skin longer.
Pat, where did you get the dressings from? Hospital or pharmacy and how red was your skin by the end of rads? I am so glad we are getting a spell of cooler weather as I was ready to expire from heat-my lot were getting a bit wary of coming through to my bedroom as I had taken to lying naked on the bed with the fan on me…not a pretty sight!!
Ange, hope your poor dad is picking up again-what a time he has had.
Anyway better go get a meal on or the troops will be revolting!!
Hugz to all,
Lyn xxx
Lyn, I had to phone the rads dept and the guys told me which dressings to get gp to prescribe, or they can give them to you if you go up there. My boob was mainly pinky brown, just looked really suntanned and it was only the bit in the crease and under the arm that got sore. Laying naked with fan on is ideal as it really helps letting the air get to it.
Jacq, how’s your back? And the ‘body on a trolley…’ if I were you I’d be looking for the hidden cameras too! The hotel from 4 weddings is in Amersham, called The Crown. The outside bit in the film was The KIng Arms which is up the road, and the interior was filmed in The Crown.
Nicky I haven’t tried the chillow but have heard great things about it. Still persevering with the magnet and it’s not so bad. Still not sleeping great though and seem to be tearful a lot. This bc/menopause lark is no picnic, is it?!!!
Ange hope all is well and that Dad is better. I’ve been invited to a meeting at Guys to give input into their new chemo unit, tomorrow we get to see the floor plans. Quite nervous though as haven’t had to think about chemo for a while and it’s bringing it all back…
Alison hope wisdom tooth extraction wasn’t too traumatic - my daughters weren’t straightforward at all, and hope the scan went well, when do you get results? Whooppee to end of chemo!
Hope everyone else is doing okay, the rads will be over soon and that’s another biggy you can kiss goodbye to. God we’re a strong bunch on here :-)Take it easy,
love and big hugs Pat x
Hi all, just to let you know the liver scan came back all clear!!!
Never been so releived in all my life. Just had first of 19 radio sessions. Onc has said she’ll give me a few weeks off before I start herceptin and she’s hoping I can go on a trial having it over 6 months so apart from Tamoxifen should be clear of treatment by April!!!
Hope everyone is doing well and coping with hot flushes and pink boobs, keep slapping on the E45.
Bye for now
Alison
Ah, well done Alison, great news! I remember being nervous about whether they would even find a liver. That’s another notch under your belt (is that right?!) x Jacq x
Great news Alison. Good luck with the rads. Pat x
Hi Everyone,
I ve read your post a few times Jacq coz it makes me laugh so much.
Congrats Alison on your great news. Lyn glad to hear not many rads left and your coping well. Pat hope you have the most lovely holiday as you deserve it. My dads still in hospital I m back and too there, he looks better but had a water infection thats gettin sorted now. I am three weeks post tax my nails are not a pretty sight but are still there, my legs ache quite a lot especially after sitting down much more than when I was on the Tax. I could do with a good nights sleep keep waking up for a couple of hours probably thinking too much about everything!!. Well thats my whinge over with I am thinking of going back to work in August got to pluck up the courage to ring work to start the ball rolling. Hope you are all ok
loads luv
Ange xxxxxxxxxxxxx
Oh and yesterday and today I have been out without my wig, and I have dyed my hair.(Which I,m not supposed to) I havent got loads but it felt great.!!! Ange xx
Hello ladies,
Having a sleepless session so thought I would catch up!
Great news re the scan Alison, and good luck with process of getting back to work Ange. I found it did me the world of good as when you are off for a long time it really knocks your confidence.
I have only 4 more sessions of rads to go…finish on Friday…and having to fit in a visit to the hospital on Thursday round about my daughters graduation, but they have kindly changed my app to fit in. Fortunately we had decided to have the grad meal on Saturday so it’s going to be a double celebration…her graduation and me finishing treatment! Thought I would never get to this day!
Just as well my top for Thursday is not too low as I have one very red boob at the moment…slapping on the aqueous cream, but it feels very irritated.Hope it calms down soon as it is driving me crazy with itching! AAARRGGHHH!
Had a bbq yesterday for daughter’s birthday and in the past I have always done the cooking(OH useless at it!!), but had to hand it over as between the heat of the bbq and my heat with tamoxifen, I thought I would combust! Nurse at rads review clinic today said it should settle down and ease off a bit…can’t happen quick enought for me!
Anyway on that note, and feeling another one creeping up…I am off back to bed to try and sleep before heading onto town again in a few hours!
Take care all and hope everyone else doing well?
Hugz,
Lyn xxx
Hi all
Great news about the scan Alison.
Jacq I think I would have hadd a fit with your sheeted body but it has given me and a lot of others a good laugh.
Lyn I hope that you have a good day for your daughters graduation.
Have a great day on Saturday.
I start my rads and tamoxifen on Monday so will be joining the rest of you with the hot flushes. My rads are due to finish on my Dads birthday so we’ll be having a double celebration then. Definitely will invlove a bottle of bubbly.
Then big party for all of those who have supported me through this planned forthe end of August and off to Bath on hols in Sept before starting back to work in October. Will have been off work 11 months by the time I get back and there have been big changes so will feel like starting a new job.
My hair is starting to go curly which is a novelty for me. Debating whether or not it’s time for a bit of a trim to tidy things up a bit but still reluctant to have even a tiny bit cut off. What amazes me is how many people want to stroke my hair - even people I’ve never met before but who know that my hair is just coming back. Even my GP stroked it without even asking!
Take care all.
Nicky x
Hi all,
Nicky I just love the image of your gp stroking your hair!! Good luck with rads and tamoxifen! I have just ordered the Ladycare magnet (thanks Pat!) so watch this space to see if it is effective as I am about demented with sweating!
We had a lovely day yesterday at graduation…the sun shone and we were soooooo proud! In today for last rads came away from hospital feeling quite light hearted, until I came home at 5.30 to a phone call from gp to say she wasn’t happy with smear I had done 2 weeks ago, and given my history she wanted to refer me on for a colposcopy…and try not to worry…??? Diagnosed with cancer twice…finish treatment in the morning and be told you are being referred hours later…try not to worry…I nearly laughed! Still trying to come to terms with it-really feel as though this can’t be happening to me! However going to have to try and put it to the back of my mind as we have our family meal out tomorrow for the graduation and I don’t want to take the shine off of that.
Sorry for sounding a bit down tonight ladies-had hoped to be much more upbeat-off now to try and get some sleep.
Take care,
Lyn xx
Lyn, I think your gp is being cautious. I’ve found that my gp and my lung consultant order tests much more frequently for me than before I had bc. Useless to say try not to worry, but try and enjoy the Graduation celebration. You deserve to and, however you fret or worry it won’t change anything. I really hope the magnet helps, I still get hot flashes and sweats but not nearly as bad or as frequently. Last week I had a few really bad down days but they never last too long, think it’s the menopause symptoms kicking in, helped along by the tamoxifen. Just had a lovely night away in a posh hotel to celebrate Pearl anniversary so still flying high on that. Well, must catch up on some other threads - my computer expired on Tuesday - smell of burning gave it away! So son has built me a new one which I love!
Take care all, hugs Pat x
Pat, that’s handy having a clever son who can build computers. Any many congrats on your special anniversary.
I know what you mean about the ‘hair’ Nicky. I was thinking of having WELCOME stamped on the top of my head, 'cos it soooo resembles one of those old style, coconut doormats.
Lyn, I’m sure the chemo would have sorted anything dodgy out ‘down below’ - so don’t worry missus.
And Ange, I hope your coloured hair has stayed intact!
Had another piece of crap thrown at me yesterday morning. Lost my poor old mum - was expecting it, but still can’tN grasp that it’s happened. Also had my baby granddaughter’s christening yesterday, so
decided to keep it to myself all day so that it didn’t put a dampener on the day for my 2 girls and rest of family. Wasn’t easy but kept from breaking down until the very end of the day. They told me off, but I was glad I hadn’t told them in the morning.
Next piece of poo anybody … ? Why do I tempt fate? x Jacq x
Oh Jacq, I’m so sorry about your Mum. Sending love and a huge hug and, whoever’s ‘in charge’ upstairs - LEAVE JACQ ALONE - SHE’S HAD ENOUGH!!!
x
Well said Pat!!!
Im so sorry Jacq sending hugs to you xxx
Iv not been here for a while so hope things are plodding along for you all.I feel like a bundle of **** my back is killing me and joints have been more painful over the last few days B***** Arimidex
still only 46 more months to go !!!
Well more rain today where is the summer ?
Hope it is better where you are
Take Care
Jackie xxxx
Dear Jacq
I am so sorry to hear about your mum, my heart goes out to you loads of love & hugs
Ange xx
Oh Jacqui-so sorry about your mum-sending a mega hug. It is time you got a break, but life can really be s**t at times!
Hope everyone else fine?
Lyn xx
Just a quick post before I head off on my break to Prague tomorrow.
Hope all ladies here doing ok? We seem to be tailing off on this thread…maybe a sign that we are all getting back to some kind of normal-post treatment-life?? Either that or migrated elsewhere?
Pat I bought and have been using the Lady Magnet, and not sure if it is my imagination but I think the sweats are slightly less intense so will persevere with it. Only prob at the mo is an infected nipple after rads which is extremely uncomfortable! Got an antibiotic but just hope it doesn’t get any worse while we are away!
Took part in relay for life yesterday in the survivors lap…my daughter had entered a team so a few of us went to support them…it was agreat day and a fantastic atmosphere! The whole day raised £111000 for cancer research uk, and most of the teams were young folks so well done to them!
Anyway better go throw some things into a suitcase…choice a bit limited with the weight I have put on!
Will check in when I get home,
Hugz,
Lyn x
Lyn, glad magnet may be helping, I find that I still get the symptoms, just not so badly which is great. Every little helps! Have a great break in Prague, tell us all about it when you’re back. Well, I turned 50 on Thursday and very happy I was to do so, never thought I’d say that! Hope everyone is doing okay and maybe off on hols too? I’m looking forward to a week away at end of August, hope weather behaves itself as our summer seems to be faltering a bit at the mo. Jacq, hope you’re doing okay, as always love and big hugs to all, Pat x